Hi, my nameâs Lewis, Iâve spent the last few years battling mu⌠Lewis Terry needs your support for Starting 2026 Debt-Free: A Fresh Chap
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@blueparzival
Hi, my nameâs Lewis, Iâve spent the last few years battling mu⌠Lewis Terry needs your support for Starting 2026 Debt-Free: A Fresh Chap

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iâve seen some people (both on here and ig) minimizing ME/CFS like itâs no big deal (like how fibromyalgia was and still is treated) and if you think that, sincerely fuck off. and to do that during ME/CFS awareness month? cruel. after a man with very severe ME/CFS DIED? horrid.
ME/CFS is an extremely debilitating systemic disease with lethal potential. pwME have an extremely low quality of life and no approved treatments. the majority of people never recover.
take it seriously. this isnât the âiâm tiredâ disease.
My Disability Studies professor said something that I think was very good and explains a lot about professional attitudes toward people with disabilities. This is what she said:
âWe [people with disabilities] are the last thing on the HR discrimination list. Companies always list things like, âwe eliminate discrimination on the basis of gender, race, religion, nationality, identity⌠oh, and disability.â Itâs just tacked on at the end. The others are mostly about being nice, respectful, and treating people equally. Not discriminating against people with disabilities is more complicated. You need to change your environment, code, the way you design things. You actually need to make changes, and most companies do not want to do that.â
I thought this was a really good insight. Weâre often thought about last, if weâre thought about at all. Accommodating us takes effort and a lot of people just donât want to make the effort.
What's worse is about 90% of people couldn't give a flying fuck about your suffering, and will just leave you to rot
What's worse is about 90% of people couldn't give a flying fuck about your suffering, and will just leave you to rot

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abled people need to get comfortable with disabled people not having the energy to "dress up"
the amount of backhanded comments I'd heard from my irl friends about how they really like the times where I wear things other than sweatpants and hoodies and I should really work on creating my own style is insane
there are some days where I have enough energy to wear the things I want to wear, but those are rare. they need to get used to that.
gaining weight is good and being fat is good and nourishing your body is good and resting is good. fat bodies and disabled bodies and queer bodies and all marginalized bodies are good and deserve to be celebrated. your body does not have to be relegated to the sphere of neutrality or tolerance or acceptance. the world is *better* because your body is in it. the world is better because you are in it.
Guy with undiagnosed chronic illness: damn I feel like shit and donât know why
Doctor diagnosing fibromyalgia: yooo dude you got the âyou feel like shit and no one knows whyâ disorder

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If you tell neurodivergent people they need to "get comfortable with being uncomfortable" I am putting gravel in your shoes. No you can't take the gravel out. You have to deal with it. Dealing with it makes you a better person. What do you mean "pointless suffering".
When it comes to chronic illnesses, mental illnesses, and disabilities, I've noticed that a lot of able-bodied people either don't take names seriously, or don't understand and ask you to explain what it is to them.
Now, if you have any kind of disability, you know it's fucking annoying go have people make you explain something over and over again, or have people go "oh, you have X? You mean, like the [awful stereotype] thing?"
So, I have realized recently that being Vague As Shit is great for making people leave you the hell alone.
I have autism and anxiety, and with that comes the symptom of selective mutism. If you don't know what that is, Firefox is free. But I had an episode where I couldn't speak today in one of my classes, and knew I would have to explain it to my partner and probably my professor.
This usually goes with me writing that I can't speak, them asking why, me saying selective mutism, and them asking me what that is. Then I have to painstakingly write out an explanation. And, obviously, I'm tired of this. So I tried something new. When he asked, I simply told him I couldn't speak, and when he asked if I physically couldn't or just didn't want to, I just opened my mouth and unleashed the terrifying, awful, broken stuttering that comes out when I try to speak while mute.
His response was "OKAY OKAY OKAY YOU CAN STOP NOW" and he did not question me for the rest of class, and even explained to the professor what was wrong when she tried to make me popcorn read.
This also works on doctors. When I tell doctors I have PCOS, POTS, or hEDS, they usually hear "oh the crazy women self diagnosis disabilities" and treat me accordingly. So, instead I drop unhinged symptoms until they leave me alone.
"Yes, my last menstrual cycle started on December 12th, 2025 and ended January 28th, 2026." "I have experienced several events where I have passed out randomly, yes." "My hip has subluxated six times in the past week."
It's like in the principles of writing horror. If you name and describe the problem, it's easier for people to minimize and ignore. Don't let them. You live with this fucking bullshit every day. Let your symptoms haunt people. They don't need to know everything about you. Besides, it makes them treat you better than when you give them names.
Chronic illness sucks because youâll catch yourself thinking shit like âI wish it was possible to bathe regularlyâ or âthey should invent a digestive system that doesnât hurtâ and then realise⌠thatâs actually the case for most people. Thatâs the norm. Not only do most people have that, they donât even think about it
"do it scared" "do it alone" "do it bored" what about MY strategy. do it later
My dad sent me thisâŚ
Iâm not crying⌠no. Yeah. I am crying.

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