#severemeday

August 8 = #SevereMEday #severeME #SevereMEday #SevereMEday2021 #SevereCFS #SevereMECFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME #MyE #MEeps

While not everyone who has Severe ME would fit the description in the image (there are different severities within this subgroup), many tragically would 😢

I have a Pinterest board with 564 pins on severe ME/CFS here https://www.pinterest.ie/tomkindlon/mecfs-severe-mecfs-mecfs-myalgic-encephalomyelitis/ that could be shared around. It mainly contains images but also links to videos and articles. You don't need to be on Pinterest.

Happy Severe Myalgic Encephalomyelitis Awareness Day! I made my first yt video, I'd love if you checked it out 💖 https://youtu.be/gjibo_5NmtI Headdress: Baby, the Stars Shine Bright Blouse: vintage ... .. . #cripplepunk #DisabledAndCute #cfs #cfsme #severemeday #chonicfatiguesyndrome #myalgicencephalomyelitis #severemyalgicencephalomyelitis https://www.instagram.com/p/ChALhZeLJG3/?igshid=NGJjMDIxMWI=

Severe ME Day If you have a friend or family member who has ME I need you to read this post, I then want you to get in touch with them. I appreciate that in many cases months or years may have passed, or that you have lots going on personally, please let's make today the day they got their friends and family back. Every single week I speak to lonely ME sufferers who are dealing with something life changing alone, it shouldn't be this way. Nobody in the world wants to see their friend or family member going through something so difficult, it's heartbreaking I understand that and sometimes it is just easier to think they are ok or that they would get in touch if they really wanted to. Unfortunately it just isn't that easy for us, many of us have a real tough time speaking and yes lots of you will think that I am exaggerating but not being able to string a sentence together is very embarrassing. I have very few actual conversations for this reason, if I need to get in touch with someone I email or text. Please have a read of my post as it might just help you understand from their position, I have also put links to a few charities or you can get in touch with me. Severe ME day, for me its the start of a new life I was diagnosed with ME in 2012 which means that I have spent almost 10 years stuck inside the four white walls of my bedroom, I don't want that anymore. I am a very different person to the person I was back then and I have learnt to accept that now but that has been extremely hard. I have let so many relationships just slip away from me so today I have tagged my friends and family members on social media as well as sharing it in a family group chat. I am so embarrassed of how long it has taken me to ask for help & support from my closest friends and family members. I want my life back and I know that it isn't going to be easy but I have to try before this illness gets any worse. https://alishawhittam.com/severe-me-day/ #me #severeme #myalgicencephalomyelitis #myalgicencephalomyelitisawareness #severemeday https://www.instagram.com/p/Cg_zZqrMaBT/?igshid=NGJjMDIxMWI=

Today is severe ME day. 25% of sufferers will be classed as severe at some point. I'm thinking about my fellow sufferers today, especially those who are bedbound and cut off from the world. #severemeday #meawareness #august8th #bedbound