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A Life Hidden: The Burden of Chronic Illness That I Rarely Talk About
Being ill is hard. What an obvious thing to say – and yet how often it goes unspoken. I’ve written about many aspects of life with long-te
Screenshot from latest Science for ME weekly update
Anya is live and ready to show you everything. Watch her strip, dance, and perform exclusive shows just for you. Interact in real-time and make your fantasies come true.
Free to watch • No registration required • HD streaming
“This exhaustion is cellular”: Excerpts from the new book ‘What Is Myalgic Encephalomyelitis Like?’
Essays focusing on Severe Myalgic Encephalomyelitis (ME), from a new book by an international group of writers documenting their ME experien
Severe ME Awareness Day
“I want to warn those who are working but barely getting by: do not ignore your symptoms, because you risk losing several levels of function. I pushed and ignored my symptoms to the point where I had nothing left. Pacing is so important”
From Recap: Support Group: Navigating Work Loss and Financial Stress
World ME Alliance: one-page explainer on their Medical Education Hub
A global collaboration of 27 organisations across 21 countries. ME/CFS Medical Education Hub https://worldmealliance.org/medical-education-
Link to Medical Education Hub:
Full Guidelines Continuing Professional Development Severe ME Quick reference summaries Medicines Español Français Deutsch Italian Nederland
Description from Action for ME posted in May:
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This #WorldMEDay, help improve awareness by sharing your story of why medical education matters using the hashtag #EducateME and ask healthcare professionals to read the explainer on how the Medical Education Hub can help.
The Hub contains trusted, evidence-based resources to help healthcare professionals supporting people with ME.
ME is a chronic, debilitating condition that affects at last 67 million people worldwide, but the lack of training and education among clinicians can cause delayed diagnoses, harmful or inappropriate treatments, and repeated experiences of stigma and disbelief.
Read and share their one-page explainer:
A global collaboration of 27 organisations across 21 countries. ME/CFS Medical Education Hub https://worldmealliance.org/medical-education-
Anya is live and ready to show you everything. Watch her strip, dance, and perform exclusive shows just for you. Interact in real-time and make your fantasies come true.
Free to watch • No registration required • HD streaming
While views aren’t the only metric to assess the value of social media output, sometimes it’s useful to reach a significant number of people.
So I’m pleased that the extra time/energy I have been putting into my FB page is yielding results.
I have just watched this and thought it was good.
Emerge Australia:
Recognising #PEM early in your patients is critical for safe and ME/CFS informed care.
PEM can be hidden - patients may appear well during appointments but experience significant deterioration afterwards.
You can learn more about PEM and pacing - https://zurl.co/nnY1W
New: "UK Long COVID and ME Doctors and Clinics"
