Reminder that seeing a disabled person participate in a task once does NOT mean it is easy and straightforward for them and that making assumptions (and loudly voicing said assumptions) based on that is incredible unhelpful
You don't see the preparations made in advance to be able to tolerate the event.
You don't see the discomfort or pain they're experiencing during the event.
You don't see the rest after the event.
You don't see the crash or flare up that the event may cause.
You haven't considered that their disability could be dynamic. Sure, they may have managed an event however if their condition is dynamic there aren't any garentees they can handle it multiple times, equally there are no garentees they'll be able to handle it in the future.
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I don’t care how they’re marketed, these things are not wheelchair accessible, especially for large power chairs.
ID: a yellow and black plastic cable cover which is approximately 5-10cm tall with steep sides and looks like a small speed bump /end ID
Every time I go over one I need someone to help hold my chair and get me over it safely. Even with that support it hurts like Hell and has caused whiplash injuries for me in the past. It’s also very unsafe for others because even with support I cannot 100% control the angle my chair will end up lurching over it (and my chair weighs over 150kg without me in it so it’s not something you want to collide with). It’s also terrifying and makes noises that make me very concerned for my chair’s structural integrity.
If you want your event to actually be accessible to wheelchair users then consider using something more like this:
ID: the same kind of cable cover but it’s fitted with a much shallower ramp with the international symbol of access embossed on the black plastic. The ramps are about a foot long on either side of the cover /end ID
> medical problem
> unsure if it's serious or will go away on its own
> sees a doctor to be sure
> "why the fuck are you here. this is nothing. it will go away on its own"
> medical problem
> unsure if it's serious or will go away on its own
> decide to wait to not overreact
> problem remains
> sees doctor with concrete problem after all
> "why did you wait so long. we could have done something if you had come immediately"
ME/CFS culture is when you feel like you have to pee so for the next twenty minutes you bargain with yourself on whether it's worth it to get up and go to the bathroom
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So can non-disabled people stop doing that thing where they act like it’s morally righteous to force yourself to work while you’re sick and assume taking sick days automatically equates to laziness. Any time now. That’d be great
The leader of the scout group I help out at approached me out of hours while I was walking to work to tell me that people have been talking behind my back because I missed more sessions than I attended this term (on account of having Covid twice) and was like “We all show up when we’re sick because we take responsibility” and I felt really shitty and guilty and cried the whole workday then I got home and told my mum and she was like “So they want you to throw up on the kids? That’s dodgy. They don’t even pay you. Stop going” and a wave of serenity hit me like a bus
“It just means you have to work double as hard as most people!”
Well maybe I don’t WANT to work double as hard as abled people!! Maybe I deserve a BREAK!! Maybe I’ve been working MORE THAN double as hard for MY WHOLE LIFE and it’s led me to immense burnout & caused me to develop several MORE disabilities!! Maybe I should be ACCOMMODATED so I don’t have to KILL MY BODY AND BRAIN over trying to do what abled people can do!! Maybe I DON’T have to work double as hard!! Maybe if there’s the option to let me NOT work double as hard, I should have it, because I’m already working double as hard JUST TO SURVIVE!!
Why do you think disabled people deserve less rest than mentally & physically abled people?
Can everyone who makes video content do a Deaf bitch a favor? Watch your shit with the captions on and the sound off, and then do another round of editing to fix things including but not limited to:
Captions cover the spot on the screen you put the information I need
The dialogue is captioned but not the song you have playing that the dialogue is responding to
You only captioned the person on the screen, not the person off screen who is also talking
No captioning of critical sound effects (alarms, bells, dogs barking, etc)
Speakers are not labelled at moments where it is not clear on the screen who is talking.
Captions cover the spot on the screen that you put the information I need!
Other d/Deaf people welcome to add.
