Top Posts Tagged with #cfirl

RISING UP FOR A DREAM - BY NICHOLAS KELLY, RD

Nicholas Kelly, dietitian, motivational speaker, author, DJ, artist, poet, dancer, advocate, and CF Warrior, shares the secrets to his freestyling "sauce.”

Enjoy his inspirational freestyle artistry entitled “Rise Up For A Dream,” and learn how you can empower and express your unique voice.

WATCH FULL CF COMMUNITY VOICES PODCAST:

Nicholas Kelly, dietitian, motivational speaker, author, DJ, artist, poet, dancer, advocate, and CF Warrior, shares the secrets to his frees

Find more from Nicholas Kelly @NicholasKellyRD on Twitter, Facebook, Instagram and Youtube.

CF Community Voices is made possible to date through grants from Chiesi USA, Genentech, and Viatris.

#cysticfibrosis #cfirl #comunidadfq #CFcommunity #65roses #adultswithcf #riseup #ihaveadream #cureCF #makeCFstandforCureFound #spokenword #poetry #Freestyling #motivationalspeaker #dietician #CFwellness #cfcommunityvoices #CFRI

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Watch Anya Live on Cam

Anya is live and ready to show you everything. Watch her strip, dance, and perform exclusive shows just for you. Interact in real-time and make your fantasies come true.

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Happy @taylorswift Album release day! LOVER IS GENIUS! When kelsey and i listened to “Soon You’ll Be Better,” We couldn’t help but cry. After she said, “ All I could think about was you.” The song is about Taylor’s mom having cancer and how she needed to get better because Taylor wouldn’t know what to do without her. All I could think of is being that way towards all my friends who have CF and chronic illnesses. It’s such a hard world to live in and having a chronic illness is so difficult. I couldn’t help but think of my friends and family watching me and thinking that exact same thing, soon you’ll be better because you have to. My life lately has been full of a lot of loss and it doesn’t get easier. I know I have the most special guardian angels watching over me every day and I’m just so grateful to have them in my life.💜 loss is hard but honestly, I wouldn’t be who I am without them in my life. I was truly blessed to have known them and call them my best friends (Lea & Annie) . I love you! 💕@Taylorswift , thank you for being a genius and a mastermind! #Lover is a masterpiece and it’s been on repeat and will be for now on! Thank you for being my inspiration and getting me through these difficult times! You are the best 💜💕 I’ll be in NYC on Tuesday...I wish the pop up was still up

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#cyster #fibro #cysticfibrosis #curecf #cfawareness #cf #organdonation #organdonationawareness #recycleyourself #donatelife #taylorswift #lungs4tiff #health #love #hope #TiffGotLungs #saltycysters #laugh #dream #cure #doublelungtransplant #transplant #Chronicloveclub #loveroutnow #SYBB

#cysticfibrosis #lungs4tiff #taylorswift #doublelungtransplant #dream #ts7 lover #lover tour #taylorswift taylor lurking #taylor nation #thankyou #cfirl #loss #SYBB #Lover out now #meredith grey #olivia benson #benjamin #cats #invisibleillness

Never stop exploring. I found this tako while wandering around Osaka. It made me happy. : #cysticfibrosis #cfirl #livelaughbreathe #areasontosmile #wanderlust #traveler #adventurer #japan #osaka #tako #takoyaki #radiatepositivity #positivevibes #dftba #honeymoon #honeymooninjapan https://www.instagram.com/p/BpNt2gwnsTI/?utm_source=ig_tumblr_share&igshid=64xt4qt0ypsg

#cysticfibrosis #cfirl #livelaughbreathe #areasontosmile #wanderlust #traveler #adventurer #japan #osaka #tako #takoyaki #radiatepositivity #positivevibes #dftba #honeymoon #honeymooninjapan

#me #it me #maule #maule factory #general aviation #GA #cfirl #CFI life

ONE. YEAR. AGO my family and friends got to hold me in their hands...literally! We got to hold and examine my old CF infected lungs. To say this wasn’t an emotional and remarkable day is so false! We had so crazy to really see these scared up lungs and thinking “how was I breathing?” “How was I staying alive?” Of course I had to say thank you for the 27.5 years of memories and life 💜 and a special thank you to my donor for giving me the gift of life and allowing me to get rid of those CF filled lungs and having healthy ones! ♻️ BECOME A DONOR AND SAVE UP TO 8 LIVES 💜 — • • • #TiffGotLungs #lungs4tiff #cysticfibrosis #cfawareness #curecf #doublelungtransplant #cfirl #saltycysters #youtube #cyster #fibro #love #laugh #hope #donatelife #organdonation #dream #donor #65roses #recycleyourself #taylorswift #thankful #justbreathe #spoonie #chronicloveclub #grateful #stanford #oldlungs #thankfor27years (at Stanford Health Care)

•18+ Adults Only

Watch Anya Live on Cam

Anya is live and ready to show you everything. Watch her strip, dance, and perform exclusive shows just for you. Interact in real-time and make your fantasies come true.

✓ Live Streaming✓ Interactive Chat✓ Private Shows✓ HD Quality

Anya is LIVE right now

FREE

Free to watch • No registration required • HD streaming

Goodnight, world! Today was such a long day. I had my last clinic visit for this course of IV antibiotics - my clinic does check-ups weekly while doing home IVs. I'll be completing the course tomorrow... just in time to fly to Deutschland! #cysticfibrosis #livelaughbreathe #cfirl #ivantibiotics #homeivs #portacath #oxygen #bedtime

#oxygen #homeivs #bedtime #ivantibiotics #cysticfibrosis #livelaughbreathe #cfirl #portacath

Tonight's treatment entertainment choice... Super Mario World and Pan's Labyrinth OST. I think it's gonna be a real good time. #cysticfibrosis #livelaughbreathe #cfirl #musiclover #gamer #gamergirl #snes #retrogaming #treatmenttime #cfawareness

#retrogaming #treatmenttime #gamergirl #livelaughbreathe #cfirl #cysticfibrosis #snes #cfawareness #musiclover #gamer

Behind-the-scenes of #cysticfibrosis. A night of fun means a day of recovery... and in last night's case, rushing to my oxygen machine. I'm thankful I was able to have a night of fun, but for now I rest so I'm ready for the next adventure! #cfawareness #livelaughbreathe #invisibleillness #chronicillness #cfirl #restday #adventureawaits #oxygen

#adventureawaits #restday #cfirl #chronicillness #livelaughbreathe #cfawareness #cysticfibrosis #oxygen #invisibleillness

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