#enhertu

Second treatment: done.

I requested they do it over 90 minutes again like the first time. (Usually, subsequent treatments are 30 minutes.) I’m trying to throw everything into the hat for symptom management. I’m not sure it does anything but it’s worth a try. Usually slowing IV treatments down can help with immediate side effects (not necessarily delayed ones like mine).

The kiddo met me prior for breakfast. I had pancakes.

I also took her to the bank because she needed a cheque to be deposited.

We even got some other things done like emails, texts and setting appointments that she needed help with.

I feel bad because I just don’t have enough time with her and so many things are put on the back burner. Her current support worker finally just stepped up to cover more hours while waiting for her second support worker (who went on a LOA over 6 weeks ago), is away. Luckily, she’ll be returning in about 3 weeks.

The kid will be coming out on Wednesday to stay with me for a week. If this treatment goes like anything like last time, Wednesday will be my most horrible day. The kid said she will come and be by my side, clean and do whatever I need her to do. I know this is not only the case as she’s autistic and can be very challenging to communicate with sometimes, but I believe her heart and intention is 100% in the most compassionate place. So I’ll act with grace and gratitude and see how this goes. I’m not always the nicest person when I’m sick as a dog, writhing in pain so this will be a huge test for me as well. I’m staying hopeful that all goes well - especially with my dose reduction and new medications.

Anyway, I woke up with my hair a bit on the scruffy side. I contemplated a haircut for about 4 seconds. 😂

Tomorrow is my last 2 volunteer health coaching calls. I thought they were last week but I recalculated and was wrong. They both had 1 more. So, I will be wrapping those up. They’re both very lovely people and I’m not complaining in the slightest, but I do need some time off. I hope to return in September, pending my health stuff. If I’m still not stable, I’ll make the decision to “retire” at that point.

There are so many things I miss doing that I hope to get back to. The 2 biggest ones being comedy and running.

I’ve faced the fact that running is an absolute long-shot BUT stranger things have happened. All I need is about 6 months (give or take) of my hip bones healing rather than going the other way. It could happen. It could not. Time will tell. For now, I’m trying to still walk as much as I can when my body allows. Walking is awesome for health. No shade to the walk - but f*ck, man… it’s just not the same. lol.

As for comedy, I have a few barriers with that.

1.) 95% of comedy shows are in the evenings and that’s really tough on me.

2.) Most comedy shows are on the mainland. It’s hard for me to travel there and takes even more energy out of me.

3.) The comedy program I’m part of focuses heavily on writing jokes about mental health. That feels a bit shitty at the moment. I’m having a hard time finding the funny in my situation. I know it’s there, but it definitely feels “delicate” right now.

Note: #3 is my biggest barrier. I know if I get through that one, the other 2 will start to feel easier and I’ll feel excitement over dread. I’ll get there. Maybe not right away, but hopefully in the foreseeable future.

Anyway, I’m feeling really tired, spinny and moderately nuts right now. The darn steroid does that to me every time. I’ve already done some dumb little things today without thinking. The biggest one is buying 3 delicious scones and a cream puff at the bakery, today before my infusion. When I got home, I put the beautifully sweet scones in a container to seal and eat at a later date to prevent them from going stale. However, I was going to eat the cream puff. I was looking so forward to that damn cream puff. But what did I do? I crushed up the slimy box, threw it in the garbage. I noticed the garbage was pretty full so I tied it up and put it outside in the garbage can. Then I came back in. Where is my cream puff? F*ck. Fuckity. F*ck. F*ck. I threw it out. Dumb. Dumb. Dumb. Sad. Sad. Sad.

So I ate a scone, instead. Wasn’t the same. 😂 Boo.

Anyway, time to take some Ativan to combat these steroid jitters. Then finishing my audiobook.

If you got this far reading, Thankyou so much for continuing to follow along my story. I hope you have a lovely weekend. 💕

PS: I’ve put together a “walking playlist” below - all Canadian 🇨🇦 music + all artists I’ve seen live at some point (some multiple times). Not ranked in any particular order. Except for Nickelback. They go to the bottom. 😂 (I saw them just once because they opened at the Juno Awards in 2009.) I’ve seen many more bands but Tumblr only lets you tag 10 songs so there may be more playlists in the future. 😉

By Bryndís Blackadder June 4, 2024

A UK trans activist found guilty of sending threatening messages to author JK Rowling and Labour MP Rosie Duffield has now been sentenced. Glenn Mullen, 31, avoided jail as his eight-week prison sentence was suspended for two years.

