#pientry

I can't figure out how to thread my machine. I've been trying for weeks now. I can't believe everything I've lost since my first mini-stroke in 2012. Sadness. #livingwithpi and many a #RareDisease isn't easy; my #primaryimmunodeficiency has gotten more severe and I'm struggling to keep my shiny happy mask on. #pientry #piawareness #spoonie #mycrazylife (at Stacy Face's) https://www.instagram.com/p/BngxoIAlqRn/?utm_source=ig_tumblr_share&igshid=w4ye8i6216sc

I have endless #flair #zebrafashion SAFE AND HAPPY @dpp_nyc #disability #PRIDE week! #zebrastrong #spoonies keep hydrated, have an extra #inhaler and #epipen, keep copies of your #prescription / #rx, #condition / #dx / #diagnosis (#PRIMARYIMMUNODEFICIENCY) #allergy and #emergency #PIawareness. #cards HAVE SOME #DISABLEDJOY! #PIEntry @chronically_queer #futureisaccessible (at Jamaica (LIRR station))

#NYC #Pride WEEK! #IVIG #infusion DAY! Team #Intactivists Team Captain @stacyspoonley @chronic_intactivist is ready to join her #herd to fly her #freakflag and raise #primaryimmunodeficiency #PIAwareness for the 3rd year in a row! #RareDisease #PIEntry #fragilebutunbreakable (at Stacy Face's)

Happy #fathersday to a platelet and plasma donor Thad added to my compiled #IVIG for over a decade! #PIEntry There is no cure for #primaryimmunodeficiency.  Hope for a cure, Walk until there is! #NYC #IDFWALKFORPI Team #Intactivists Captain @stacyspoonley can't wait for our #zebrastrong #herd to show off #zebrafashion, and raise #primaryimmunodeficiency #awareness or #PIAwareness! 2016 I made it with my #hurrycane, 2017 my #rollator, and this year I finally have a transport chair until I can afford my power chair. Then, only the #MTA can stop me! ♿🗽💪 (at Stacy Face's)