The midjourney stuff just reminds of when we were trying to find a new platform to host the ao3 donation form, and companies kept trying to tell me about all their "ai" features that would track donor engagement, and figure out the optimal pattern to email individual donors asking for follow up donations, and all the ways they suggest we manipulate people into staying on our websites. It was a great way to filter out who either wasn't listening to us when we described our ethics and donor base, or just didn't believe us.
Now granted ao3 is a unique case based on a) the amount of page views we get in any given time period and b) the fact that most donors absolutely do Not want to be identified as such anywhere, (the default "list of recent donors" module got nuked Immediately) but it surprised me some that the concept of "donors who value their privacy and would be furious at even the whiff of AI" is unique. Some of us really are just existing in different worlds.
#I just started dropping '2.5 Billion page views a month'#into conversations as early as possible bc they would Not believe me otherwise#it was right up there with having to say 'csam attacks' to get them to take my compartmentalization of information concerns seriously#turns out those are the magic words#otw#op
The last part was kind of insane, honestly. When we started changing platforms for the donor database, I kept telling them that yes I was aware we already had an account for the volunteer database, and no that could not be connected to the donor database. And they said yes fine sure and then connected them anyway. And I called them back and said, excuse me, I'm confused, I can see both databases. And they said, well, yeah, but it's only you, someone has to be able to see both databases to give other users access. The other users can't see both. And I said, no, we have been asking for a completely separate database. I should not be able to see both. And they said, you are one organization, one organization can't have two databases. And I said, last year someone used our volunteer email list to commit approximately one thousand felonies. Please feel free to imagine how much worse it could have been had they had a way to use volunteers' email addresses to get their legal names. We do not want this to be something anyone can do no matter how much we trust them. Let me describe those felonies to you in more detail. And they emailed me two hours later and said, you can have two separate databases.
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One thing I've been thinking about recently is that the Metros were holding Shane back. The Admirals holding Hunter back makes sense, in an oh shit he's going to kill this kid way. But the Metros holding Shane back? Shane who never fights? Shane who is a known peacemaker? Maybe the argument can be made they wanted to protect him from getting hurt/getting fined but, Shane is their captain, if he wants to fight, a fight there shall be.
Unless.
You consider that the Metros know that Shane absolutely does know how to fight. They've all done checking clinics with Shane. They've all wrestled and roughhoused with Shane. He's strong and he's fast and he wants to win.
The Metros understand that Shane doesn't fight, not because he can't, but because he's a little too good at it. And Shane generally doesn't even like violence. He likes to win by playing the game, not hurting the other team.
So when they see Shane, after the whistle, drop his gloves to Scott Hunter, there is a collective thought of oh shit he's going to kill Hunter and they have approximately 1.5 seconds to grab their captain and prevent him from getting arrested.
Writing Disabled Characters: A Guide From Someone Who Lives It
This guide is for fiction writers. All of themāfanfic writers, original fiction writers, people drafting their first short story and people fifty thousand words into a novel. It grew out of years of writing disabled characters in fanfiction, but the bones of it apply everywhere, because disabled characters deserve to be written well regardless of the genre or format they exist in.
I'm Chantelle. I'm 24, English, disabled and chronically ill and autistic. I write because it helped me see myself in stories that didn't originally have space for me, and I've watched enough bad representation to know what it costs people when it goes wrong. This isn't a lecture. It's more likeānotes from the inside. Things I wish more writers knew. Things I had to learn the hard way, through my own body and my own craft.
You don't have to be disabled to write disabled characters. But you do have to be willing to do the work. This is some of that work.
Note: this has 10 sections and is 6000 words long, so feel free to read a section at a time or come back to it later.
1. Writing From Inside the Body, Not Outside It
The most common mistake writers make with disabled characters isn't malice. It's distance. They describe the disability the way a doctor would describe a symptomāfrom outside, clinical, tidily summarised. She has rheumatoid arthritis. Her hands hurt. And then they move on, as if that's the whole picture. As if pain is an annotation rather than an atmosphere.
But disability doesn't live in the notes section. It lives in the body, all the time, and it changes the texture of everythingāthe way a room feels when you walk into it, the way a conversation costs you, the way you hold your coffee cup differently on a bad joint day without even consciously deciding to. You can't write that from the outside. You have to go in.
Going in means specificity. Not her back hurt, but the exact quality of the hurtāwhether it's the dull, insistent ache that sits like a stone in the same spot all day, or the sharp electric flare that shoots without warning, or the deep bone-level exhaustion that makes even the idea of movement feel offensive. These aren't interchangeable. A character experiencing a fibromyalgia flare does not move through space the same way as a character in the middle of a Crohn's attack, even if both of them are technically having a bad day. The specificity is the whole point. It's what makes a reader with that condition feel seen, and what makes a reader without it understand something true.
