#nonverbal

white

low support needs

not need 24/7 support

can work independently

can pay taxes

language privileged

intellectual & cognitive privileged

who can fit in societal definition of useful & productive (yes, even if hard)

when fight back against eugenics & ableism, you NEED to fight alongside, fight with, n fight for autistics who

racialized & POC

from places of world where there critically lack autism knowledge n support

visibly autistic

higher support needs

need 24/7 care

can’t work independently or even work at all

can’t pay taxes

nonverbal, nonspeaking, minimally verbal, without functional communication, or cannot communicate via language at all even AAC

w intellectual disability or cognitive disabilities

who cannot fit into society definition of useful n productive, no matter how hard we try

because we always are & always will be primary target.

because we most vulnerable most marginalized within our, OUR community, which you belong in.

a comic about verbal words :3

Don't say you're "going nonverbal", say you're having a verbal shutdown. Nonverbals do not like their language being misused to treat nonverbality as a temporary thing.

Been very frustrated lately by lack of phone call accessibility as someone who lacks speech but needs a lot of resources to stay healthy.

With rise of AI, it's only getting worse and worse.

More places changing their systems to incorporate AI answering machines.

Thing is...

Whenever I hear most people ranting about this change, it's usually about how annoying it is from an abled-person perspective or environmental or ethical impact.

Which are important valid reasons to be upset. I share those sentiments too.

But feel like disability is once again forgotten about within important discussion about change.

AI creates terrible language accessibility issues.

In fact, that's why it so annoying to deal with it.

In the past, if a place didn't have a call center or desk person to answer calls, they use extentions.

That meant you had to press a few numbers to get the right person.

Now with AI, you're expected to have a full conversation with a robot.

Tell them why you're calling, who you need to speak to, verify your info so the humans don't have to later, etc.

These bots can be bad at understanding what able-people are saying, so imagine how they handle these disabled callers:

People who use AAC (speech aids/devices)

People who slur, stutter, have "strange" voice or pronunciation

People with rapid or disorganized speech

People who use poor grammar & who don't speak full words or sentences

People who mix up similar common words

People with "deaf accent"

(i don't know if there is a different preferred term for this. Im sorry if I sound offensive. Please Lmk)

People with non-communicative speech such as vocal tics, echolalia, or babbling

Anyone who uses speech or language in a way that needs a human mind to interpret

Anyone whose voice sounds notably different

Ability to understand what AI is saying can be harder too:

d/Deaf people and other hearing differences

Auditory processing disorder

Receptive language disorder

Developmental disability, especially intellectual and learning disabilities

(AI can't help people who need things explained a certain way. AI unreliable and fails to adapt a lot.)

Anyone who frequently can't make out sounds and/or speech

Anyone who frequently has trouble with meanings in conversation

The problems I often face with AI answering machines (and that I'm sure many other disabled people have faced as well):

AI slightly mishearing me/my device

AI mishearing so badly that it basically makes up a fake conversation

AI not hearing me/my device at all

AI registering tics and stims as answers

AI "explaining" an instruction by repeating the same instruction again word-for-word

AI directing me to the wrong person without trying to confirm what I said

AI sometimes just... hanging up on me right after I speak my first answer...

These are the machines being put in front of

hospitals

doctors offices

mental health centers

pharmacies

transportation and in-home care

health insurance member services

medical supply companies

government resource agencies

non-profit organizations

advocacy groups

justice centers & other legal resources

customer service lines

many other places disabled people often need to access from home

It's another example of some of the most vulnerable being pushed away from the things we need, and we're also being forgotten in these discussions about things that can affect us a lot

Next time someone is ranting about AI job interviewers, please also remember:

the AI pharmacy assistants that make it impossible for someone with a speech disorder to sort out their meds

the AI scheduler that won't allow a D/deaf person to access the right extension of the clinic to set up an appointment

the AI agent that confuses an intellectually disabled person into anger and tears

the AI answerer that hangs up on a mentally ill person seeking help in crisis because they aren't speaking coherently enough

Human beings need to be at the forefront of human resources and issues for disabled people especially. Please remember us. Please fight.

Pixies First book with adult aac users !

And !

image description: ten slides with a light blue background, rainbows, clouds and stars. text reads:

a note on "going nonverbal"

nonverbal refers to a permanent state of not talking. it means months, years, decades of no talking.

not being able to talk for a few minutes to hours at a time is not nonverbal. i don't want anyone to feel dismissed by saying this. not being able to talk is distressing. it is frustrating and scary. if not being able to talk for short periods is distressing, imagine how nonverbal people feel 24/7.

to quote one of my favorite movies "you keep using that word. i do not think it means what you think it means," the princess bride (1987).

when nonverbal people try to talk about their experiences, it is flooded with people talking about 'going nonverbal'. our voices get drowned out in our own community. it feels incredibly isolating and makes it really hard for us to be listened to or even find others who are nonverbal.

also, we have been saying this for YEARS. but every time we bring it up, y'all act like this is a new concept. that just tells me you have not meaningfully interacted with the nonverbal community, or the MSN/HSN community. it is not new, y'all just don't listen.

what to say instead of "going nonverbal". speech loss / losing speech / speech loss episode. vocal rest. verbal shutdown / vocal shutdown. words are offline. verbal loss. PS - vocal rest is GREAT if you don't want to mention why you can't speak, or have to mask. musicians say they are on vocal rest all the time to protect their voice before performing.

"But Chrome! that doesn't sound as serious as "going nonverbal!" people won't take you seriously either way, sorry. i have had periods of my life where i can talk sometimes and periods where i can't ever. they aren't going to take you seriously if you use our language because they don't take you seriously at all. because of the ableism.

"my therapist / SLP / doctor says 'going nonverbal, though -" that doesn't mean it's ok. professionals don't always listen to the people they are attempting to serve. they should, but they don't. because of the ableism. and racism, sexism, etc.

the autism community already has a problem with driving out higher support needs autistics, nonverbal autistics and especially autistic people of Color. you can be part of the solution. you can support marginalized autistic voices and make your community safer and more inclusive. but first you have to listen.

thank you for listening. i hope something good happens to you today!