#burningforacure

@taylornation @nhett

Just edited this with the help of @picsart in a @taylorswift "Lover" theme. I'm no pro but it was fun. @taylornation 🎉🦋🌈🎼 I had my ablation done today on my right lower back. We got there and had to wait an hour because the surgeon was called into surgery. So while we waited, the only thing that got me through waiting that long in pain was listening to @taylorswift 's album "Lover". Everything else went as planned. They stuck me like 8 time and gave me an injection of Toradol for the soreness. I'm not looking forward to the ups and downs of pain for the next few weeks. #Ablation #ReflexSympatheticDystrophy #CRPS #burningforacure #RSDsucks #PicsArt #LoverMusicVideo #Lover #LoverReleaseDay #LoverOutNow #TS7 #TaylorSwift #TayLurking #HelpAshleyMeetTaylor #GetAshleyToTaylor #MakeAshleysWildestDreamsComeTrue #ME #StreamME #YouNeedToCalmDown #YNTCDOutNow #TheArcher (at Belleville, Illinois) https://www.instagram.com/p/B1hgZGnHX5J/?igshid=17nv3zfu31ivl

With the start of the "Lover" era and the album release coming soon, I wanted to share this again. My dream is to meet my idol @taylorswift . I have a chronic pain disease called Reflex Sympathetic Dystrophy so I live in excruciating pain everyday. I had to give up nursing school because of this disease. I also have Rheumatoid Arthritis and Trigeminal Neuralgia. I have a pain pump and a neurostimulator along with a lot of other medications. My story is in the first picture. Taylor and her music gets me through the daily flares. I don’t have much to look forward to but meeting Taylor would help me so much. Please tag Taylor and Taylor Nation and share this, thank you!! Please help me get this to Taylor! Thank you so much! 💜🦋🌈@taylornation #HelpAshleyMeetTaylor #GetAshleyToTaylor #Lover #TheArcher #YouNeedToCalmDown #YNTCDOutNow #StreamME #MEOutNow #TS7 #TaylorSwift #TayLurking #RepTourStLouis #ReflexSympatheticDystrophy #CRPS #burningforacure #RSDsucks (at Belleville, Illinois) https://www.instagram.com/p/B0xKtFsnjIz/?igshid=18k1zoqg1o882

Since we're celebrating #OneMonthofME , I wanted to talk about what #MEmeans to me.  ME means that I can accept myself for who I am and the flaws I have.  I'm not perfect and will never be perfect.  ME means I accept the RSD I have because it's a part of me but it doesn't define me. I'm beautiful inside and out. I never thought I was until Taylor released "ME!".  To me, "ME!" is all about individuality and accepting yourself. Thank you @taylorswift for releasing such an amazing song!  I love you so much! 😘🌈🦋 @taylornation @nhett #StreamME #ListenToMe #TayLurking #TaylorSwift

My dream is to meet my idol @taylorswift . I have a chronic pain disease called Reflex Sympathetic Dystrophy so I live in excruciating pain everyday. I had to give up nursing school because of this disease. I also have Rheumatoid Arthritis and Trigeminal Neuralgia. I have a pain pump and a neurostimulator along with a lot of other medications. My story is in the first picture. Taylor and her music gets me through the daily flares. I don’t have much to look forward to but meeting Taylor would help me so much. Please tag Taylor and Taylor Nation and share this, thank you!! Please help me get this to Taylor! @taylornation #HelpAshleyMeetTaylor #TS7 #TaylorSwift #TayLurking #RepTourStLouis #ReflexSympatheticDystrophy #CRPS #burningforacure #RSDsucks (at Belleville, Illinois) https://www.instagram.com/p/BwcwB98H1Zk/?utm_source=ig_tumblr_share&igshid=1cuowuip39cjd

Just got done at my pain doctor's appointment. I had to do pain pump follow-up appointment. My pain doctor was asking me what I think has helped me get to this place and be doing so good. I told him I thought increasing the pain pump concentration and doing the nerve blocks/ablations has helped me. He said a lot of previous pain doctors put it in patient's heads that they are so crippled and can't do anything. Then he said, "I deserve all the credit for where I am today." This blew my mind because my pain doctor and I really disagreed on different things at first so for him to say that almost made me cry. He is going to leave my pain pump dose where it is right now. He wants me to continue my exercise, if I can a gym or water aerobics. I go back next week for my pain pump refill. I also just love his nurses and staff. They are so friendly and sweet. #ReflexSympatheticDystrophy #RSD #ComplexRegionalPainSyndrome #CRPS #burningforacure (at Belleville, Illinois) https://www.instagram.com/p/B5GkSePnlhK/?igshid=1qwfmcjesolcw