May 28
Can't wait for the day we ditch "levels" in autism
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Can't wait for the day we ditch "levels" in autism
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On the ethics of sub-grouping and functioning labels
I don't know if my autism assessment said level 1 or level 2. I know functioning labels can be invalidating for a lot of people, but I find myself internally wanting to be validated by it, and I don't know if that's okay. I could pay for another copy of the assessment; I've lost mine.
I identify more with the level 2 identifier. I am a most-of-the-time AAC user and require 6 hours a day of daily aides care plus have trouble caring for myself when they're gone or leaving the house safely alone. But I also have DID, ADHD, lab expressive-receptive communication disorder, PTSD, anxiety, multiple chronic illnesses, and am an ambulatory power wheelchair user. So it's hard to know that they attributed to what.
It seems like I'm not enough of any 1 thing to get the help I need, so I just get pushed off on Medicaid Waiver and aides who have no training in autism and may clean the house well but actively make things like overload worse. I have moderate support needs overall, I think.
Cannot fucking stand âsupport needsâ labels. They were intended to replace functioning labels butâexplain as people mightâI still cannot see the true functional difference. I would not rather be called âlow support needsâ than âhigh functioningâ because one is not more correct than the other. Both are wildly incorrect.
Donât even get me started on âmildâ autism. Unless I hear it from the mouth of an autistic person, I will never believe that a single autistic is having a âmildâ experience trying to navigate this world.
Okay I need to rant here about functional labels because I think theyâre so ableist. LikeâŚwhat does highly functioning autism even mean? That I can function in society in general? And low functioning just sounds like youâre saying that they canât function in society or at all.
Iâm glad we arenât using those anymore but the level system now is weird too. LikeâŚwhat does highly functioning you mean Iâm level 1?
???????
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BBC's Sherlock: I'm a high functioning sociopath.
Me: Sherlock, functioning labels can be really harmful. "Low support needs sociopath" is the better terminology. Also, you're not a sociopath, you're just a huge twat sometimes.
Amy Sequenzia writes about rejecting society's many labels. Perceptions of her as âsuper spectacularâ autistic and âlow-functioningâ are equ
Just Me by Amy Sequenzia for Ollibean Magazine.
Excerpt:
"I am not a genius trapped in an uncooperative body; I reject the âlow-functioning labelâ; I believe my friends who are more independent than me have some of the same issues I have; I believe some of them also reject the âhigh-functioningâ label.
These labels bring a need, external to us, to be, look or act in certain pre-determined ways, or forces us to prove our ability to have intelligent thoughts.
These needs are determined by the neurotypical world and enhances the anxiety already so present in our autistic lives.
I canât speak for my friends, but labels hinder my life. I reject labels. I am just me."