we're our own heroes

my worst relatives try to sneak meat or meat products into my food despite the fact that I'm a vegetarian

my ex's brother gave his mother an edible without her knowledge and when she got freaked out and paranoid they laughed, and people I've told that go "yeah that's shitty but it's just weed"

when I go to the doctor and ask them to describe what they are going to do before touching me they get frustrated

when I ask a friends of a friend who is a small influencer to keep me out of frame in videos they film for social media in public they look at me like I've pissed in their cereal

pressure sores from being in bed all day - to prevent these, change position minimum every 2hrs if possible, and use pillows to support your positions (find visual examples online). you’re especially at risk of pressure sores if you use continence products, so make sure to use a barrier cream and change as soon as possible when soiled.

contractures, especially in the ankles, from being immobile in bed - these can be minimised by doing ankle flexibility exercises, but ONLY if that would be within your energy envelope. otherwise just try to vary your ankle/foot positions. support with pillows if needed.

tinnitus and ear infections from having to wear earplugs so much - i have no advice for this

vitamin d deficiency from being indoors in the dark all the time - supplements and foods rich in vit d can help.

deep vein thrombosis aka blood clots in the legs from immobility - this is uncommon but it’s an emergency if it ever occurs. compression socks can reduce your risk if you can tolerate wearing them, and movement also helps lower the risk, but again, only within your energy envelope.

muscle atrophy - your legs and arms may start to look like sticks after becoming bedbound. unfortunately, as long as exercise is unsafe for you, this is impossible to fix, so it’s something we have to accept, as pushing ourselves is much more dangerous than deconditioning.

vit and mineral deficiencies from dietary restrictions - opt for a healthy diet, supplementation, and regular blood tests to stay on top of deficiencies

dehydration from being unable to sit up to drink - there are sporty contraptions meant for backpackers that let you drink lying down. some water bottles with sports caps also work, i use refilled lucozade bottles for all my water. if you’re too weak to swallow for longer than a day, it’s time to call a doc to see if they can give iv hydration.

dehydration from sleeping a very long time - if you sleep 16+ hours, especially if it happens regularly, you’re probably waking up dehydrated. try to drink water when you wake.

I'm very thin/ atrophied myself, and that definitely puts you at a greater risk. Aside from repositioning/ having a caregiver reposition you at least every two hours, there is also an aid called an alternating pressure mattress that I personally use. It's a little air mattress that you put on top of your regular mattress that attaches to an electric pump. Mine was about fifty US dollars. It has little air bubbles/ pocket things within it. The air pockets inflate and deflate, alternating between which row, every five minutes or so. My dad calls it my breathing bed for this reason, heh. This helps your weight from settling in one place and therefore keeps pressure sores at bay! I didn't explain it super super well, but EquipMeOT sure does.