Mullen, a Manchester-based trans activist, was arrested and charged with issuing violent threats to the two women which he sent in January of last year. Reduxx were among the first to identify Mullen, and immediately sent the details of his identity to Police Scotland once aware of them.

See rest of article

Scottish Breast Cancer patients are being offered a potentially life-saving drug that can cut the risk of advanced breast cancer spreading by more than a third, despite both NHS England and Wales choosing to block the drug. The game-changing drug, Enhertu is approved for use in HER2-low breast cancer patients in both Scotland and Northern Ireland, but in a controversial move, the National Institute for Health and Care Excellence (NICE) has blocked its use in England, with women in Wales also being denied the life-prolonging medication.

Compelling evidence suggests that treatment with the drug, whose full name is, trastuzumab deruxtecan can actually increase the amount of time patients can live and ultimately give them more time before their disease progresses, reports The Guardian. In fact, earlier this week new data from the world’s largest cancer conference revealed “really exciting” news about Enhertu, when scientists revealed that it may actually be even more effective than previously thought.

I just finished crying when I took this photo and no amount of filters can hide my red nose. 😢

This morning I had my first Enhertu infusion at the private clinic. It was a lot different than being at the Cancer Centre. All the patients were in a small room together. The one good thing is that there was 1 nurse for every 1 patient. That’s a nurse-patient ratio that I can get onboard with. 😊 There was also a big window I could look out of with lots of natural light in the room.

When they started hooking me up, I started balling my eyes out. It wasn’t for long, but it just felt like there has been such a huge build-up to this day. So many unknowns, stress …and now side effects. At the moment, I feel woozy and tired. When I stand up, it’s worse. So I’m lying down. Severe effects can hit anywhere from now to 10 days after the infusion. So I won’t be leaving the house much. I have a CT scan at the smaller/closer hospital on Wednesday evening that my step Dad said he can drive me to.

I was emailed about a bone scan appointment next week at 7am at the hospital in the city. I’m not going to that. They can suck it. I tried calling back to reschedule but it’s like calling into the twilight zone where there’s dropped calls and no answering services. When I finally got a hold of someone, they put me through to the wrong place. It’s infuriating. I won’t be confirming online so they will hopefully, call me back to confirm and I can reschedule then (maybe). If I don’t hear anything in the next few days, I guess I’ll try to cancel via the health portal. (Unfortunately, there’s no option to reschedule that way.)

I had a discussion with my oncologist about bone scans, anyway. I told him they are a waste of an entire day for me and just cause anxiety. I’d say 90% of the time the results are always mixed and don’t line up with my tumour markers or CT scan. …or even how I feel. I hate them. I’ve had probably close to 25 — and that means nearly 25 wasted days of my life. They’ve never made a difference in my treatment decisions, either. If a fracture was suspected in my situation, they’d just send me for a CT or an Xray, anyway. Sometimes, we just have to make executive decisions about our own health and what makes sense for ourselves. This medical system often feels like a conveyer belt and I’ve been just an obedient rider of it. Going forward, I’ll only go if there’s a strong reason to and whether it could change the course of my treatment.

Side note: I do think it’s very important to be scanned regularly in the beginning of a metastatic disease diagnosis to figure out the behaviour of the cancer. So if you happen to read this post and are new to metastatic disease, please listen to your oncology team and scan when they deem appropriate.

#News AstraZeneca की कैंसर की दवा Enhertu बनी 2024 में सबसे ज्यादा बिकने वाली दवा, जानें कितनी हुई बिक्री

Cancer Medicine: ब्रिटेन की फार्मा कंपनी AstraZeneca की कैंसर की दवा Enhertu ने साल 2024 में सबसे ज्यादा बिकने वाली नई दवा रही। लॉन्च के पहले साल में ही इसकी बिक्री लगभग 58 करोड़ रुपये रही। कैंसर की दवा का सबसे ज्यादा बिकना देश में इस बीमारी के बढ़ते मामलों को भी दर्शाता है। IQVIA के ताजा आंकड़ों से पता चला है कि सालभर में दवाओं के 3,100 से ज्यादा नए ब्रांड बाजार में आए। इन सभी ने मिलकर 1,097…

Im November war ich als metastasierter Brustkrebs Patient Teil einer Studie. Da ich bereits mehrere Medikamente seit 2014 erhalten habe sowie in 10 Jahren verschiedene Ärzte, Krankenhäuser und Gespräche geführt habe, begleitete ich die Studie als Moderatorin was richtig viel Spaß machte. Meine Erfahrungen als Patientin konnte ich hier gut einfließen lassen und wusste wie und wo ich fragen oder…