This post brought to you by the fifth video tutorial I could not follow because the bad, auto-generated captions covered what I was trying to watch today.
semi-regular psa that depending on where you live, getting a few doses of narcan might literally be as quick, easy, and free as pouring river water in your socks. it's small, light, and easy to carry around in any kind of bag bigger than a wallet; it's simple to administer; it doesn't become hazardous after its expiry date, just very slowly less effective but still okay to use; it's safe to give multiple doses of it in succession; and it won't cause any harm even if given to someone not experiencing an opioid overdose. (due to the nature of how it works it is a potion of instant withdrawal and might make someone very sick very quickly for that reason, but you can't give someone a hazardous overdose of narcan.) even if you don't think anyone in your life licitly or illicitly uses opioids it's still worth it to pick some up just in case. if you are the Purse Bitch of your friend group and have ever said something like "well what if we do need two full boxes of bandaids all of a sudden" then you simply owe it to yourself to see if a public health center near you has a free narcan distribution service.
For those curious on how to respond to an overdose using Narcan/naloxone, NYC’s health department has a good video on the subject. For those in NYC, their website also has information on how to obtain it.
always great to carry narcan, and while you CANNOT give an “overdose” of narcan, you can effectively drown somebody if you give a large dose. the “drowning” is flash pulmonary edema, and is associated with larger amounts of narcan being administered to somebody who is overdosing.
so absolutely please get some and carry it with you, and remember that you don’t need 20+ mg of narcan to reverse an od!
Adding onto the last rb as someone who works in harm reduction and has given overdose reversal trainings.
First want to say that OP your post is great but it's important to mention that you NEED to wait 2-3 minutes before administer a second dose of naloxone (the generic and frankly better version of Narcan, Narcan is a for-profit brand so if you can it's better to get the generic from your local SSP or HD), for folks who are dependent upon or otherwise regular users of opioids naloxone can precipitate pretty nasty symptoms of withdrawal, no one is gonna feel *great* after an overdose, but acute withdrawal can lead to vomiting, shakes, and a whole slurry of symptoms ranging from unpleasant to medically dangerous.
While were here, here is a quick runddown of symptoms of an opioid OD to look out for:
- Person’s skin might look blueish or greyish, depending on skin tone
- Skin might feel cold or clammy
- Might hear “agonal breathing” - a gasping/gulping/grunting sound sometimes mistaken for snoring
- Sometimes you might not see or hear any of these obvious signs. The person might just seem like they are sleeping or in a heavy nod.
You can check for responsiveness by verbally calling for them and doing a sternum rub (running your knuckles up and down the center of their chest), but don't spend a bunch of time trying to get them up-- every secound counts.
Second major point: when reversing an OD you are looking for a return to regular breathing, NOT for the person to wake up. Adulterants like xylazine (tranq) and medetomidine are fairly common in the US fent supply, and given that these are sedatives they can put folks out for hours at a time. Make sure to give rescue breaths and monitor breathing continuously until emergency service providers arrive (or if you are unable to call 911/999/etc, have someone stay with the person for at least 90 min). The biggest mistake I see people make is, since they're in a panic, they continuously administer naloxone without waiting and without watching for breathing bc they're worried about the person not coming to. I get that it's really scary, but it's vital that you're focusing on the correct tells.
Like last rb said too, you don't need a crazy mg amount to reverse an OD, in fact you don't need more than 4mg max (6mg if the person REALLY isn't breathing) for nasal naloxone and 0.8mg/ml max for intramuscular naloxone. This is about 2 doses for each type, and often one dose is enough to stabilize someone (when the medicine wears off any opioids left in the system will rebind to opioid receptors, though, so keeping a dose on hand is vital especially if they can't get to the hospital for monitoring). There is no evidence that high dose naloxone such as Kloxxado is more effective in reversing overdoses, and actually poses a greater danger due to its ability to quickly lead to acute withdrawal. These products are produced by for-profit companies co-opting panic surrounding the present street opioid supply, and are not recommended by anyone with experience in the field.
