#rsdkills

Everything I said above is completely true. It is not an exaggeration or any manipulation of words. Those were their words, verbatim. I learned I can't let anyone not even doctors dictate what I can and can't do. This was a very hard time and I left out a few things from the words above...... I'm sure you can piece together what depression for that long will do to your mental psyche. Today, and for the last 7 years I have had a doctor who cared not just about what's on paper or what treatments didn't work...  He Cares about the quality of life I'm living. How I'm managing both my mental and physical health and is encouraging not discouraging. All I can say is thank God for people like him because if they didn't exist I wouldn't be here today. Thank God for people like all of you as well because when things turn really dark there's no one there. Doesn't matter how much money you have at that point, what cars you own, or any of the material bullshit that you have in your life.... Everyone will slowly fade away because they're tired of hearing you saying the same thing over and over again. This is a very personal post to me because it's a very personal experience that I only told several people and I'm sharing it with all of you today, not to make you sad or feel bad for me but to uplift you. To show you that even if everything fails you can still hold on and push through. **Wishing everyone a managed pain Day ❤️❤️** #rsd #crps #rsdkills #crpshope.net #crpsstrong #reflexsympateticdystrophy #crpssuffering #crpswarrior #chronicpain #chronicexhaustion #fatigue #hypersensitivity #anxiety #ptsd #ptss #onehand #livingwithonehand #rsdhope #frustrated #burningpain #sharppain #rsdsawareness #crpsawareness #crpssucks #livingwithonehand #hope #suvivor #strength #fighter #fuckpity #fuckrsd https://www.instagram.com/p/CTcb5hIs2x2/?utm_medium=tumblr

I wrote this almost a, year ago but choose to keep it in "my diary", today I'm sharing it with all of you. I don't know about you but I never thought I would end up disabled... I was just living life like everyone else. At the time things were going great, I had a good job and on the day of the accident I was supposed to go into the office to complete the promotion documents - in a snap/flash of light everything changed completely.  So.... Please be kind. #rsd #crps #rsdkills #crpshope.net #crpsstrong #reflexsympateticdystrophy #crpssuffering #crpswarrior #chronicpain #chronicexhaustion #fatigue #hypersensitivity #anxiety #ptsd #ptss #onehand #livingwithonehand #rsdhope #frustrated #burningpain #sharppain #rsdsawareness #crpsawareness #crpssucks #livingwithonehand #hope #suvivor #fighter #livingwithonehand https://www.instagram.com/p/CTZxtGWMUxV/?utm_medium=tumblr

After about 2 bad weeks of intermittent flares I'm finally trying to catch up with everything. Ya'll know how that goes... It's the never ending cycle. I am pacing myself and trying to do less rather than burn myself out completely then end up in the same cycle again. *Wishing everyone a managed pain day 🙏* #rsd #crps #rsdkills #crpshope.net #crpsstrong #reflexsympateticdystrophy #crpssuffering #crpswarrior #chronicpain #chronicexhaustion #fatigue #hypersensitivity #anxiety #ptsd #ptss #onehand #livingwithonehand #rsdhope #frustrated #burningpain #sharppain #rsdsawareness #crpsawareness #crpssucks #livingwithonehand #hope https://www.instagram.com/p/CTXfh0hrauW/?utm_medium=tumblr

That burning pain I was referring to is unlike anything you've felt before. It feels as though your flesh is literally on fire with no fucking actual physical symptoms other than increased HR and reparations, if that. You could be there rolling around in agongy while the person next to you looks as if you are just nuts, maybe it's drugs... Whatever bullshit fills up the average mind of a human being who can't understand what is going on. It gets even better... Your could loose your doctor at any given moment and thanks to the CDC, they've made it impossible to get the actual medical care you need. ... Everything I said are just words lumped to together unless you've experienced this.  I don't mean some of it, I mean all of it.. Think about it : your life completely stopped. Whoever you were is gone. Whoever you're trying to be : no one fucking believes you half the time or thinks you're exaggerating... Then day in and day out, wake up. - - > SUFFER - - >REPEAT! I'M SICK OF THIS! #rsdsucks #crpssucks #rsd #crps #rsdkills #crpshope.net #crpsstrong #reflexsympateticdystrophy #crpssuffering #crpswarrior #chronicpain #chronicexhaustion #fatigue #hypersensitivity #anxiety #ptsd #ptss #onehand #livingwithonehand #rsdhope #frustrated #burningpain #sharppain #rsdsawareness #crpsawareness #crpssucks #livingwithonehand #anxiety #ptsd #ptss https://www.instagram.com/p/CSaeuESswiw/?utm_medium=tumblr