It also means thinking about the invisible calculations disabled people make constantlyāthe ones that never make it into the narrative because they happen so fast and so automatically that we barely notice we're doing them. Is there seating near the door? How far is the bathroom? If I push through this event now, what does tomorrow cost me? These aren't dramatic moments. They're just the texture of being in a body that requires management. And when writers leave them out entirely, the disabled character ends up floating through a world that seems suspiciously uncomplicatedāwhich is its own kind of erasure.
You don't have to catalogue every calculation. But you should know they exist, and let them surface naturally when the scene calls for it. A character who quietly scans a venue for seating before committing to staying is doing something real. A character who checks whether they have their medication before leaving the house isn't being dramaticāthey're just alive. These small, grounded details are what separate a disabled character who feels like a person from one who feels like a plot device wearing a diagnosis.
Write from inside the nervous system. Write the sensation before you write the interpretation of it. Your joints felt wrong is outside. There was a grinding sensation in your knuckles every time you bent them, a deep, wet ache that seemed to come from somewhere beneath the bone itselfāthat's inside. The reader can live in the second one. The first one just files information.
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2. Differentiating Conditions That Share Surface Features
Fatigue is not fatigue is not fatigue.
This is one of the things that frustrates me most in fictionāthe flattening of distinct experiences into a single, generic category. Two characters can both have chronic fatigue as a symptom and experience it in completely different ways, because the underlying conditions are different, the mechanisms are different, and the body's relationship to that fatigue is different. MS fatigue has been described as feeling like someone filled your limbs with wet concrete and turned off your brain mid-sentence. The fatigue of lupus can arrive like a wave, sudden and total, without necessarily being preceded by exertion. ME/CFS fatigue is bound up in post-exertional malaiseāa feature so specific and so counterintuitive (that activity worsens symptoms hours or days later, not immediately) that writers who don't know about it will almost always get it wrong.
The same applies to pain. Neuropathic paināthe nerve pain associated with conditions like fibromyalgia, multiple sclerosis, or diabetic neuropathyāis often described as burning, electric, like pins and needles dialled up to unbearable. Inflammatory joint pain tends to be deep, aching, worse in the morning, stiff and grinding. The visceral pain of endometriosis or Crohn's disease is something else entirely: cramping, internal, sometimes so severe it causes nausea and dissociation. These are not the same experience. Blurring them together doesn't just fail accuracyāit fails the people reading who know the difference in their own bodies.
The same applies to cognitive symptoms, to mobility, to how conditions behave across a day. Parkinson's can involve tremors that are worse at rest and improve with movementāthe opposite of what most people assume. Hypermobility disorders like hEDS involve joints that move too much, which can coexist with severe pain in a way that looks confusing from the outside: someone who is visibly flexible being in agony. Conditions like POTS mean that something as simple as standing up can cause the heart to race and vision to grey out. If you write a POTS character who stands up quickly without any consequence, the reader with POTS will notice immediately.
You don't need to be a medical professional to get this right. You need to do research specific enough to understand the particular condition you're writing, not just disability as a broad category. Read first-person accounts from people with the condition. Look at community spacesāforums, social media, blogsāwhere people talk about what their daily experience actually feels like. The clinical literature will tell you what's happening biologically; the personal accounts will tell you what it's like to live in.
And crucially: if two of your characters share a condition, they can still have different presentations. Crohn's disease doesn't look the same in every body. Autism doesn't present identically in every person. Part of writing disability well is resisting the urge to treat a diagnosis as a single fixed experience, when in reality conditions exist on spectrums, vary by individual, and shift over time.
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3. The Performance of Being Fineāand the Private Collapse
Most disabled people are very, very good at performing health.
Not because we're deceiving anyoneāor not primarilyābut because the alternative is exhausting in a different way. The alternative is constant explanation, constant reassurance of the people around you, constant management of their discomfort at your discomfort. It becomes easier, sometimes, to just absorb the cost privately and perform fine in public. To say I'm okay with a smile that's practised enough to land, to make a joke before someone can look too concerned, to answer how are you feeling today? with not bad when the honest answer would take twenty minutes and leave everyone in the room feeling guilty.
This is one of the richest seams in disabled character writing, and one of the most underused. The gap between public performance and private realityāwhat a character shows versus what they carryāis where so much of the most interesting emotional work lives. Not dramatic breakdowns, not moments where the mask slips theatrically. Just the small, quiet texture of managing. The way a character can laugh at dinner and then sit alone for ten minutes in the bathroom while their body protests the evening. The way I'm tired means something specific and enormous but gets received as something small and ordinary. The way you learn to modulate how much truth you give, because you've learned how much people can hold.
