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Autoimmunity is a key clinical feature in both post-infectious Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and Post-Acute Se
New research suggests antibodies from people with ME/CFS and Long COVID may directly change how cells handle energy and inflammation. The s
Posted on Threads. This post explains the article.
New research suggests antibodies from people with ME/CFS and Long COVID may directly change how cells handle energy and inflammation.
The study found these antibodies may fragment mitochondria and alter immune signals.
unfortunately i don't think it's allowed, and i guess i can kinda see why, but i wish i could just go to a doctor and be like "hello i think i have something autoimmune going on and it's causing many problems" and then they'd give me a strong immunosuppressant to try, and then if it helps i could just go back to the doctor and be like "okay that helped so i was right and it's clearly some kind of autoimmunity, now please figure out what" and then they'd just do that
unfortunately the medical system doesn't work that way, but it would be really nice
I think a lot of people have migraines on top of their existing chronic illnesses and just don't know. Or I'm just not in tune with my body lmao
It's so frustrating to realize how chronic mine are. Especially because if they don't hurt, I just assume it's CFS/fibro related. My thing seems to be a heavy CFS baseline with like, fluctuating migraine overlay. Makes it confusing to know if I'm crashing, having a migraine episode, or both.
I'm starting to recognize the difference and I used to think I got migraines like more than the average person yeah but not like, ALL the time. Like if something causes immediate brain fog and localized pain and nausea it's probably a migraine? That's like, most times when I get stressed?!
✨Dynamic disability ✨ my mobility aids and when I use them:
Living with multiple autoimmune conditions, an inflamed brain and Tourette’s makes every day different ✌🏻
(Keep in mind, mobility aids are only PART OF a treatment plan to manage a diagnosis or set of symptoms. It’s not recommended to use any mobility aid long term without professional guidance.)

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Inktober day 9 Heavy