If I could only count how many times this happened to me it's just ridiculous. Sometimes you can be at a managed level all day, as soon as you step out it all goes to hell 🥵🥵 #rsd #crps #rsdkills #crpshope.net #crpsstrong #reflexsympateticdystrophy #crpssuffering #crpswarrior #chronicpain #chronicexhaustion #fatigue #hypersensitivity #anxiety #ptsd #ptss #onehand #livingwithonehand #rsdhope #frustrated #burningpain #sharppain #rsdsawareness #crpsawareness #crpssucks https://www.instagram.com/p/CRm2gPnsHl4/?utm_medium=tumblr

! Currently, I'm at the unbearable part. Can't scream because of the time, all my doors have ADT sensors so I can't even go to the garage into the car to scream or at least be at ease, so to speak.(the pad will loudly announce 'garage door ")... I think I'll be up for the rest of the night. I was in North Shore Long Island Hospital for quite a while when I was first diagnosed. I remember screaming in pain and the nurses told me they were contacting my doctor. Yo these people contacted a fucking drug addiction counselor. I mean OMG! This is to show you people don't get it. I hate to go back to these moments but without ever having actually got the chance to express the damage these people did... Think of it as never having closure. Thank you guys for listening. #rsd #crps #rsdkills #crpshope.net #crpsstrong #reflexsympateticdystrophy #crpssuffering #crpswarrior #chronicpain #chronicexhaustion #fatigue #hypersensitivity #anxiety #ptsd #ptss #onehand #livingwithonehand #rsdhope #frustrated #burningpain #sharppain #rsdsawareness #crpsawareness #crpssucks #livingwithonehand #anxiety https://www.instagram.com/p/CPsBI1iDCBx/?utm_medium=tumblr

It's too early for this shit... Wait, the pain doesn't GIVE A SHIT! Just been a series of bad days with very little breaks in between... I'm taking hours. Anyways, good morning and I wish everyone a managed and or pain free day! (personally there are no pain free days) #rsd #crps #rsdkills #crpshope.net #crpsstrong #reflexsympateticdystrophy #crpssuffering #crpswarrior #chronicpain #chronicexhaustion #fatigue #hypersensitivity #anxiety #ptsd #ptss #onehand #livingwithonehand #rsdhope #frustrated #burningpain #sharppain #rsdsawareness #crpsawareness #crpssucks #livingwithonehand #anxiety https://www.instagram.com/p/CPdJ6cvDOB7/?utm_medium=tumblr

I'm just tired, really really tired. Yesterday I had only 4 different tasks to complete and they are not tasking at all for a normal person. But for men they might as well be MT. Fucking Everest! On top of It all after finally getting everything done, I was sooooooo beat! I mean it's like a feeling of being run over by a truck and having all your bones broken. I don't even want to talk about mental frustration.... **To more better days ahead ** #rsd #crps #rsdkills #crpshope.net #crpsstrong #reflexsympateticdystrophy #crpssuffering #crpswarrior #chronicpain #chronicexhaustion #fatigue #hypersensitivity #anxiety #ptsd #ptss #onehand #livingwithonehand #rsdhope #frustrated #burningpain #sharppain #rsdsawareness #crpsawareness #crpssucks #livingwithonehand https://www.instagram.com/p/CPV2o9YDsk4/?utm_medium=tumblr