one of the things that makes autism a disability (and why some of us choose to label it as such rather than an “alternate neurotype”) is the stress.
part of autism is just being incredibly stressed. overstimulation? stress. holding a conversation? stress. something happening to our schedule? stress. people talk about how often autism is recognized and diagnosed via our stress responses (like meltdowns) because it is just so common to see autistic people stressed because of lack of accommodations to how our brains work.
and this matters because stress kills. stress causes a lot of health issues, or it can trigger pre-existing ones by making certain chronic conditions flare up. i once had a psychiatrist very unhelpfully tell me i “just need to manage my stress” when the stress i was describing was things i could not avoid in neurotypical society and can’t “just get over”. i can do “self care” all i like but i cannot at the very base level change the way my brain inputs information and reacts accordingly.
i only learned this year that loud noises aren’t physically painful for other people. i have lived 34 years in a world in which my friends and family regularly physically hurt me at random just by shouting, and i thought everyone else just thought i was kind of a wimp for not dealing with the pain as well as they did.
like. loud noises physically hurt. it’s like a static shock from my ears to my spine that doesn’t stop until the volume goes back down. i thought we all agreed that ‘that’s too loud!’ and covering our ears meant ‘ouch!’. turns out i’ve been dealing with a stressor almost no one else has, my whole life, alone.
autistic people have to keep functioning through debilitating levels of stress that no one else in their life acknowledges or helps them with. it’s no wonder that their most visible ‘tells’ are breakdowns.
