Rare disease day, aka hey Em what the fuck is wrong with your eyes?

Fun fact, my family was actually one of the landmark gene studies for this disease!

My dad had a detachment in both eyes. So far, I have a thin retina but nothing that has required intervention. My opthalmalogist visits suck though. They have to dilate my eyes every year. I can't get any eye surgery for my trash vision though 🙁 it's too risky.

Maybe if people are interested I'll do a post on nystagmus. It's a really interesting disorder but oh boy does it fuck my vision.

Any opthalmologists in the house?

Sources:

Despite it being a common medical procedure since it was revolutionized in the 1950s, retinal detachment surgery hasn't been available in New Brunswick hospitals — until now. On Jan. 24, the first retinal eye surgery was performed in the province at the Dr. Everett Chalmers Hospital in Fredericton. It was a long time coming, but Amy McCavour, Horizon's executive regional director, is happy to see the procedure now being offered.

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Update! I had repeat retinal detachment required gas bubble injection in ER late night and laser surgery in clinic next day. Donations/financial assistance would help as I'm also still navigating disability resources, debt collection lawsuit, coordinating healthcare for complex chronic illness, with no income. Court date is May 14th.

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@adrawer4ever PayPal/Venmo/kofi

I don't qualify for LASIK bc my prescription is so high (-10 L -12 R and astigmatism on top of that) so my only option is ICL, which is significantly more expensive. LASIK costs around 1000-4000 USD per eye. ICL is 3500- 5000 USD per eye. and since it's considered cosmetic my insurance won't copay.

I'm 22 - almost 23 years old. I've had glasses since I was 3. my eye doctor told my mom I had the worst eyes on a 3 year old he's ever seen. he even told her there was a good chance I'd be blind before I turned 18. I'm so glad I didn't. I don't even know what I would do if I went blind...

my current financial situation isn't the best. partly my fault for quitting my second job and putting way too many bill payments on a credit card. partly for not having any financial support from family. partly for instead of going to college I moved out of my mom's shitty roach infested trailer and into a shared apartment with a roommate who leeched off of me instead of contributing anything.

like I know I don't have it the worst. I'm not homeless. I still can see with glasses. my life is ok considering the state of the world.

I just want to be able to wake up and see. to not have glasses that irritate the bridge of my nose. to not have to go on rollercoasters with my glasses in my pocket and not being able to see anything. to not be afraid of going swimming because my glasses are in a bag on a chair and not on my face. to be able to wear sunglasses comfortably so the UV rays don't make my vision worse (I'm high risk for macular degeneration and retinal detachment.) even applying makeup is impossible unless I climb onto the bathroom sink, and don't even get me started on shaving in the shower. it's these little things people take for granted, when they buy the plastic lensed glasses frames as accessories and colored contact lenses to make their eyes red or purple or gold. I didn't get a choice not to need glasses or contacts. I just want to have the option of those things without spending a fortune on getting them in my prescription, if that's even possible to start with.

It's more like a "people I need help" because I don't know a shit

Because I'm a person that is inside their world a lot- I'm curious if something I have is considered a disability or not

So for context since I'm 12 years old I have this condition called «Prone to retinal detachment»

Retina is a part of the eye, at the back of the eye, in charge of turning the light into the things we see, on the other hand, retinal detachment is the action of your retina being "broken"... And you lose the capacity to see yeah that happens–

Being prone to that is just: I can't do many things because if I do them, there's a high possibility I will end up with retinal detachment. I have this for life and I can't get operated at least where I live lmao

Things I can't do are:

Jogging

Run

Jump

Do most sports

I'm also very sensitive to lights, I see things more bright so it's hard to see and I have to wear sunglasses like almost 24/7

Thanks to the lights of the car I need a person to make me company while walking down the streets because I can't see with lights of the cars and light posts

This is important. Eight people dying at Travis Scott's festival over the weekend is a shock and a sadness and never should have happened.

I've been in a lot of mosh pits and while I've had a couple of hairy moments when big dudes in the back shove the masses forward and my chest felt tight, I've never fallen nor felt my life was threatened. I've always been able to get out of the pit or last the show.

Comments like this scare me. I think it's true. And I think it's going to be hard coming back after COVID because we'll have new legions of fans wanting to be exuberant but who haven't moshed in a while and many of our long-standing and experienced security people have moved to other industries.

Retinal detachment can be caused by many things. High blood pressure (can be induced by Hyperthyroid, Kidney disease....for example), Trauma, glaucoma, uncontrolled retinal hemorrhage for whatever reason... for example. It causes the cat to suddenly go blind. Owners might present the cat with complaint of “keep walking into walls”.

But the most common ones that I see are found to have high blood pressure with chronic kidney disease or hyperthyroid or both. There is always something going on that caused the cat to have retinal detachment. Palpate the neck, Perform blood check, don’t forget to include Total T4.

This cat has ridiculously high blood pressure. Over 250 mmHg. (normal value 120-140, if stress i can forgive 160... but over 200? that’s not good.)

Treat the blood pressure, and find the underlying cause, then treat the underlying cause.

Prognosis for the vision is poor. There is a small chance that the retina might reattach once the blood pressure is no longer high. But most likely, the vision won’t return.

will be fine - no retinal detachment or tear, just some inflammation. Have to apply two kinds of drops. Don’t need new glasses either, yay! The worst part was getting outside into the sunshine (yes, we had some sunshine today!!!) with dilated pupils after it was all done. Painful, blinding, lack of depth perception, but I managed not to fall flat on my face.