my dream is to make a statement so true and verifiable that no one could misinterpret it even fi they were trying.
... Instead of end world hunger? What's wrong with you?

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@aroundmeblackbats
my dream is to make a statement so true and verifiable that no one could misinterpret it even fi they were trying.
... Instead of end world hunger? What's wrong with you?

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so I was doing appeasement behaviors at the new PT and I was saying that my old PT told me not to do anything that hurt more than a five and that's baby bullshit but I did skip my PT exercises two days last week because I started doing them and they hurt more than a six so I didn't make myself do them.
and he didn't yell at me. he said that a five or a six was a good stopping point and if exercise was ever making the pain worse, I should stop doing it.
and I was doing appeasement behaviors about how when you're a kid in PT they don't say that to you, they tell you to push through it. and he was kind. and.
it wasn't my PT who said that when I was a kid. I remember my elementary school PT. she was calm and kind and sensible and she talked to me like I was a person. I took the school bus with her daughter when I went to private school.
she didn't do that.
that was my parents. whenever I told them that something they were forcing me to do was painful, they said good! it's good for you!
I told my dad that I couldn't get up after the yoga class they made me take, that I had to lie on the floor while the beginner ballet class filtered in and croakily promise I'd leave in a minute because I couldn't move yet.
good! my dad said. that's what exercise is supposed to feel like!
(I don't think he routinely exercises until he cannot physically stand up. he thought I was being hyperbolic)
when I was in fifth grade, which is one of the years I saw the sensible, kind PT, I had lyme disease. my gym teacher, another sensible, kind woman took me aside when I was cleared to go to gym again and told me to sit out as many activities as I wanted and listen to my body because lyme disease is really hard on your joints and I had to be careful.
and like an idiot, like a child, like someone who trusted adults wanted the best for me, I told my parents she had said this. my mom respected this gym teacher. she'd been the one who realized the girl in my brother's grade was having the pediatric stroke and saved her life.
my dad scolded me like I had done something wrong. I hadn't sat out any activities. I'd just considered that I could. I was just telling him someone told me I should.
"don't you use your lyme disease as a crutch! I don't want you to sit out a single activity." lazy again, spoiled, trying to get away with it.
I guess the very smart gym teacher only knew anything when she was talking about other people's kids!
crying in the shower, crying over something that happened twenty-three years ago. crying because I was surrounded by kind adults who did their best and I was doing PT exercises and I know I wasn't self-reporting my pain because I watched myself, a thirty-four year old adult, lie to a physical therapist who had just explicitly told me to tell him if something hurt.
he just told me! and he said "does that hurt?" and it did and I knew what he wanted me to say because we had just discussed this.
and I said "I can't really answer that question" because if I told him how much it hurt, he might tell me to sit down and then I'd be sitting down in PT, which Isn't Allowed.
it wasn't totally conscious. I wasn't having this whole thought. but I knew it hurt and I was scared to tell him it hurt because he might tell me to stop exercising and that would be Bad somehow.
and if I'm doing that now in my thirties, what was happening when I was nine and ten and eleven and I lived in their house and didn't know I had cerebral palsy?
and I feel like I owe that elementary school PT an apology for making her look bad when I was trying to explain myself to my adult PT. that's not fair.
but I think she would forgive me, actually, if she knew. I remember her being kind.
(Smugly after failing at a task) and they said it could be done.
the weirdest thing about my wizard tattoo is that unlike the other tattoo i have, it's really reactive to my lupus
like the first signs of a flare up from stress/over exertion used to be red face + fever + rash on my hands
but the lines of my tattoo will become raised and then a little itchy before it progresses to that point
and im discovering that, yeah, if i just listen to the wizard and rest/recuperate/stop pushing myself when it starts acting weird, i can sometimes avoid triggering the other symptoms
early warning system wizard who lives on my shoulder reminding me to take care of myself

