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Taper.. ⚠️
Today once again is taper day.. Down again, to 25mg of Pred.
Why does one little change in medication have such an effect?! My mood, fatigue and general feeling changes with such a bang. I know this is temporary and it'll take a couple of days to come round, roll on then! Freedom from the Pred ✊🏻
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Change of plans.. no kidney biopsy until they can control my high blood pressure. Another hospital stay during the holiday always puts me in a depressed mood. I miss my bed. I miss my dog. And I'm tired of needles. Blood transfusion currently happening, one more night in the ICU. #livingwithlupus #prednisonesucks #hospitalsuck #healing #briesbattle #battlingmybody #ittakestime https://www.instagram.com/p/CIWJd8rjecZ/?igshid=le7g20rpq90l
Up, up and away!
Over the past few days, I have been feeling pretty groggy and simply going down hill a bit. Increased ‘bathroom’ activity, foul uncontrollable gas and just feeling generally unwell.
I’ve been tapering down from 40mg of Prednisone each week, I had managed to get to 25mg.
I called up the IBD Nurses today, she contacted my specialist and I have to go back up to 30mg for another week, then taper again. Pretty standard, this did happen last time.. I popped an extra 5mg pill as you do, been feeling off my box ever since! Ping, ping, ping! 💊
She has also increased my Mercaptopurine (6MP), I was on a mere 50mg last week, this went up to 75mg after my appointment with the specialist on Thursday. Today, bang, up to 100mg!
So I am literally up, up and away! Take two, three or is it four.
I WILL conquer this! 💪🏻
- Big shout out to the nurses for a quick response! Legends 👊🏻
Fatigued, tired, worn out and done in..
The uninvited fatigue 💤 has dropped in today, still managed a yoga session but boy do I feel off. Is it the increase in Mercaptapurine or the taper off the Pred? Either way it can kindly do one! Sending positive vibes, push on all the weekend is nigh 🕺
5 days till my 5th surgery. #fuckcrohns #crohns #crohnie #crohnsdisease #surgery #kaiser #strongerthancrohns #bowelresection #ignoremymoonface #crohnswarrior #prednisonesucks
Anya is live and ready to show you everything. Watch her strip, dance, and perform exclusive shows just for you. Interact in real-time and make your fantasies come true.
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www.amazon.com/author/wykethaparkman, www.createspace.com/7095693, Barnes and Noble, Books A Million, Nook, Kindle #authorwkp #shortstoriesbywkp #avascularnecrosis #bloodthinners #bloodthinner #hematologist #hematologia #bloodclot #bloodclots #orthopedics #orthopedicsurgeon #orthopedicsurgery #hipreplacement #hipreplacementsurgery #hipreplacementrecovery #authorwkp #shortstoriesbywkp #lupus #lupussucks #awareness #rarediseases #prednisone #prednisonesucks #hematologist #hematology #hematologia #rheumatologist #rheumatology
www.amazon.com/author/wykethaparkman, www.createspace.com/7095693, Barnes and Noble, Books A Million, Nook, Kindle #authorwkp #shortstoriesbywkp #avascularnecrosis #bloodthinners #bloodthinner #hematologist #hematologia #bloodclot #bloodclots #orthopedics #orthopedicsurgeon #orthopedicsurgery #hipreplacement #hipreplacementsurgery #hipreplacementrecovery #authorwkp #shortstoriesbywkp #lupus #lupussucks #awareness #rarediseases #prednisone #prednisonesucks
#ThisIsLupus: The #prednisoneface is so very apparent in this photo: I was talking about #FayStateEnglish social media and website at @uncfsu_engldept's end of year celebration. I look like a happy chipmunk! 😄😆 #prednisonecheeks #BlueAndGold #SGRho • • OAN: I spoke too soon, I guess, when I said coming off of #prednisone hadn't caused any discernable issues. The joint and total body pain and discomfort is: 🙁😲. Everything hurts, all over, everywhere, all the time...especially in the morning...especially now that I am standing and lecturing 4 hours a day. I now remember why I even started taking prednisone to begin with! (I should mention that I did recently fall down some concrete steps and landed on a concrete floor. Again. It was another epic fall with epic results.) Tis all. 😎 ✌💜🌼 ° ° #prednisonesucks #blackgirlmagic #kNOwlupus #chronicillness #humanexperience #humanvariability #latasharjonesblog #livingwithlupus #lupus #lupusisreal #narrative #creativenonfiction #nonfiction #pointofview #SLE #spoonie #systemiclupuserythematosus #thisislupus #growapairofovaries (at Grays Creek, North Carolina)
