#rsdsucks

Just edited this with the help of @picsart in a @taylorswift "Lover" theme. I'm no pro but it was fun. @taylornation 🎉🦋🌈🎼 I had my ablation done today on my right lower back. We got there and had to wait an hour because the surgeon was called into surgery. So while we waited, the only thing that got me through waiting that long in pain was listening to @taylorswift 's album "Lover". Everything else went as planned. They stuck me like 8 time and gave me an injection of Toradol for the soreness. I'm not looking forward to the ups and downs of pain for the next few weeks. #Ablation #ReflexSympatheticDystrophy #CRPS #burningforacure #RSDsucks #PicsArt #LoverMusicVideo #Lover #LoverReleaseDay #LoverOutNow #TS7 #TaylorSwift #TayLurking #HelpAshleyMeetTaylor #GetAshleyToTaylor #MakeAshleysWildestDreamsComeTrue #ME #StreamME #YouNeedToCalmDown #YNTCDOutNow #TheArcher (at Belleville, Illinois) https://www.instagram.com/p/B1hgZGnHX5J/?igshid=17nv3zfu31ivl

With the start of the "Lover" era and the album release coming soon, I wanted to share this again. My dream is to meet my idol @taylorswift . I have a chronic pain disease called Reflex Sympathetic Dystrophy so I live in excruciating pain everyday. I had to give up nursing school because of this disease. I also have Rheumatoid Arthritis and Trigeminal Neuralgia. I have a pain pump and a neurostimulator along with a lot of other medications. My story is in the first picture. Taylor and her music gets me through the daily flares. I don’t have much to look forward to but meeting Taylor would help me so much. Please tag Taylor and Taylor Nation and share this, thank you!! Please help me get this to Taylor! Thank you so much! 💜🦋🌈@taylornation #HelpAshleyMeetTaylor #GetAshleyToTaylor #Lover #TheArcher #YouNeedToCalmDown #YNTCDOutNow #StreamME #MEOutNow #TS7 #TaylorSwift #TayLurking #RepTourStLouis #ReflexSympatheticDystrophy #CRPS #burningforacure #RSDsucks (at Belleville, Illinois) https://www.instagram.com/p/B0xKtFsnjIz/?igshid=18k1zoqg1o882

My dream is to meet my idol @taylorswift . I have a chronic pain disease called Reflex Sympathetic Dystrophy so I live in excruciating pain everyday. I had to give up nursing school because of this disease. I also have Rheumatoid Arthritis and Trigeminal Neuralgia. I have a pain pump and a neurostimulator along with a lot of other medications. My story is in the first picture. Taylor and her music gets me through the daily flares. I don’t have much to look forward to but meeting Taylor would help me so much. Please tag Taylor and Taylor Nation and share this, thank you!! Please help me get this to Taylor! @taylornation #HelpAshleyMeetTaylor #TS7 #TaylorSwift #TayLurking #RepTourStLouis #ReflexSympatheticDystrophy #CRPS #burningforacure #RSDsucks (at Belleville, Illinois) https://www.instagram.com/p/BwcwB98H1Zk/?utm_source=ig_tumblr_share&igshid=1cuowuip39cjd

Unless you're taking about the fear of God or fear of something thst will cause you intense pain, then it should be taken in small doses, so to speak. People do extremely stupid things when afraid. They don't act like themselves. This ie why we had/have so much shortages during the pandemic. Anyways, I won't go on.. i will say I wish you a managed pain Day!!!💪💪💪💪 #rsd #rsdsucks #rsdhope #rsdflares #crpswillnotwin #crpssuffering #crpssucks #hope #survior #fighter #warriors #rsdwarrior #crpsfacts #crpssurvivor #emotionalsupport #mentalhealth https://www.instagram.com/p/CTerCpnrcT7/?utm_medium=tumblr

That burning pain I was referring to is unlike anything you've felt before. It feels as though your flesh is literally on fire with no fucking actual physical symptoms other than increased HR and reparations, if that. You could be there rolling around in agongy while the person next to you looks as if you are just nuts, maybe it's drugs... Whatever bullshit fills up the average mind of a human being who can't understand what is going on. It gets even better... Your could loose your doctor at any given moment and thanks to the CDC, they've made it impossible to get the actual medical care you need. ... Everything I said are just words lumped to together unless you've experienced this.  I don't mean some of it, I mean all of it.. Think about it : your life completely stopped. Whoever you were is gone. Whoever you're trying to be : no one fucking believes you half the time or thinks you're exaggerating... Then day in and day out, wake up. - - > SUFFER - - >REPEAT! I'M SICK OF THIS! #rsdsucks #crpssucks #rsd #crps #rsdkills #crpshope.net #crpsstrong #reflexsympateticdystrophy #crpssuffering #crpswarrior #chronicpain #chronicexhaustion #fatigue #hypersensitivity #anxiety #ptsd #ptss #onehand #livingwithonehand #rsdhope #frustrated #burningpain #sharppain #rsdsawareness #crpsawareness #crpssucks #livingwithonehand #anxiety #ptsd #ptss https://www.instagram.com/p/CSaeuESswiw/?utm_medium=tumblr

I’m in so much pain right now. My back is killing me right where they took my old neurostimulator out and scar tissue formed. I never had pain like this. And my jaw and chin are hurting particularly bad tonight/morning. Thank the good Lord for @taylorswift ! I have “Lover” on repeat. Anyway, trying to make it until my next pain pump bolus at 1:54 am. Prayers would be appreciated! Please and thank you! @taylornation @tree-paine @nhett

I'm in so much pain right now. My back is killing me right where they took my old neurostimulator out and scar tissue formed. I never had pain like this. And my jaw and chin are hurting particularly bad tonight/morning. Thank the good Lord for @taylorswift ! I have #Lover on repeat. Anyway, trying to make it until my next pain pump bolus at 1:54 am. Prayers would be appreciated! Please and thank you! #ReflexSympatheticDystrophy #CRPS #burningforacure #RSDsucks #ChinSurgery #GenioplastyRevision #OralSurgery #TaylorSwift #TayLurking #HelpAshleyMeetTaylor #GetAshleyToTaylor #MakeAshleysWildestDreamsComeTrue (at Belleville, Illinois) https://www.instagram.com/p/B1-of0eHq8W/?igshid=qbndgds3s66f