What makes this complicated to writeāand what writers often get wrongāis the assumption that the performance is entirely negative. Sometimes it is. Sometimes it comes from internalised ableism, from shame, from exhaustion at having to educate people who should already understand. But sometimes it comes from something more neutral: the pragmatic decision to conserve energy, to choose your moments, to protect your own peace by not turning every interaction into a medical update. The performance isn't always suffering. Sometimes it's just strategy.
The private collapse is its own landscape. That moment when the door closes and the body is finally allowed to have the day it actually hadāthe relief of putting down the performance, the strange grief of how much it cost, sometimes the humour of it, because absurdity is a useful coping mechanism. A character who gets home, lies down on the floor for a full minute, and then gets up to make tea is doing something very true. Write that. Write the deflation, the recalibration, the way the body reports back now that no one's watching.
And write the people who see through the performanceānot because they're dramatic about it, not because they make it a big confrontation, but because they've paid enough attention to know. That's its own intimacy. Being known despite the performance, maybe even because of it, is one of the most tender things a relationship can contain.
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4. Guilt and the Burden Narrative
The burden narrative is worth understanding, because it's everywhereāin fiction, in culture, in the way disabled people are sometimes taught to think about themselvesāand it does quiet, persistent damage.
The framework positions disabled people primarily as weight: weight on their families, their partners, their carers, the healthcare system, society at large. It shows up in stories as the disabled character who repeatedly apologises for their existence, who frames their needs as impositions, who spends the narrative being grateful that anyone loves them at all. It shows up in the disabled character whose story is really about how hard things are for the people around them. It shows up in the euthanasia plotline dressed up as mercy. It's a very old framework, and the reason it's worth naming is precisely because it tends to pass as careāas realism, evenāwithout being examined.
This doesn't mean disabled characters can't feel guilty. Of course they canāguilt is a real and common experience, and pretending otherwise would be its own kind of dishonesty. Many disabled people do feel guilt about the impact of their conditions on the people they love. That feeling is worth exploring, with honesty and without flinching. What's worth being careful about is treating that guilt as correctāas the appropriate response to the situation, as something the narrative endorses rather than examines.
The difference is in the framing. A character who feels guilty about needing help, and whose narrative gently pushes back on that guiltāthrough a partner who says I'm not here despite the hard parts, or through the character's own slow realisation that needing care is not the same as being a burdenāthat's a story about guilt that's doing something useful. A character who feels guilty about needing help and whose narrative agrees with them, centres the exhaustion of the carer, treats the disability as a problem the relationship has to overcomeāthat's the burden narrative in action, and it's worth noticing.
Similarly: disabled characters are allowed to have needs that cost other people something without the story treating that as a tragedy. Real relationships involve asymmetry. Real care involves effort. The presence of effort doesn't make the relationship broken or the disabled person too much. Writers who can only show care as effortless and joyful are avoiding something true, and writers who show effort as evidence of burden are drawing the wrong conclusion. The sweet spot is care that is realāthat sometimes takes somethingāwhile the story makes clear, without announcement, that the person being cared for is worth it. Not as a favour. Just as a fact.
And then there's this, which doesn't get said nearly enough: disabled characters deserve to be the ones providing care. To be the person who notices when something is wrong before anyone says a word. The person who shows up with the right thing at the right moment, who remembers what their partner needs, who holds someone else steady for once. Disability doesn't make a person a perpetual recipientāit doesn't remove their capacity to love actively, to give, to be the one whose presence makes a room feel safer. When disabled characters exist only on the receiving end of care, it flattens them into a single role that real disabled people don't occupy. We give. We hold. We show up. Writing that is not an act of charity toward a disabled character. It's just accuracy.
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5. The Difference Between a Bad Day, a Flare, and a Crisis
These are not the same thing, and writing them as interchangeable is one of the most common errors in chronic illness fiction. The distinction matters not just medically, but narrativelyābecause each one calls for a different story, a different emotional register, and a different response from the people around your character.
A bad day is baseline-plus. It's the condition doing what it always does, but louder. More of the same symptoms, more intensely, without necessarily indicating anything has changed. For someone with a chronic pain condition, a bad day might mean the pain is at a seven instead of a four, that they need to rest more, that they cancel the plan they'd been hoping to keep. It's hard. It's dispiriting, especially when it comes after a run of better days. But it's not alarming. The person has been here before. They know roughly how to navigate itāthere's an internal protocol, more rest, more heat, more meds, lower the bar for what the day needs to contain. Someone who knows this person well knows a bad day too. They've learned what it looks like, what it needs, what it doesn't need. A partner who can tell the difference between a bad day and something worse, and respond accordinglyāthat's not a small thing. That's the shape of real intimacy.
