Claire Keane
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@leblebiii99
For Disability Pride Month, I’d like to try something a bit different with a couple of my mid-week articles. Today, instead of a bunch of resources for those of you with chronic illnesses, I’ve taken a personal angle and written an op-ed…
- Jay
This one's for the friends, family, coworkers, and passers-by… [Op-Ed]
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first day of pride month
As Pride Month comes to an end, I just want to remind you that July is Disability Pride Month and there's a flag and everything!
Charcoal Grey: Mourning for people who have died due to ableist violence, abuse, suicide, and illness
Red Stripe: Physical disabilities
Gold Stripe: Neurodiversity
Blue Stripe: Emotional and psychiatric disabilities
Green Stripe: Sensory disabilities
White Stripe: Undiagnosed and invisible disabilities
Anya is live and ready to show you everything. Watch her strip, dance, and perform exclusive shows just for you. Interact in real-time and make your fantasies come true.
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Happy Disability Pride Month!
Happy Disability Pride Month!!!
july is disability pride month. it is also summer in the northern hemisphere, and this summer we have seen record breaking hot temperatures across the globe. it might be apt to remember that disabled people are a population vulnerable to extreme weather, and significantly more at risk of death or health issues during a heatwave. "the global mortality rate of people with disabilities in natural disasters is up to four times higher than people without disabilities." (source). disability may increase the relative risk of a heatwave more than old age, socioeconomic status, and being outdoors (source). even in the places most affected by the rising heat, disabled people are barely included in action plans for public safety, if at all (source). global warming is a an issue that affects a wide range of people, but let's not forget it is also a disability rights issue
Autistic social anxiety is not "social anxiety" in the typical sense. An anxiety disorder is defined as an "irrational fear". So for example, imagine someone who is afraid to speak in case everyone looks at them and goes "what the heck are you saying you wierdo." If that person is neurotypical, then the chances are that they're very unlikely to get that response. Therefore their fears are irrational, and that is true "social anxiety". If you put an autistic person in that scenario, on the other hand, then probably the reason they're afraid of that response is because they've received it many times before. They're fear is based on repeated past experiences, therefore it is not irrational and not the simply an anxiety disorder. That's why people giving the classic social anxiety responses to autistic people is so unhelpful. "Just go out there and talk to people, it'll be fine," or "keep pushing yourself out of your comfort zone and you'll get more confident," don't work if the problem is real and not just in your head.
The Mental Wellbeing Side of Living with Chronic Illness
A short article with some good reminders of how to cope with the mental/emotional side of living with a chronic illness...
"Mental health is an often-overlooked aspect of living with a chronic illness, especially for young people and their families. Diana Naranjo, PhD, ... believes the emotional weight is just as significant as the physical one."
To psychologist Diana Naranjo, the emotional weight of living with chronic illness is equal to physical challenges patients face.
"It’s important to be kind to yourself. When you first learn about the illness, there’s often a trauma response: shock and grief about the loss of a healthy self. You’re also taking in a lot of information — a data download — about your condition. Learning and adjusting can create a lot of stress. Next comes maintenance. There will be moments when you feel good and there will be moments of burnout, when you feel really disengaged and overwhelmed. Burnout is normal, so don’t get freaked out. The whole family — especially one with young children — can be affected."
Happy disabled pride month!
Be super loud about it this year! We deserve to be heard and protected!
normal intro - link
Also, share some important disability rights figures, or general disabled figures (historical and/or modern) you like! I’ll start a list below!
Frida Kahlo Franklin D. Roosevelt Disability rights figures from Mod Sovereign: Judy Heumann Ed Roberts Kitty Cone Haben Girma Harriet McBryde Johnson Alice Wong Lennard J. Davis
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Free to watch • No registration required • HD streaming
does anyone have any resources for housebound or bedbound disabled people that are written by other disabled people?
do not want shit from doctors, thank you. disabled people, please.
(I can leave my house, sometimes. I can leave my bed, sometimes. I just... mostly don't, and I pay for it so much when I do.)
@hillbillyoracle
Heyo I got you
Or at least, I've written a lot about this.
Here's a masterpost of resources that I've personally found useful
I'm still in the process of annotating all of it but it is all labeled and grouped by topic.
If that's a little much here's the original post it was based on. There's some overlap, some unique.