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getting up from bed tips
getting up from bed cheats
getting up from bed codes
getting up from bed ending explained
crazy how there are only 2 hours of doing things every day before you keel over and die. if this werent normal id be worried
image: lazily-drawn gold star saying "I DIDNT SURVIVE IT ACTUALLY I DIED LIKE FOR REAL BUT IM BACK NOW SO ITS FINE". end ID.
got home from a weekend with my parents yesterday. 3.5 days and I got home overstimulated, reactive, and hungry.
it's a miracle I survived to eighteen and not just because of the medical neglect.
at least they are not present in the oubliette. at least I can buy my own groceries.
and the thing about reparenting yourself is that you have to do it consistently. if you want your body to tell you when you're hungry or in pain, you have to respond when it does.
you have to eat even though they think you eat too much. you have to rest even though they think you rest too much. every time.
sometimes I get frustrated because it feels like I have a lot of needs.
I get hungry several times a day, sometimes only an hour or two after the last time I eat. probably that's normal.
I'm in pain a lot of the time. more often than not. maybe always. I'm very reactive. I get overstimulated and tired very easily and it takes me longer than I want to regulate/re-charge.
I used to not notice/respond to a lot of the things they say/do and now it hurts my feelings every time. probably that's normal, too.
when Zoe first met them, my dad drove us twenty minutes back from the train station and she counted how many times he called me stupid, spoiled, or selfish. he wasn't mad at me, either. he was being affectionate.
I'd registered one or two mean comments but I didn't care and I was surprised by the number just because it seemed like a lot to get through in twenty minutes.
they haven't gotten nicer, although they keep telling me they're "walking on eggshells" now.
"we're trying so hard not to upset you" are you?
anyway. the thing is, I can see why you would train your child not to notice pain or hunger or sensory overload or cruelty. like, as an adult I'm always doing things like objecting to their comments or asking for a snack or saying no.
or telling the truth when my dad asks how my back feels today. he wants me to say "better today!" after two days of PT exercises and one appointment. that's not true, though, so I said "about the same" and he said "maybe a little better?" and I said "it's about the same most days."
it wouldn't offend me that he desperately wants to hear that I'm feeling better if he didn't get what he wanted when I was a kid by teaching me not to notice I was suffering.
and I did notice I was suffering! but in an iceberg way.
anyway. I am committed to responding to my needs when I notice them. as often as possible. treating myself the way I want her to have been treated. consistently. even when it gets me looks or comments or it's tiring.
because the alternative is mean. and also going to kill me. but mostly, it's mean. I wouldn't treat someone I loved that way.
so. here we are.

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aww so cutes
There’s always some mother fucker who is like, what do you mean you partially dislocated your neck and didn’t realize? There’s no way you wouldn’t know something as serious as that .
And I see where you’re coming from, I really do. Unfortunately, my previous doctor told me the exact same thing until I got my functional MRI results back and she almost had a heart attack.
What did the fMRI show?
That my cervical vertebrae subluxate with certain over extended movements courtesy of my hEDS and the chiropractic injury I suffered in 2018, causing significant nerve impingement.
Which was something I kept asking about for years following the injury, but got told over and over again would be impossible because I’d know if I was in that much pain. I’d be screaming all the time.
Anyway, shout out to my current medical team ✌️ I actually have something approaching quality of life these days.
Except when my neck subluxates in my sleep. Then I’n fucked.
this is literally wild sage by the mountain goats
good job making all of those lists!
now, if you can scoop the cat's litter and take your trash out, you can have a Habitica treat.
it's okay that your dad offered to do those things and you said no. that wasn't 'wasting energy.' you were dysregulated from spending four days in his house. you wanted him to leave.
I do think you can physically deal with this set of chores. if you need to modify the activity, that's fine!
and then you can hatch the egg you just got in Habitica. (I got a bear egg, finally. those are the only ones I currently need.)

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fun-shaped options
reading Sleeping Giants.
PDFs organized neatly while listening to a podcast.
alpaca game while listening to a podcast.
2025 while listening to a Youtube video.
mix and match
fun podcasts
friends at the table relisten
critical hit
dimension 20 (spiritually a podcast)
a hot dog is a sandwich.
big mood little mood
alice isn't dead
free space: do whatever you want forever.
youtubes
friends at the table playing 2025
mythical kitchen in general
the second half of Noah Kahan's last meals specifically
film history crash course.
binging with babish.
creativity-shaped options
you can work on Fast Heart. you can. but you know that. so this post is about your other options, in case you need a reminder
things that might be fun
your Dungeon World solo game
do you want to work on Valiant Strike?
do you want to look at Better Sisters and see what the outline looks like if the documentary crew is in play?
do you want to outline Triggering Interactions?
do you want to find a tabletop system (Beam Saber? Scum and Vilany? Girl By Moonlight?) that lets you approach Naomi and her friends and play in their space
do you want to start the support group story?
free space: do whatever you want forever.
writing-adjacent fun
research for the scheme in Fast Heart
your new spreadsheet but only if it doesn't turn into a mind prison.
reading Sleeping Giants.
tabletop with other people
you have more homework you could do for your Heart game. candles. (redacted). geese.
you want to start a new Fiasco playset
you still want to set up Eldritch and Sensible
brainstorming for your pbta project (this loops back around into the first category and that's fine)
PDFs organized neatly (this loops back around to the second category and that's fine).