A flare is different in kind, not just degree. A flare represents a period of increased disease activityāfor conditions like lupus, Crohn's, rheumatoid arthritis, MS, and many others, this is a clinical reality with specific meaning. A flare might last days or weeks. It might require medication adjustments, medical contact, a fundamental restructuring of what daily life looks like. It carries a particular psychological weight that a bad day doesn't, because it can feel like losing groundālike the progress you'd made is being undone, like your body has turned against you again in a way that feels almost personal. The exhaustion during a flare is different. The grief is different. The relationship to hope is different. And the care a flare needs is different tooānot just practical adjustments, but a particular kind of steadiness from the people around you. The difference between a partner who treats a flare like a bad day that just needs pushing through, and one who understands what it actually is, is enormous. Getting it wrong isn't just unhelpful; it's its own kind of loneliness.
A crisis is an acute medical emergency or near-emergencyāa seizure, a severe allergic reaction, a mental health crisis, a level of symptom severity that falls outside the normal range and requires immediate intervention. This is not a flare. This is not a bad day. Writing a crisis with the same emotional register as a bad day misrepresents both, and writing a partner who responds to a crisis the way they'd respond to a bad dayācalmly, routinely, with the same familiar toolkitāis writing a failure of care, whether or not the story frames it that way.
Why does this matter for fiction? Because the story around each of these is different. A character managing a bad day is drawing on their usual toolkitāthis is familiar terrain, however unwelcome. A character in a flare is dealing with something that disrupts their sense of how life works, that requires renegotiation, that might bring grief and fear alongside the physical symptoms. A character in crisis may not be able to manage at allāthey need help, they need intervention, and the story should reflect that without either catastrophising or minimising.
The people around a disabled character should respond differently to these three states, if they know the person wellāand the degree to which they do is one of the most honest ways to show how well they actually know them. Getting it wrong in one direction, treating every bad day like a crisis, is smothering. Getting it wrong in the other, treating a flare like a bad day that just needs pushing through, is a failure of care. Knowing the difference is part of knowing someone. It's one of the things love, over time, actually looks like.
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6. Writing Care That Doesn't Fix, Pity, or Centre the Carer
Good care in fiction is one of the hardest things to write. It requires holding several things at once: showing that care is real and meaningful and sometimes costly, without making the person being cared for feel like a burden or a passive object of someone else's story.
The fixing impulse is the first thing to examine. In a lot of fiction, care is written as an attempt to solve the problemāthe carer researching cures, pushing the disabled person to try new treatments, refusing to accept the condition as permanent. This comes from a genuinely loving place, sometimes. But it positions the disability as something that must be fixed before the relationship or the story can progress, and it subtly frames the disabled person as incomplete until they're better. If your character's condition is chronic, incurable, or simply not going to resolve over the course of your story, then care that's oriented around fixing is not only narratively unresolvedāit's quietly damaging. It says: I love you, and I'm going to keep trying to make you different.
Care that doesn't fix looks different. It's showing up with soup when the person didn't ask. It's learning the specific way they need a pillow positioned. It's sitting with them in the waiting room even when there's nothing useful to do there. It's asking what would help instead of assuming. It's adjusting plans without making a production of the adjustment. It's the ten thousand small accommodations that happen so naturally they stop feeling like accommodations and start feeling like just how things are. This is the care worth writing.
Pity is subtler. Writers who want to avoid it often overcorrect into something that reads as pity anyway, because they're still centring the tragedy rather than the person. Pity says: look how hard this is for them, look how much they've lost, look what they have to endure. It asks the reader to feel sad on behalf of the disabled character rather than to feel with them. The difference is in whose perspective the scene inhabits and what it asks of the reader. A scene written from inside the character's experienceāwith the full texture of their personality present, their humour, their irritation, their loveāis not pitying even if it depicts real suffering. A scene that frames the character primarily as an object of sadness, even a sympathetically rendered one, is.
Centring the carer is perhaps the most common structural error. It happens when the story of a disabled character becomes primarily the story of the people who love themāhow hard it is for them, how much they sacrifice, what they feel watching this happen. These stories often have the best intentions. They can also accidentally say: the disabled person's inner life matters less than its effect on others. The disabled character becomes a lens through which the carer's emotional journey is explored, rather than having an emotional journey of their own.
The carer can have feelings. Of course they canācare is emotionally complex, and pretending carers don't experience grief, exhaustion, fear, or love in complicated forms would be its own dishonesty. But those feelings should exist alongside the disabled character's inner life, not instead of it. The disabled person should be the subject of their own story. Always.
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7. Consent, Agency, and Autonomy
Disabled people are the experts on their own bodies. Full stop.
This seems obvious, but fiction gets it wrong constantlyāusually by having other characters override the disabled character's stated preferences in the name of care. The partner who insists they know best about what the disabled character can manage. The family member who makes medical decisions without consultation. The friend who tells someone they're pushing too hard when the person has already assessed their own limits and made a deliberate choice. These moments are often framed as loving. Sometimes they're written as admirable. What they actually are is a removal of autonomy, and fiction that presents this approvingly is doing something worth interrogating.
