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August 8 = #SevereMEday #severeME #SevereMEday #SevereMEday2021 #SevereCFS #SevereMECFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME #MyE #MEeps
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I learned that today is severe M.E. day so I decided I wanted to dedicate the two marker sketch I was supposed to do to it. But of course, M.E. hit me pretty hard today so I'm not done...
August 8, is Severe ME Day.
While not everyone who has Severe ME would fit the description in the image (there are different severities within this subgroup), many tragically would 😢
https://twitter.com/theslowlane_me/status/1306310403845218307?s=11
I've 2 couches that I spend most of the day lying on (except when the weather is warmer when I also lie outside). The second one is our old garage, which was converted into a room for me. Before this, I used the spend a lot of time lying on top of my bed during the day. I noticed it did help me, sleep hygiene-wise, when I stopped lying on my bed during the day and instead was able to avoid doing this because of my second couch. I'm know I'm lucky to have that option. I found it here: https://www.pinterest.ie/pin/127789708164434006/
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From: http://chronicallyhopeful.com
On #SevereMEday (August 8), I remember my friend Ruth Nolan from Glasnevin in Dublin (Ireland) who has spent around 25 years bedbound with ME since falling ill as a teenager. She had been advised to exercise which appears to have contributed to the severity of her illness.
For a number of years, she worked as a volunteer from her bed with the Irish ME/CFS Association providing valuable work and insight. Unfortunately then in around 2008 she needed dental work done and setbacks from it and follow-up treatment meant her life was reduced to a terrible existence only able for brief conversations with her family. I have only received a few text messages from her since. Her life is really hard.
My thoughts are with her and her family and all those with severe ME and very severe ME and their loved ones today, as well as those who unfortunately passed away due to the illness or complications relating to it.