If you want to find free naloxone near you but aren't sure where, NextDistro is a great resource for those in the US
I'm in awe of how we ran historical revisionism on the civil rights movement so bad that people truly believe it was quiet self-sacrifcial non-disruptive christ-like activism that forced progress and not — like — the incredible economic pressure of boycotts and outbreaks of illegal civil disobedience
Yapping to the choir but eughhh it burns me up girl effective protests have to be loud and inconvenient for change to happen because silent cries die in the dark that's the entire pointtt
Also, a lot of the so called harmless examples used for peaceful protests were specifically supposed to be disruptive as all hell. Like, take sit-ins, for example. What you were probably told is that black people just refused to leave white only establishments to make a point.
But how they actually worked was manipulating racist policies to cause as much of a delay as possible. They'd sit down at the bar to order (that's how those restaurants worked, you had to sit down to order and there weren't many tables) and when the waiter said they couldn't serve them, they'd respond that they would wait until they could be served. And then all their friends who they organized this with would do the same, and they would sit there at every seat until they're holding up the whole line. Then nobody could order and the restaurant was forced to either close, serve them, or try and fail to work around them. It wasn't just to make a point, it was to cost them money and time.
Even what was framed as "quiet peaceful protest" was actually very disruptive both socially and economically.
And the struggle didn't stop after formal integration, once the Civil Rights act had passed. Because even when they are legally required to serve you, they can make you really fucking uncomfortable and threaten you and the cops probably will take their side.
For one example, there was a cafe that would serve Black people, but would then publicly break the dishes so that no white customer would ever have to eat off a dish a Black person had eaten off of. This was done publicly, right as the Black diner was done eating. The waitress takes the plate and smashes it. This is a signal both to the white diners "see, we hate them just as much as you do, you're safe here" and also a threat of violence to the Black diners. "If you're not careful we'll smash you just like we did this plate."
But at the same time, if Black people go there and eat every day ... how long before the cafe can't afford to do that? How long before they have broken so many dishes that it's eating into their profits? How long before the white diners start getting used to eating alongside Black people and simply don't care as much any longer, or start getting annoyed at the noise and fuss and mess?
Black people eating in white establishments was loud, inconvenient, and disruptive. Because that's the nature of challenging the status quo.
All of this, plus a couple of additional thoughts:
1. Folks in these movements trained. They were disruptive and they were strategic about it and they trained so that they could stay calm in terrifying situations and create the targeted disruptions they wanted to create and not get goaded into deviating from that. Absolutely badass.
2. Not at all a criticism of OP because I think their description of people thinking it was "quiet self-sacrificial non-disruptive christ-like activism" is dead on, but I think that description itself speaks to the same kind of revisionism re: the Christ of the Gospels and how disruptive he was and why, and it's important to remember that, especially in this era of renewed christofascism. Rev. Dr. King was a prophet and you will never convince me otherwise.
Nonviolence is not a goal, it is a strategy. A deliberate strategy at a calculated time in response to violence of the oppressor, which can be effective if it shames the perpetrators. See: why Selma or Montgomery was chosen by the SCLC (they had the most racist unhinged sheriffs who would deploy maximum force, which got shown on nationwide broadcasts and finally moved the public).
Nonviolence doesn’t mean you don’t carry weapons if necessary, as many organizers in Selma did. Nonviolence doesn’t mean that you accept that people will throw bombs into your family’s home, as they did to MLK.
And yes, the absurd simplification and bastardization of this strategy is deliberate. It went from being a tool for fighting for liberation to being a justification for more violence and oppression used against future generations of protestors who didn’t meet the standard of perfectly obedient nonviolent non disruptive protestors. Which of course there is no such thing.
And it’s all a lie. Know that people in the movement, at the time, were called criminals, because they knowingly and deliberately broke laws with the idea that they’d get arrested. Know that most of the country hated King at the time of his death. Know that no movement demanding change from the system will ever be loved by those in power.
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"exercise will give you more energy" gets said a lot as a common piece of health advice but I think it needs to be expanded into "exercising will make you tired while you do it, and you will continue to be tired immediately afterwards, sometimes even the next day too, but over months of consistent exercise, your muscles will get stronger and therefore get less tired out by everyday activities, making you feel like day-to-day life takes less physical energy than it used to"
everybody: you’ve got to advocate for yourself in medical settings!
medical professionals when a patient advocates for themselves in a medical setting (x100 if that patient is a part of any minority): damn. you’re a hypochondriac crazy bitch who has every mental illness and is seeking every narcotic in existence. that’s the only reason you’d be disappointed in the care you’re receiving here. in retaliation, we will be even less helpful and less sympathetic. our jobs are hard. people are dying. we don’t have time to deal with anyone who is slightly inconvenient for us.
