#m.e

I finally got a neurology letter, I FOUGHT MY ASS OFF GUYS I was not going to allow anyone not to listen to me, I got a letter stating that everything I am struggling with is indeed because of M.E including not being able to mobilise and needing a wheelchair, and this is a big fuck you to everyone (including doctors) that made me feel like a failure and like I wasn’t “trying” to get better.

These dumb kids/pos

Was originally supposed to be based on one image but changed it ig

There was a girl who was lost in hate.

He wanted to sail over

the ocean so he could see her,

Even if it only was for a short minute.

She wanted to burn his ship down so he would not be able to pass,

Even if it meant she would burn his heart.

His love for her was strong.

Her hate for him was weak.

And he knew.

So he took the chance to sail over the ocean,

Even with a burning heart.

When he came ashore,

She stood with a bucket of water ready to put out his fire.

All this time,

She thought she hated him. But it turns out that it was always love.

And he knew.

He always knew.

Therefore, he was willing to sail with a burning

Heart.

M.E

It's not life threatening, even though it can get there.

It's not really treatable, just sit-withable.

It's not something like cancer, that can be cut or irradiated out of you.

It's not like I have to do anything other than sleep & try to cope with the pain levels.

I feel guilty because my illness isn't seen as valid as others.

I feel guilty because funding is so minimal and research so sparse, i am only able to lay in bed.

I feel guilty because my illness isn't seen as worth caring about and by extension, me.

I feel guilty about their positive outlook when I used to have that too, but they're getting treatment unlike me.

I feel guilty for having bad and worse-than-bad days, when I used to fully function like my friends and family.

I feel guilty because nobody gives a damn about M.E

#does this make sense

Do you guys ever struggle so hard to wake up in the mornings that it makes you wanna cry? I describe this to my loved ones as having to climb the tallest mountain, and in order to wake up I need to reach the very top of that mountain.

It takes me so long to wake up, I consciously want to be awake and there are moments my eyes flicker open and I'm conscious, I literally think "Okay, I'm getting there, must keep fighting to be awake" - but it takes me hours and several tries.

Sleep pulls me back in and I struggle to escape. It is horrible. I know to non chronically ill people, the idea of sleeping so much must sound nice. But it is horrible. I hate it. I hate being a slave to sleep. It's so scary. I literally feel sleep pulling me back in and I'm like no no no please let me wake up.

Sharing this with permission from @chaisorrowscfs on Instagram. I LOVE this idea and wanted to share it with more people.