So the good news is I’m not dying (well, let’s give it another 50 or so years then check back on that 😋)
I told a couple people but mostly kept it between my dad and I; at least, I told him stuff before my besties because I’m a daddy’s girl and I wanted comfort and hugs and someone physical to cry on.
And okay, look, what I’ve been experiencing is nowhere near as bad as others have it, but this was the worst case of nauseating gastrointestinal distress I have ever experienced to the point I woke up at 3am this morning, threw up for the 10th day in a row, clutching at my upper abdomen and barely able to walk (no one else was around to help me get there). Anyway, no one wants cramps where they’re not supposed to be on women—felt like when I ruptured an ovarian cyst a few years ago along with kidney stones another time, just felt higher up the abdomen.
Two points about the personnel at hospitals and how people with fibromyalgia get treated. One bad, and one surprisingly good.
The triage nurse told me I shouldn’t be wasting hospital time (there was no else in the waiting room because it was goddamn 5am) and that all ‘normal visits’ should be conducted through general practitioners/family doctors. Never mind the fact that the 2018 census showed 241 doctors for every 100,000 people. Which is abysmal, and I’m so lucky to have the same one for 20 years now. Anyway I told her in a snippy tone (I get bitchy when people imply I’m a hypochondriac or wasting people’s valuable space and resources as a disabled person) that a) it currently takes 6 weeks to get an appt with my doctor and that’s why I book two months in advance, but am shit out of luck if something pops up between all that. Like, I get a d understand and take precautions with Covid. But like??? Sometimes people need to have their abdomen poked and prodded which…
Might actually save my life/or from a long recovery surgery, or a lifetime of having to plan his and grandma’s days around his (I’m now learning: hereditary— thanks grampy) disease. But yeah this female doctor in probably her late thirties comes in and actually TAKES ME SERIOUSLY. I did also start the meet and greet by expressing concern over her doing what countless others have done…. Blame it all on the Fibromyalgia (oh you have a concussion Tommy?? Keep playing, it’s just your fibro!” Bitch please. Anyway. She said she absolutely understood and would help me figure out what feelings were fibro, and which were abnormal for anyone. Reminds me of this tweet I found around this hellsite:
But I’m so grateful she listed and she actually ordered all the blood panels they have available at this rural hospital, took x-rays, did a physical exam… and after all that and the tests she semi-smiled at me and said “well it’s not fibromyalgia” and I about cackled.
But yeah, if you start throwing up for no reason for 10 days in a row (plus some other gross things I shall not mention), please go to the hospital. Apparently I have something fucked up going on in my large/small intestine and perhaps colon. She was worried enough about me, since they don’t have the tech there except x-rays, that she said she’d bully my do tor into seeing me sooner so he can arrange some, uh…. Well; some not bad; some uuuugh…. tests to figure out wtf is going on.
I didn’t even know what was going on! So hard to explain pain when you’re in pain every day. Bah. But she helped and had excellent bedside manners and took me seriously. One of the best feelings as a fibro patient.
Only problem with it not being fibro… is you only have deductive reasoning and tons of tests to do. She told me if I don’t vet these tests done, I could die from a rupture or whatever term she used. Though I do know what sepsis is! Yay! *rolls eyes*
I’m just glad I didn’t talk myself out of going to the ER, because I was worried it ‘wasn’t serious’ enough…. Yeah well, your body can lie to you! Jerk body.
So yeah now I have a plan of action, new medications to hopefully last me until the more thorough tests are conducted.
I don’t want to be (more) sick, but I’ve always believed in knowing what can happen to your body even if it’s a bad thing. And maybe we caught this early.
All I can ask for now is this, though: please please please no more upchucking every day, or at leat only for a few days.
God, it’s been a miserable 10 days, but I still somehow feel better. Knowing does that. :)
(P.S. I’m not intending this as a ‘woe is me’ thing because sometimes people do care about how their friends are doing, and also because I am a hug supporter of listening to your body and judging WHEN not IF you go to the doctor about it. I hope this post helps that attitude somewhat.)
Anywho, we’ll see how the tests do (whenever that may be, because of Covid) and treagmt with meds a d adjust food until I learn more.
Take care. Be safe. Stay well!!!! ❤️