As summer is approaching, I’d like to remind everyone that you are not entitled to ask someone to cover up their scars, self inflicted or not. I don’t care if they’re big, I don’t care if they’re noticeable, or purple, or all over their body, or what. You can’t police people’s bodies.
This also goes for my friends with feeding tubes, ostomy bags, central lines and urinary catheters. People are allowed exist in bodies that stray from the expected norm.
why is it so hard for people to grasp that disabilities disable and chronic illnesses are chronic. yes even when it inconveniences you. yes even when your patience runs out
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whenever I see archeological remains of a human who suffered from a terrible disease that couldn’t be treated in their lifetime but could be fixed now, this wave of sorrow and mourning washes over me. a woman in the 14th century who spent her 35 years of life bent at the waist because of congenital scoliosis. a man from the 18th century who died because of a non cancerous mass on his jaw that made eating progressively more difficult. remains of a woman from the Neolithic who died in childbirth having evidence of peri-mortem trepanation on her skull.
and yet she survived to 35. and yet the physicians in his time tried to strengthen his jaw. and yet someone 4,000 years ago tried to save someone they loved from dying of preeclampsia/increased cranial pressure. we tried. we tried and we tried and we tried. we failed and we learned but we tried. that’s what makes humans so beautiful.
My mom sometimes talks about a child in her neighborhood who was born with hydrocephaly and died of it. His parents strove to keep him alive for years, but he ultimately passed after a long decline. No treatment available. No hope at all, and the parents knew it from his birth.
Several decades later my sister had an MRI, as a long shot, to try to figure out why she was sick and deteriorating with a number of symptoms that were close to being written off as anxiety. She was sent straight to the hospital for adult onset hydrocephaly. Two days later she had brain surgery to put a shunt down her neck into her stomach and drain the fluid out. (No, you cannot usually get brain surgery that fast. Yes, it was that urgent.) Recovery was long and squiggly but it happened.
I think of that boy every once in a while. The one who died. I have no doubt that treatments developed for people like him, and tested on people like him, saved my sister's life.
He never knew he made the world better. His condition was severe, he never knew much of anything, I don't think. I think if I ever track down a God or something like one, that'll be somewhere on my List of Wishes. To make sure people like him know that they helped.
I've been type 1 diabetic since I was about one and a half, and was incredibly sick. If my mother hadn't also been type 1 and recognized the signs I likely would have died.
I was born in 1982. Insulin was first given to a patient in 1922, and he survived. Before that, type 1 meant death, often very slow and agonizing. Before insulin, doctors advised a super strict "keto" diet to prolong life, and it could work for awhile - up to a year, I believe. But it was a miserable existence as the body was literally eating itself as the blood turned acidic until the patient eventually died.
60 years. Only 60 years before my birth did that procedure work for the first time. That's absolutely nothing given the span of human history and I think a lot about the people who died from it throughout time.
But yes, people tried. Healers and doctors of all sorts tried all manner of things to allow these (mostly!) kids to live. The fact that it was accomplished at all is nothing short of a miracle. The fact that I've been alive 42 years is fucking insane considering my body doesn't produce a hormone necessary for survival. If you think that doesn't blow me away on a regular basis you have another think coming. It's nothing short of a miracle.
Every medical advancement is. The amount of work that goes into it and the vast amount of luck necessary to get it right even when all the research and information is sound is just astonishing.
Thank you, humanity. Thank you ingenuity and determination to save lives and make them better. Thank you to every medical practitioner and medical researcher in existence now and through all of time. Thank you to all the people who died so I could live.
