#cvi

ATTRACTION: ★☆ ☆ ☆ ☆

EFFICIENCY: ★☆ ☆ ☆ ☆

SATISFACTION: ★☆ ☆ ☆ ☆

OVERALL: ★☆ ☆ ☆ ☆

My news wasn't good.

I didn't have enough proof, according to them. Despite frequently asking them... Demanding them to log it in. Asking at my next appointment if it's there and actually logged... Only to find out they didn't.

Not for the constant chronic pain.

Not for the frequent heart rate spikes when transitioning position.

Not the vascular issues specialists said I had, but because it wasn't what they were 'supposed to be looking for', didn't get properly communicated or logged by my primary.

Not for the frequent misalignments or joint slipping.

Not for my horrid gastric problems.

And the audacity of it all. Is that they needed the symptoms to afflict more than just having 'hyper'mobility'... What do they think the other reports are?... They gave examples such as vision degradation... I have that... And even going as far to state it has to be 'life changing'.... How is this not? I can't read or draw frequently like I used to. I can't go on hikes or biking like I want. Foods I love are now risky to eat. How is that not life changing enough? I can't physically work or do many things on my own anymore. I may be striving for independence, but it's not something I can sustain without a fallback.... I hate this medical discrepancy and lack of communication.

I'm not doing great. I can't afford jack diddle... I just want them to actually write it down. To confirm what's been discovered and said. That's all I've actively pushed for.

I guess not yet.... If anyone has recommendations for people willing to listen and document (heavily suspected to be Ehllers Danlos : Hypermobile ) near Mid-Michigan, or a consultation price range out of pocket. That'd be extremely nice.

Meredith, 29, former state government, former educator @ nonprofit. (Ask me how I feel about 47)

📍Boston, MA, by way of my native SC/WNC

Climate refugee from Hurricane Helene.

Standup comedy at bars and venues in and around Boston. 5 years of standup and I’m finally making it.

Socialist, radicalized by VeggieTales. Episcopalian and big Rt. Rev. (Bishop) Budde fan.

Engineer who’s respecting a period of burnout.

Reading goal: 25 books for 2026.

January: 4 books

February: 2 books

March: 3 books

April: 2 books

May: 3 books simultaneously: not great for my attention span

June:

Chronically online, chronically forgetful, chronically ill.

I was told off for lying my head flat against a book to read or write neatly, or resting my head against my shoulder so I could see my teacher better. I would fiddle with objects without looking at them so I had a good understanding of what they were, and my teachers hated that. I was told off for overreaching and knocking things over, and for tentatively reaching and coming up short.

The amount of times I got yelled at because I couldn't find an object in a clutter of other objects is uncountable. But I would get yelled at more for marking important objects with yellow so I could find them easier.

There were so many signs I couldn't see properly growing up, and all of my adaptations were punished. I didn't get accomodations because despite constantly struggling and being bruised and exhausted and crying from stress nobody bothered to believe me when I talked about my vision. All the ways I tried to accommodate myself were swiftly put down because I didn't behaviour normal or sighted enough for them.