Autonomy matters especially in the context of care, because care relationships can slide so easily into dynamics where the person being helped loses the ability to direct their own life. Good care is care the person has asked for, or has clearly indicated they want, or has agreed to in the moment. It involves checking in, not assuming. It involves accepting the answer no or not right now or I'd rather do it myself even if it takes longer without argument. It involves trusting that the disabled person has thought about their own situation more than anyone else has, and that their conclusions about it deserve respect.
This doesn't mean disabled characters can't be in relationships where care is offered without being explicitly requested every single timeāthat would be both exhausting and unrealistic for established relationships. The difference is between a partner who has learned what their person needs and offers it naturally, versus a partner who decides what their person needs and provides it regardless of pushback. One is intimacy. The other is control, however well-intentioned.
Consent in the context of physical care is also worth naming specifically. Being touched, moved, helped with personal care, medicatedāthese are all things that require consent, and fiction that skips this step in the name of romantic urgency or narrative momentum is modelling something bad. A character who helps someone to bed without asking, who adjusts someone's body without checking, who administers medication unilaterallyāthese moments should be written with awareness of what they are, not presented as pure tenderness.
Disabled characters should also be allowed to make choices other characters disagree withāincluding choices about their own health. The character who decides not to pursue a treatment. The character who knows a certain activity will cost them and chooses to do it anyway. The character who is not managing their condition the way someone else thinks they should. These are valid choices. The narrative doesn't have to endorse them to respect them. Respecting a disabled character's autonomy means letting them have a life that isn't perfectly optimised for their health, because that's what having a life actually looks like.
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8. Newly Disabled vs. Long-Term Disabled: Identity and Time
There's a version of this guide that skips this section, and it would be missing something important. Because one of the quieter defaults in fictionāone that shapes everything from plot structure to emotional register without always being namedāis the assumption that the most interesting disabled character is the one who is newly disabled. The one in the middle of the grief arc. The one still in the process of losing.
That grief is real. It's worth writing. A character who is newly disabled, or newly diagnosed with something chronic, is navigating something enormousāthe loss of a previous body, a previous life, expectations they'd built about their future. The version of themselves they thought they were going to be. That kind of loss doesn't follow a clean trajectory, and it doesn't resolve tidily. It loops back. It ambushes you months later in a changing room or a doctor's waiting room or just a Tuesday afternoon when nothing in particular happened. Writing that honestly, without rushing to resolution, is genuinely good storytelling.
But the grief arc is not the only story. And the trouble with fiction defaulting to it is that it leaves an enormous gap where the long-term disabled character should be. The person who has had this condition for a decade. Who built their life around itānot in spite of it, not in defeat, but in the ordinary, practical, sometimes darkly funny way that people do when they don't have another option and don't want one. Who has protocols. Who has a relationship with their own body that is complicated and intimate and not primarily defined by loss, even if loss is somewhere in the history of it. Who knows exactly which painkiller to take in which order, who has the heating pad rotation perfected, who has made a hundred tiny adaptations to their environment and doesn't think of most of them as adaptations anymore. That's just their life.
The long-term disabled character has a different relationship to hope, to good days, to bad ones. They've learned what their body can be expected to do. They've grieved things alreadyāand then got on with it, because grief doesn't stop you needing to eat and sleep and see people you love. Their illness or disability is present in their life the way a childhood scar is present: real, sometimes still tender, but not the first thing they'd tell you about themselves. They might have a dark sense of humour about it that took years to earn. They might be better at asking for help than they used to be, or worse at it. They are not in the middle of the story they were in at the beginning. They've moved.
Neither of these characters is more valid or more narratively interesting than the other. But writers tend to reach for the newly disabled character because the arc is familiarāit maps onto recognisable story shapes, loss and adjustment and some version of acceptance. The long-term disabled character requires more imagination, because their story doesn't have that clean shape. Their story is textured and ongoing and doesn't resolve into a moment of coming to terms with anything. Which is, of course, exactly what makes it worth writing.
It's also worth holding in mind that disability doesn't stay static over time. Conditions progress. They go into remission. They interact with ageing, with other conditions, with life events that change the body's baseline. A character's relationship to their disability at twenty-two might look completely different at fortyānot because they've grown as a person in a tidy arc, but because the condition itself has changed, or because life has, or because what they need from the people around them has shifted. That arcāthe long one, the decade-spanning oneāis almost never written, and it contains things that the grief arc simply can't.