Here's a write up the personal care kit I keep by my bed
Here's how I handle my room since environment impacts me a fair bit
Here's how I handle my laundry specifically (no fold)
When I have more energy, here's resources I use to manage my house
I wrote a free minizine called The Bedside Companion that has a quick reference of my favorite ideas and resources that you can keep by your bed (good for when looking at a phone causes headaches).
I also wrote a free minizine called Fuck Goals about how I manage task overwhelm with being disabled and not being able to do anything consistently.
I'm working on zome full length zines on meditation with chronic pain and some other spoonie stuff but Go Date Yourself might be a good one too if you find yourself alone a lot. Also free.
I hope this gives you a place to start or inspires something for you!
disability pride month is july and im on vacation and have not checked tumblr in a week but here is some love for people with personality disorders <33 because yes they are disabling and it sucks. SO:
i love you people with npd
i love you people with bpd
i love you people with aspd
i love you people with hpd
i love you people with stpd
i love you people with szpd
i love you people with ppd
i love you people with avpd
i love you people with ocpd
i love you people with dpd
i love you people with personality disorders
i love you people who were told they feel nothing when they feel too much
i love you people with scary feelings
i love you if you call yourself a narcissist or just say you have npd
i love you people with disorders that make people flinch
i love you people with the big scary disorders
i love you people who spiral because they didn't text back in a few minutes
i love you people who feel safer when hidden behind a mask
i love you people who always mask and i love you people who don't mask and i love you people who can't mask
yall are amazing and i love you so much
you are deserving of love and appreciation and understanding even if you aren't "healed"
love, a pwPDs
i dont WANT pride months to be over,
on the other hand...
I Wish all my disabled folk a good doctors-actually-listening-to-the-symptoms-you're-describing-and-not-reaching-to-a-conclusion-from-biases-they-have-about-your-pre-existing-conditions-or-your-identity
and a
doctors-fully-listening-to-the-symptoms-you're-describing-and-not-stopping-halfway-through-thinking-they-already-have-the-full-picture disability pride month
Complex Regional Pain Syndrome – Basic Info
This resource gives a general overview of CRPS, covering symptoms, causes, how CRPS is diagnosed, treatments, how to look after yourself if you have CRPS, and suggests two apps that may be helpful:
Complex regional pain syndrome (CRPS) involves pain and other symptoms affecting a limb (usually) after an injury or trauma. Find out how it
"Key points about complex regional pain syndrome: • Complex regional pain syndrome (CRPS) is a medical condition that usually affects an arm or leg. It presents with severe pain and other symptoms, which may become chronic. • It’s not common, but can happen after an injury or trauma. • Pain is the main symptom but others can include changes related to sensation, temperature, sweating, swelling, movement, and hair/nails/skin. • There’s no cure, but recovery outcomes are better if you start treatment (eg, physical therapies, pain management, counselling) early. • If you have ongoing pain and other symptoms, or pain that’s worse than it should be after an injury, talk to your healthcare provider."
Anya is live and ready to show you everything. Watch her strip, dance, and perform exclusive shows just for you. Interact in real-time and make your fantasies come true.
Free to watch • No registration required • HD streaming
My mid-week Substack article is up!
A collection of resources full of tips for how to cope with the most common symptoms of ME/CFS and how to manage those daily personal activities that are so daunting when you’re dealing with fatigue and 50+ other symptoms...
If you've followed this blog for a while, these are resources you will have seen already but please share this with your chronically ill friends and family who aren't on Tumblr ✌️
11+ resources for managing fatigue and coping with the other symptoms of myalgic encephalomyelitis/chronic fatigue syndrome
Post-Exertional Malaise (PEM) – What It Is and How To Avoid It
This fact sheet explains what post-exertional malaise is (including what mitochondria and ATP is) and how to avoid and/or deal with it, using fairly plain language:
(and it is archived here)
This resource has been written by a NZ-based organization (Complex Chronic Illness Support) but all the info should be applicable to everyone worldwide.
"Here are some strategies to avoid PEM: • Do some detective work and find out your own triggers of PEM. • Learn about your health patterns. • Treat any other medical conditions. • Plan your day. • Pace yourself. • Ensure that you sleep the best you can. • Maintain emotional health. • Build your support network. • Give your body good nutrition. • Track your progress"
