i truly am exhausted by how hard life is as a high support needs / severely disabled person with no caregiving support or real treatment.
wanna go somewhere? sorry, you cant Walk or Open Doors.
wanna make some original art? nope, your arms are Too Weak. but you can do this simple craft if you want. at least there's that.
wanna eat? ahah, well. wouldn't you love that. Stomach Pain and Dizziness. cant cook and cant even eat a snack. Starve.
wanna lay down and rest? everything from the waist down is going to feel like it's in a vice. like someones squeezing your spine from the inside.
sit instead? ahah oh... dear... didnt you hear me before? spine vice.
wanna chat with a friend? there's no one around!
wanna watch a show or play videogames? photophobia and brain fog. push through if you want but you'll regret it.
wanna play with your cat? you cant even keep up with him.
wanna sleep? you'll need to spend 6 hours going back and forth between your bed and the couch because staying in one position for too long is excruciatingly painful
want a moment of peace and comfort literally ever? well you are shit out of luck. you will never feel comfortable again. your pain is permanent.