And then there's the question of identity, which is its own conversation. Some disabled people centre their disability as part of who they areānot the whole of it, but genuinely part of how they understand themselves, how they move through the world, what community they belong to. Disability, for these people, is not something that happened to them and that they've had to accommodate. It's constitutive. It's there in how they think, what they notice, what they value. Other disabled people don't relate to their condition as identity at allāit's a medical reality, it affects their life significantly, and it is not who they are. Both of these are completely valid. Fiction that insists on the first frameworkāthat a disabled character must eventually come to embrace their disability as part of themselvesāis projecting a particular politics onto characters who may not share it. Fiction that insists on the secondāthat disability is always and only something to be coped with, never a source of belonging or self-understandingāis equally partial. Let your character have their own relationship to what their body is. Don't decide it for them.
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9. Research, Responsibility, and Knowing Your Limits
If you're writing a disabled character with a condition you don't have, you have a responsibility to do real researchānot just enough to avoid obvious errors, but enough to actually understand what you're writing about.
Real research has a specific shape. It starts with clinical information: what is this condition, what are its mechanisms, what are its common symptoms and treatments, what does the medical literature say about it. This is the foundation and it's necessary, but it's not sufficient. Clinical information tells you the biology. It doesn't tell you what it's like to be in the body that has this biology, every day, in a world that wasn't designed for it.
For that, you need first-person accounts. Blogs, social media posts, support community discussions, personal essays, oral histories, #actuallyautistic and #spoonielife and every other tag where disabled people talk honestly about their lives. These are where you find the things medical literature doesn't document: the specific texture of the 3am pain, the strange grief of a good day because it reminds you what you're missing, the dark humour that comes from having no other choice, the particular fury of being disbelieved by a doctor for the seventh time. You find out that POTS patients often talk about the coat hanger acheāa specific pain across the shoulders and neck. You find out that Crohn's patients have very specific feelings about the distance to the nearest bathroom. You find out that autistic people experience sensory input in ways that vary enormously from person to person and don't map neatly onto what non-autistic people imagine.
Research also means knowing what you don't knowāand being willing to hold the line there. If you're writing a condition that is genuinely outside your experience and understanding, and your research is turning up more uncertainty than clarity, that might be a signal to simplify, to write around the specificity rather than through it, or to ask someone who has the condition to read your work. Sensitivity readers with lived experience are not a box to tick at the end of the process. They're a resource to engage with genuinely, to listen to, to give real weight to when they tell you something isn't right.
Knowing your limits also means thinking about scopeāhow much accuracy a given character actually requires, and where proportionality lies. It's possible to write a character who has a condition without the story needing to be comprehensively accurate about every aspect of that condition. A minor character with diabetes doesn't need a clinically thorough representation of blood glucose management. But they also shouldn't have their diabetes mentioned once and then never affect anything again, and they shouldn't have it affect things in ways that are actively wrong. There's a middle ground between exhaustive medical accuracy and careless inaccuracy, and it lives in proportionalityālet the condition be as present in the story as it would be in the person's life, and make sure that presence is honest.
And finally: if you get something wrong and someone tells you, listen. The response to being corrected is not defensiveness, and it's not excessive self-flagellationāit's just adjustment. You update your understanding, you revise if revision is possible, and you carry the knowledge forward. Nobody gets this perfectly right on the first attempt. The goal is to get it righter over time.
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10. A Specific Note on Stigmatised Conditions
Some conditions carry stigma that functions differently from the general ableism disabled people navigateāa specific, targeted social weight that shapes not just how other people treat them, but how they relate to themselves, what they're able to say out loud, what kind of sympathy they're permitted to receive.
Mental health conditions are the obvious example. Characters with depression, bipolar disorder, borderline personality disorder, schizophrenia, OCD, eating disordersāthese characters exist in a landscape where their condition is routinely misrepresented in media, used as shorthand for danger or unreliability, and often treated as a moral failing rather than a medical reality. Writing these characters well requires knowing what the stigmatising representations look like, so you can avoid replicating them: the violently unpredictable character whose mental illness explains their actions, the character whose breakdown is spectacle, the character who is healed by love and stopped needing treatment, the character whose eating disorder is a background detail added for drama without any understanding of what that experience actually involves.
Addiction is similar. Characters in recovery, or actively struggling with substance use, are frequently written through the lens of either condemnation or redemptionāthe addict as moral failure who earns back their humanity, or the addict as tragic figure whose whole story is about the addiction. The actual experience of addiction and recovery is far more complicated, far less linear, and far more human than either of these frameworks allows. A character can be in recovery and have a full life that isn't primarily about their recovery. A character can be struggling with addiction and still be someone worthy of care and complex storytelling.
