#thisislupus

#thisislupus #lupuswarrior #lupusawareness

💜 #thisislupus #lupielife #lupus #thatslupus #lupuswarrior #may #lupusawarenessmonth (at Orlando, Florida) https://www.instagram.com/p/CAIi6MJnKA8/?igshid=jgzwxtlpq9cl

Today is World Lupus Day! #lupusawareness #lupuswarrior #thisislupus

How...why is it that every time I share with someone that I have #lupus they proceed to tell me a story about someone they know who died...from lupus? ¿Pero por qué? ☀✌💜🌼 ° ° ° #blackgirlmagic #microblog #kNOwlupus #chronicillness #invisibleillness #humanexperience #humanvariability #latasharjonesblog #livingwithlupus #lupus #lupusisreal #narrative #creativenonfiction #nonfiction  #pointofview #SLE #spoonie #systemiclupuserythematosus #thisislupus #growapairofovaries

S L E E P I N G B E A U T Y 😴 When you suddenly find yourself waking up from a nap... pretty sure I was about to do my first Body Bible Workout (@mathewlcarter) ...fatigue is rife today. Friday's extra check - up will be welcomed with open arms. #ThisIsLupus #Lupus #Spoonie #SpoonieLife #Fatigue #ChronicIllness #InvisibleIllness #ButYouDontLookSick

#ThisIsLupus: I am officially part of the #rollatorgang. I bought this Juvo dual rollator/wheelchair right before my #carnivalcruise; I used it twice on the ship. Yesterday was the first time I used it in #reallife. ° ° I tried to fight buying it, but my caretakers (@injones_wetrust + @jonesgwendo) urged, insisted, convinced me otherwise. I thought,"I'm gonna look like an old lady, if I use this!" But, alas, I need it sometimes. ° ° I pulled the rollator out of my trunk yesterday while we were in @goodwillintl. I needed to #satdown somewhere. I was tired and truly feeling the throes and woes of #lupus. #walkerlife 😎 ✌💜🌼 ° ° #blackgirlmagic #microblog #kNOwlupus #chronicillness #humanexperience #humanvariability #latasharjonesblog #livingwithlupus #lupus #lupusisreal #narrative #creativenonfiction #nonfiction  #pointofview #SLE #spoonie #systemiclupuserythematosus #thisislupus #growapairofovaries (at North Carolina)

I haven't shared #livingwithlupus in awhile. I went in for bloodwork yesterday, as I started Imuran in December. I used to be freaked out by needles/shots. I remember being a big ol' cry baby in middle school when they would round us up like cattle and shoot us with air gun needles (#jetinjectors). But after a navel piercing, three tattoos, and countless shots...and lots and lots of this: I'm completely #unbothered! Sorry not sorry if your sensibilities are wrecked, offended by a little blood. Grow a pair...of ovaries 😎  ✌💜🌼 ••• #blackgirlmagic #kNOwlupus #chronicillness #humanexperience #humanvariability #latasharjonesblog #livingwithlupus #lupus #lupusisreal #narrative #creativenonfiction #nonfiction  #pointofview #SLE #spoonie #systemiclupuserythematosus #thisislupus #growapairofovaries (at Lafayette Clinic PA)