Diabetes is one of these illnesses that really throws medical history into perspective. It's so common, everyone knows someone who has it, people live pretty normal lives with it. And yet, a hundred years ago, it was an instant death sentence. And then we were able to treat people with insulin and yet - it was extremely disabling. The insulin was extracted from animal pancreas had severe side effects, even with how similar the hormones are, there is always an averse reaction to proteins from foreign species, especially during long-term treatment. Injections had to be given every few hours, at-home-tests were only available from the 70s onwards. Insulin pumps entered the market in the 80s. Genetically produced insulin - humanized insulin - was first available in the US in 1982, in many countries only around the year 2000.
In 1930, having diabetes type I would basically mean being hospital bound, being woken every few hours for regular injections.
In 1965, you'd be able to live at home and get by with a very strict diet and a few timed injections. You'd struggle with chronical side effects. Having children wasn't done - passing on your genes would be immoral, and it might not even be legal for you to marry.
In the year 2000, you'd have a device clipped to your belt that would measure your blood sugar and distribute insulin, you only need to change the needle a few times a day. You might even be allowed to join in P.E. class
In 2025, you stick on two patches that do the same thing. They're synchronized through your phone.
That wasn't fate. It's not natural development that made diabetes a common chronic illness. It was hundreds of people who cared. It was the people who created the keto diet. It was the people who came up with tests. The ones who went through different species, trying to figure out the closest analogon to human insulin. It was the people who fought in court to get genetically produced insulin approved for medical use. It was people who looked at a rare, incurable disease and said "but what if it wasn't?"
Filming people without their consent is a massive issue of not only privacy but ableism that's been going on for many years.
It started out with filming more visibly disabled people, like high support needs autistic people having meltdowns in public and (especially fat) disabled people literally just using mobility aids, but once that was deemed less acceptable it moved to other things. Filming people acting "weird" in public. Eating weird foods. Falling asleep in weird places. Wearing weird things. Stimming. You get the idea. It's no longer safe to be visibly weird in public and that's an issue for a lot of disabled people. I recently had to lay down on the floor of a department store because I had an ME crash while out shopping. Not only did I have to worry about the normal things like people coming up to ask me if I'm ok, I also had to worry about some video of me at my lowest point, when I'm suffering immensely, being shared around as "haha look at this weird bitch on the floor". It's upsetting. It's scary.
And then there's fakeclaiming. A fun trend where people will film us in public to "prove" there's some kind of huge epidemic of people faking disability. Spoiler alert: there is not. Most of the time the people they film are real disabled people who don't fit into the expected mold for disability, usually service dog teams or people who use mobility aids who don't "look sick". And you would think this trend would be some kind of abled nonsense, but it's not. It's often other disabled people doing the fakeclaiming. Yes, there are some times when it's obvious a service dog isn't trained properly, but other than that, it's damn near impossible to tell if someone is faking a disability, and you're much more likely to target a disabled person than a faker. I'd love to say this trend was new, but it's been going on since the days of "the people of walmart" where many of the people posted were fat mobility aid users, always with the assumption that they used it because they were too fat or lazy to move on their own. In fact, the image of a fat person in a mobility cart has become almost synonymous with "lazy". It's one of the things that drove me to get my own expensive power wheelchair, to avoid the judgmental stares in the grocery store when I was just trying to exist, to avoid the fear of public shame. Even now when I stand up from my chair to walk to the bathroom stall or reach something on a high shelf, I watch the corners of my vision for that telltale phone in the air. I feel like I'm never safe from the judgemental eye of the internet, even when I'm logged off, and I'm sure I'm not the only person who feels that way.
Tik Tok, YouTube, Instagram, these places are all great for disabled people, especially those of us without access to the outside world. But it's also become a source of great anxiety for anyone who's uncontrollably "weird", mostly disabled people. Leave us alone, I'm begging you, we just want to go to the fucking grocery store in peace and safety.
Tl;dr
Stop filming people for "acting weird" or "faking a disability" in public. It's ableist, it's invasive, it's creepy, and it's humiliating. People don't exist in public for your amusement and especially not disabled people. You don't know who is disabled and who isn't no matter how many disabled people you've known or how sure you are that the person is faking.
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