Conditions that are frequently disbelievedāfibromyalgia, ME/CFS, long COVID, functional neurological disorder, many othersācarry a particular kind of stigma that comes from medical gaslighting. The experience of being told that your symptoms aren't real, or aren't as bad as you say, or are caused by anxiety or laziness or attention-seeking, shapes the way people with these conditions talk about themselves and relate to care. Writing a character with one of these conditions means writing the way it feels to be disbelievedāthe internalised doubt, the exhausting vigilance, the specific anger of having to prove something that is happening inside your own body. It also means not writing their condition in a way that implies the doubters had a point.
Stigmatised conditions also affect how characters are received within the story's worldāincluding by other characters who are themselves disabled. The disability community contains its own hierarchies, its own arguments about who counts, its own moments of internal stigma. This is real and worth being honest about. A character with an invisible condition who is told they don't look disabled by someone who uses a wheelchair is encountering something that actually happens. A character with a psychiatric disability who is treated differently from a character with a physical one is navigating something real. You don't have to iron this out into a smooth, unified communityābut you should write it with care.
The through-line across all stigmatised conditions is this: the stigma is not the character's fault, and the narrative shouldn't treat it as their burden to resolve. A character doesn't have to overcome their diagnosis to deserve dignity. They don't have to explain themselves sufficiently to earn sympathy. They don't have to be exceptional in order to matter. The story should know this, even when other characters in it don't.
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A Final Note
None of this is meant to be a checklist. Lists of rules make for better-researched fiction sometimes, but they don't make for better storytelling. The goal isn't to avoid every possible mistakeāit's to actually care about the person you're writing. To be curious about what their life feels like from the inside. To let that curiosity lead you somewhere honest.
Disabled people are not cautionary tales, or inspirations, or tragedies waiting to be resolved. We are peopleācomplicated, contradictory, funny and frustrating and tender and difficult, living in bodies that require a particular kind of navigation, in a world that mostly wasn't designed with us in mind. We deserve fiction that knows this. Fiction that starts from the inside and works outward. Fiction that lets us exist fully, without having to justify that existence or resolve it into something more comfortable. Write us like that. It's not as hard as it seems. It just requires paying attention.
A Book of Creatures by @a-book-of-creatures doesn't update these days but is another thing along these lines, really huge, fully illustrated all by the author and cites all sources
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I used the Mariah Pattie method for bodice drafting and you were right, itās amazing! I did a paper mockup (3 adjustments) and a fabric one (no bones, two adjustments) and I already feel like Iāve learned so much about how stays work! Iām excited to hear your opinions on boning (these stays are back lacing, if that matters). And I did check out the sewing machine from my library!
That's amazing! I'm so glad it worked for you as well, the circular method really helped me so much to fit bodices properly.
My opinions on boning are, in short, these:
Different kinds of boning
Plastic sew in boning, flat steel boning, spiral steel and german plastic "whalebone" all have their place. It's a trade off whether you want stiffness, washability, flexibility, lightness. I frequently use combinations of flat steel for center front and center back and then spiral steel or plastic whalebone for the rest.
Boning placement
Boning is to hold the fabric in place, the shape of the fabric is to hold the you in place. The trick is to place the boning in a way that relieves the tension of the garment, bones shouldn't be digging in.
Boning placement has to be adjusted for your body. For example, I take out any boning that is on the side backs because my ribs stick out. I'm a fan of halfboned stays, but that's just what works on my body for the desired silhouette.
The most important bones are the one next to the lacing holes, or else lacing it will wrinkle everything
Vertical bones at the center front if you want to flatten or push up your chest, fanned out boning if you want to cone and smooth
Any bones around the arm hole should stop an inch under the armhole to avoid stabbing yourself in the armpit
If you're having issues of gaping or undesired shelf bust, consider some horizontal bones at the neckline
(adding a link to my binding stays here which illustrate a lot of my ideas about boning stays and the importance of boning placement)
I'm very happy to illustrate or explain any of these further, but for now the word boning has ceased to have meaning and i'm just feeling like this:
It's always hard reading about the violence committed to steal America, but the buffalo is always like... That's some inhuman shit. Everyone is burning in hell for that one. Wdym there were thirty to sixty MILLION buffalo in 1800, and by 1900 there were only 300 left. THREE HUNDRED. Do you know, can you fathom the amount of purposeful cruelty required to kill NINETY NINE PERCENT of a population of an animal, just to spite and murder the living Native people who existed and thrived with them? All this, for White Power and Entitlement?? Sickening.
all yall make jokes about couples and their nonromantic third wheel having fun together, but im the one getting treated to food tonight by the couple im nonromantically third wheeling. you wish you were me
I'm sorry I read this as "necromantic third wheel" and went on a very rapid powerful imagination adventure. hello lovebirds I'm the skeleton here for breadsticks
Something like this would be so colossally helpful. I'm sick and tired of trying to research specific clothing from any given culture and being met with either racist stereotypical costumes worn by yt people or ai generated garbage nonsense, and trying to be hyper specific with searches yields fuck all. Like I generally just cannot trust the legitimacy of most search results at this point. It's extremely frustrating. If there are good resources for this then they're buried deep under all the other bullshit, and idk where to start looking.
