Pink Liv

Uber is a fucking shell game of a company designed to leech investor capital and output bootleg cabs.

Nvidia posted a profit in 2023 of $4.37 billion. This is like someone stealing less than a penny from me.

And they lock this kid in a prison hospital for LIFE?

Star requested "For your requests: older (40+ years) CaitVi having a cup of tea 🩷"

This one might be my favorite so far, besides koala Caitlyn.

when care needs not met my friends—willingly—help out they help look out for wheelchair accessibility feature they help me call doctors n other places that hang up on me without word because mechanical AAC voice they help me move n pack they help pick what clothes good for weather they help with back zippers n buttons when lose my they help me use microwave they drive me they help with ER times they look after me when go out n they still look after me even now thousands miles apart. n am look after them in my ways we share joy share sadness share anger when go through traumatic times we go through together am look after their access needs n thru their medical episodes n let them indefinitely borrow my mobility aids am not need anymore n let them put their stuff on my wheelchair. because we friends n it what friends do n we build our own lil queer trans disabled communities n future with authentic trust n care n mutual aid. they not my PCA it not same n anyone can easily see that fact but friends will be just as insulted as me if people devalue their efforts just because of that.

our care needs not just a service it not just transactions we not just consumers of service. many people who not depend on other people care every day not understand, or refuse understand, or even do understand but not care abt it because it nothing do with them, that there so much barriers to Official personal care attendants, that be our level of disability not include manifest PCA into thin air as symptom, that many of us simply not have them - it should not be privilege to have basic care but it be force that way.

it make sense that [people who do understand (they may even work in disability field) surface level of PCA process n how hard it be but not care abt it because it nothing do with them or their role] not understand [how much mutual & community care go into our lives]. because understand that mean they first need care abt us n see us as important n entangled part of their own community, that community members should help other community members.

people who not depend on other people care go on n on about appropriate-ness n liability (to them) n keeping all other people who not depend on other people safe protect them first n foremost before us, so quick to lecture us “educate” us as if we not live this life, that real life a lil more complicated than what they learn in textbook or “most classic case” or laws—

—send message of. we not care abt what happen to you, we not going help. but moment our community of people who not need other people care need be in your direction we need make us safe by make your life hard. nevermind that you probably already done background checks n qualification check (if there any because… well that another post maybe), or very real reason why it not done (something abt urgency of need every single day basic needs care to physically not die). nevermind that, if harm ever do happen, then.. idk… person they routinely see naked, hold power over, n can literally easily physical overpower, may be first under harm.

Today I've been a lot weaker and in more pain than normal, so I'm not functioning well. But this made me realize... im still valuable. I'm still helpful. Nobody else on my team notices that stuff. And I've noticed a lot of disabled patients, esp ones with mobility aids, seem comforted by my presence, especially if I'm the one checking them in and looking after them.

Made me think about how diversity hires are fucking great. I am valuable in my role in part BECAUSE im disabled. Because I have unhelpful shitass doctors. Because I can and will advocate for them to the point that I make myself a nuisance on their behalf.

people look at wheelchair users and think "well you're sitting down all the time that doesn't take effort" no actually it does. pushing a manual chair takes a lot of fucking effort, especially without a power assist. repetitive stress injuries are a huge problem manual chair users encounter all the time. going up hills and ramps is so deeply fatiguing.

this doesn't just apply to manual chair users btw. power chair usage can also be really exhausting, especially for people with complex seating needs. going over bumps and cracks can trigger many symptoms such as spasticity, pressure sores are common, even just sitting upright can be exhausting for many people.

Powerchairs, especially those with minimal or no suspension, transfer vibrations from every bump on the ground to the person using them. That's not the same as sitting in place or sitting in a car. You also have to keep a high level of spatial awareness and proprioception at all times, and operate your chair without the biomechanical and proprioceptive feedback our brains expect to come with movement. And the body can respond in unhelpful ways to the alternative way of moving, including muscular impacts in areas you wouldn't think of when considering what muscles are active during walking - like deep back and neck muscles. Discomfort and injury related to sitting position is common in powerchair users, and tools like recline and leg elevation can't fully mitigate this - and not all chairs have those features.

i’d be remiss to mention the cognitive part of this— even though a certain amount of situational awareness is needed for walking at all times, I need more of thag in my powerchair, which is really exhausting when having a fatigue disorder that effects me cognitively. When I’m very exhausted, I am more likely to get lost or do things like cross the street without looking just because my brain isn’t operating correctly.

Anyway, all this to say, driving a powerchair is a very difficult skill lol. The solution to this is more accessibility in part but also, for me, using my pushchair at times. I’m lucky enough to have caregivers who are good helpers (being a Wheelchair Pusher to someone who can’t push themselves at all is also a skill! For example, @windupvictrola especially is very good about asking me where I want the chair to be aimed so that I can actually see what everyone else is looking at rather than being just aimed at the wall.) I’m rambling but things like gender neutral bathrooms are also important for this! When I’m with my dad, he can’t take me into the women’s bathroom in my pushchair, for example.

people look at wheelchair users and think "well you're sitting down all the time that doesn't take effort" no actually it does. pushing a manual chair takes a lot of fucking effort, especially without a power assist. repetitive stress injuries are a huge problem manual chair users encounter all the time. going up hills and ramps is so deeply fatiguing.

this doesn't just apply to manual chair users btw. power chair usage can also be really exhausting, especially for people with complex seating needs. going over bumps and cracks can trigger many symptoms such as spasticity, pressure sores are common, even just sitting upright can be exhausting for many people.

Powerchairs, especially those with minimal or no suspension, transfer vibrations from every bump on the ground to the person using them. That's not the same as sitting in place or sitting in a car. You also have to keep a high level of spatial awareness and proprioception at all times, and operate your chair without the biomechanical and proprioceptive feedback our brains expect to come with movement. And the body can respond in unhelpful ways to the alternative way of moving, including muscular impacts in areas you wouldn't think of when considering what muscles are active during walking - like deep back and neck muscles. Discomfort and injury related to sitting position is common in powerchair users, and tools like recline and leg elevation can't fully mitigate this - and not all chairs have those features.

this genuinely makes me so mad. some of you really don’t deserve fanfics. at all.

comment like this, besides the ai witch hunt, is one of the reasons why fanfic writers don’t want to post their fics anymore.

we write for free. whenever we can. whenever we have time. whenever we’re not too exhausted by life and responsibilities. we write for our own enjoyment. as a hobby. not a job. we update whenever we can. whenever we want. we do not owe anybody anything.

one of my favorite fics was updated after literal 13 years. but the point is that fanfic writers do not owe you anything. whether a fic was abandoned forever or updated after a decade or two is not something you as a stranger has a say in.

stop being entitled. stop treating fanfic writer as a content farm or a machine that produces contents for your enjoyment.