#severemecfs

Bio Lizzy H @hopefullizzy

Sympathetic BBC article on severe ME:

'I'm too tired to chew food but still can't get care for my ME'

Some extracts:

—

‪“Maeve Boothby-O'Neill's final days were harrowing. The 27-year-old was confined to bed all day, unable to chew food and no longer able to sit up - she was severely ill with myalgic encephalomyelitis, or ME, and as a consequence severely malnourished”‬

— “People with severe ME can be in constant pain, have hypersensitivity to touch and light, feel extremely weak and sometimes have difficulty speaking or swallowing. There are many different symptoms which cause significant disruption to everyday life”

—

“During the inquest into Maeve's death, the coroner Deborah Archer said it became clear to her that there were no specialist hospital or hospices, beds, wards or other health care provision in England for patients with severe ME”

—

[Person with ME] “‘says many people are stuck in the past, believing that the condition is purely psychological.

August 8, is Severe ME Day.