#chronicllyill

Hi everyone 💕 I'm just checking in to say hi. I hope you are all doing as well as can be. This is going to be a mixed blog with just a general catch up on my life as a chronic illness patient. Bad news: I'm recently crippled with fatigue. It has become so unmanageable. I've done everything the doctor has told me. I've rested more. I've exercised daily for months. I'm taking multivitamins prescribed by my dietitian. I'm on probiotics. Nothing is working. I'm just so sick of waking up exhausted and dragging myself from bed to start my day. Today was Father's Day and I done my best for my Dad as he has been amazing to me this past year. I was Homeless, after my partner left me when I got out of hospital and on a feeding tube, he took me in and looks after me everyday. I cooked him a steak dinner and bought him some really thoughtful gifts. But now the day is over and I'm literally crying from being so exhausted. This isn't normal for a 20 something year old woman. I feel so alone in this and my doctor has said he's doing everything he can and he is but I'm not doing well at all. I can't relate to anyone unless they are sick and I don't have that many friends in general. I feel very isolated. Good news: I also forgot to mention a MAJOR achievement in my life I completed my undergraduate degree and got a first. I'm DELIGHTED as this degree has not only kept me going but also has been very difficult. I think IBD and my other chronic illnesses has pushed me to be a better person. I only achieved this degree after 7 years part time study with may years off due to hospital stays. But I should be so proud of myself for even trying to study. As many in my position can't. So my graduation is in July and I'm so excited. I finally get to stand on stage and get my degree. My dress is beautiful and I hope my Dad is proud of me. I have also been accepted to do my postgraduate masters in clinical anatomy. I'm so happy and it gives me something to get up for in the mornings. I should (if I'm fit) be able to get a job teaching Antomy at my university when I'm finished. So although this blog was a little bit of a ramble I guess it has ended positively! So thank you all for your continued support. I couldn't do it without you. Oh and if anyone has tips on fatigue let me know. Thank you Crohns girl in pain Xox

Sometimes there are no words to explain what you are going through so excuse me while I ramble on and try to make sense of my thoughts. I've had a week of mixed news and I'm happy and sad! So good news first: I got accepted with a conditional offer for my masters course. I'm actually surprised I completed my undergraduate degree but through all the hospitalisations and flares of my chronic illnesses. I did it!! I cried for an hour when I got the letter. I'm so proud of myself that I kept studying. Bad news: As I said in a previous blog. My crohns had started to play up. I am becoming very run down and a lot of vomiting and diarrhoea. Plus my ankylosing spondylitis has been incredibly painful. So on Thursday I see my GI and he will probably suggest another dose of steroids and hopefully try a biologic. I'm so happy that I have the results and the possibility of my dream job. Yet chronic illnesses are always there to torture me.

I Just don’t want to accept this fate.

My painsomnia sucks right now so I'm trying mindfulness meditation. Worth a try! Hope everyone is as well as can be.

Chronic pain and illness tips form "psychology today"

Source: "spoon shortage" Facebook

Hi everyone. Just headed to a GP appointment. I'm going to chat to her about sleep medication as mine aren't really working very well anymore. I find in my country if I mention changing sleeping tablets or pain medication it's such a huge deal and I feel like a junkie begging to be out of pain! So I'm going to chose my words wisely even though I don't understand why the people who need the medicine aren't getting it. It makes me sick how the health services are ran in my county and probably many others. Any tips on how to not look like a junkie gimme let me know!

Hi guys I've been so busy this month so far with hospital appointments and it has been so boring and exhausting. I find I'm running from one doctor too the next and then I have to go home and rest before the next appointment. Seems chronic illnesses seem to stack up on us before we even realise. I have physio tomorrow which so far I don't think it has been much help but I do know that it takes time too. I've never been so busy yet so sick!