another addition as far as physical media goes there is the encyclopedia of national dress (that i still need to buy myself bc this kind of thing is super important to my sort of fantasy designing) but yes i do agree i wish there was EVEN MORE documentation on this
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Do you think tumblr will ever learn the difference betweenĀ āIām defending this person because I agree with them wholeheartedly and I am also like this personā andĀ āIām defending this person because your behavior is dangerous and you need to stopā
IMO, blurring the lines betweenĀ āIām defending them because theyāre rightā andĀ āIām defending them because youāre taking this too farā is step numero uno to cutting down the very existence of fair trial and democracyāeven in places where saying that might seem a little dramatic.Ā
Mob mentality is extremely strong in humans and itās also extremely dangerous. Mobs donāt think things through. Mobs kill and they destroy and they canāt be reasoned with. Someone trying to calm a mob down isnāt someone defending the ~problematic party~ Itās time we re-learn that.
Researchers focused on whether kids that are spanked are more likely to share or, conversely, more likely to have anxiety, years down the li
2021:
Spanking found to impact children's brain response, leading to lasting consequences.
2018:
The American Academy of Pediatrics says new evidence and research not only show that spanking affects a childās brain development and increa
2016:
Kids who are spanked tend to act out more and have more problems later on.
2012:
A study reviewed more than two decades of research on the effects of spanking and found nothing positive to report, only that physical punis
2010:
A multiyear study shows spanking kids makes them more aggressive later on
I havenāt pissed people off lately by reminding them that ALL types of physical punishment of kids has been proven beyond ANY reasonable doubt to have only negative long term outcomes.
So let me scream it from the hilltops:
Stop hitting kids. End of sentence.
If you think, ābut I was hit and I turned out just fineā let me pre-reply: NO YOU DID NOT. You think hitting a child is ok, how the fuck does that qualify as āfineā?????? From one abuse survivor to another: please start healing yourself.
The World Health Organization report I highly recommend because there are so many conclusions that are shocking and yet completely obvious.
For example, being exposed to corporal punishment as a kid makes it more likely for a person to commit domestic violence against a partner. In places where corporal punishment is normal, people are more likely to think that rape and intimate partner violence are normal. Kids who are spanked are more likely to be violent with and to bully other kids.
Spanking is literally teaching a kid that violence is okay and normal and it affects the whole society.
It also talks about how corporal punishment affects the brain in its development. It changes the structure of the brain and slows the development of mental abilities. Kids who get spanked have much stronger hormonal responses to stress.
The master's thesis I edited in 2009 was a pilot study about corporal punishment and eating disorders, and turned up a correlation.
(For those currently saying "correlation doesn't equal causation," you're correct! The point of this study was to determine if there were higher rates of disordered eating in adults who'd experienced corporal punishment as kids. If the answer was no, then there's probably no statistical relationship. If the answer was yes--as it was--the research would then move on to "so is there causation here, or are there other factors?")
I don't bring this up because of the study itself. It was a small pilot study, I haven't seen any follow-up research, and the original isn't available online.
No, I bring this up because the author cited many other studies on the adverse effects of spanking to demonstrate why she thought the study was necessary in the first place.
THOSE STUDIES WENT BACK TO 1939.
ONE OF THEM WAS AN AGGREGATE METADATA STUDY.
If you're not familiar, that basically means its authors were studying studies. They took every single study on spanking they could find within a 70-year span and studied them all to see what patterns emerged. What they found was horrifying:
Every single study in that period, from the most rigorous right on down to "you can tell the authors wanted a spanking-is-good result," showed negative results from spanking. These were as diverse as increased risk of sexual abuse to depression to increased risk of substance abuse to poorer educational outcomes to greater likelihood of committing violent crimes as adults.
But that's not the horrifying part. If you're wondering how that could possibly not be the horrifying part, well...
NOT ONE STUDY SHOWED A POSITIVE TRADEOFF FOR THESE RISKS. NOT. ONE.
There was no "sports can cause injuries but can also improve self-esteem, personal fitness, and teach important disciplinary skills." There wasn't even a "homework has marginal benefits at most."
THERE WAS NOTHING. Multiple studies noted that while corporal punishment could produce the immediate appearance of improved behavior, what was actually happening is the kids were getting better at lying and hiding their undesirable behavior, and they were actually more likely to enter the juvenile detention system. The results were so overwhelmingly negative that even the biased studies deliberately designed to produce "it's good actually" results could not deliver those results.
In other words: in thousands of studies across ALMOST A CENTURY, we have never found a good reason to use corporal punishment. We haven't even found a mediocre one.
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