Top Posts Tagged with #curecf

RISING UP FOR A DREAM - BY NICHOLAS KELLY, RD

Nicholas Kelly, dietitian, motivational speaker, author, DJ, artist, poet, dancer, advocate, and CF Warrior, shares the secrets to his freestyling "sauce.”

Enjoy his inspirational freestyle artistry entitled “Rise Up For A Dream,” and learn how you can empower and express your unique voice.

WATCH FULL CF COMMUNITY VOICES PODCAST:

Nicholas Kelly, dietitian, motivational speaker, author, DJ, artist, poet, dancer, advocate, and CF Warrior, shares the secrets to his frees

Find more from Nicholas Kelly @NicholasKellyRD on Twitter, Facebook, Instagram and Youtube.

CF Community Voices is made possible to date through grants from Chiesi USA, Genentech, and Viatris.

#cysticfibrosis #cfirl #comunidadfq #CFcommunity #65roses #adultswithcf #riseup #ihaveadream #cureCF #makeCFstandforCureFound #spokenword #poetry #Freestyling #motivationalspeaker #dietician #CFwellness #cfcommunityvoices #CFRI

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A few years ago I posted about my friend Amber who needed funds to be listed for a double lung transplant. She managed to fight and fight hard to get her health stable enough where she didnt need one anymore. Unfortunately as someone with Cystic Fibrosis, a lung transplant is inevitable. She is now back to the point of needing one. As of yesterday, she is officially on the list for new lungs! Congrats Amber. I LOVE YOU. <3

#AirForAmber #Cystic Fibrosis #cysticfibrosis #CF #double lung transplant #doublelungtransplant #65roses #65 roses #CureCF #Curr Cystic Fibrosis

Start Each Day With A Grateful Heart 💜|| Three years ago today I was placed on the double lung transplant list at Stanford! I had no dry runs, I was blessed to be stable for a lot of the time. I started to go downhill last year to the point I wasn't able to walk to the bathroom without 6L of oxygen and coughing to the point I puked. I was on IV antibiotics every 3 weeks and going in and out of the hospital for lung infection after lung infection. It was safe to say my CF lungs were getting tired. — It wasn't until Thanksgiving 🦃🍂when I absolutely knew it was time for lungs. When I couldn't eat my thanksgiving dinner because I couldn't breathe, I knew I needed lungs more than ever. On November 30th, 2016, after waiting almost 2 years and 8 months, I was blessed with the call for new beautiful lungs from my angel donor. I can't express my gratitude and love for my donor and their family for this gift. Please if you are not a donor, please register 💜 give someone the gift of life like my donor did for me because without them and the amazing surgeons, nurses, and doctors at Stanford I wouldn't be here! It's seriously the greatest gift I've ever received 🙌🏼😊 — #TiffGotLungs #lungs4tiff #cysticfibrosis #doublelungtransplant #cfirl #saltycysters #youtube #cyster #fibro #love #laugh #hope #donatelife #organdonation #cfawareness #dream #donor #curecf #65roses #recycleyourself #cure #taylorswift #thankful #blessed #pray #stanford

When your #squad has you in their palm of their hands (Literally 😜) Holding my old CF infected lungs was such a treat and emotional experience. Seeing the disease process was so surreal to think I actually was sorta breathing with those puppies! They were troopers for 27 years. Now I have beautiful new ones from my donor 💜 I thank them every day and their family. If you aren't a donor yet, make sure you go sign up! Save a life or 8! I wouldn't be here if it hadn't been for my donor 🌹 — If you want to support the Cystic Fibrosis Foundation please come Preorder some fun activewear from @saltycysters 💜 This will help towards a cure for this horrific disease. — www.etsy.com/shop/saltycysters — #TiffgotLungs #cysticfibrosis #saltycysters #doublelungtransplant #lungs4tiff #organdonationawareness #cfawareness #curecf #donatelife #love #live #selfless #donor #cfirl #taylorswift #squadgoals #lungs #stanford

#cysticfibrosis #donor #live #lungs #taylorswift #curecf #squad #doublelungtransplant #saltycysters #organdonationawareness #cfawareness #tiffgotlungs #selfless #cfirl #squadgoals #donatelife #stanford #love #lungs4tiff

I guess I checked them all off 😉 #TiffGotLungs 💁🏼💜 — if you want to help benefit the Cystic Fibrosis Foundation, please come visit @saltycysters swag! Link in @saltycysters bio! — #cysticfibrosis #lungs4tiff #saltycysters #doublelungtransplant #newlungs #love #bucketlist #stanford #taylorswift #love #laugh #dream #live #justbreathe #breathe #curecf #cffighter #cff #cfirl

#breathe #love #justbreathe #cysticfibrosis #stanford #curecf #doublelungtransplant #saltycysters #taylorswift #cff #live #cfirl #bucketlist #laugh #cffighter #tiffgotlungs #dream #newlungs #lungs4tiff

•18+ Adults Only

Watch Anya Live on Cam

Anya is live and ready to show you everything. Watch her strip, dance, and perform exclusive shows just for you. Interact in real-time and make your fantasies come true.

✓ Live Streaming✓ Interactive Chat✓ Private Shows✓ HD Quality

Anya is LIVE right now

FREE

Free to watch • No registration required • HD streaming

thank you @gracerosebauer @gracerosefoundation for the adorable hoodie & mask!! #gottabesafe #curecf #hoodie #maskup #adoptdontshop #ronan #lovemypup #pinkhairstyle 💖 (at Malibu, California) https://www.instagram.com/p/CFSkV4bDBmQ/?igshid=ngqmx3ln0ztw

#gottabesafe #curecf #hoodie #maskup #adoptdontshop #ronan #lovemypup #pinkhairstyle

When I met @gracerosebauer 4 years ago it was an absolute honor and I’m here to support her fight for a cure for #cysticfibrosis 🙏 Many of you know I dedicated #coughingupflowers to this beautiful soul who I love and admire very much💜 She is my absolute favorite #designer and also throws an amazing party! Thank you for the custom dress Grace I love it! 🥰 & thx for the vid @maximotv @Incredible meeting my #supernatural idols I watched that show for over a decade and hearing @loudenswainmusic @skylarstecker & @avakolker perform and the models were all fab!!➡️🌸🎶 #curecf (at SLS Hotel, a Luxury Collection Hotel, Beverly Hills) https://www.instagram.com/p/B2Xgn0JBbDa/?igshid=r96qwsqtxu25

#cysticfibrosis #coughingupflowers #designer #supernatural #curecf

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🌸 AVAILABLE NOW 🌸 #coughingupflowers Out everywhere online in a few hours and already in Europe! I dedicate this song to my beautiful friend @gracerosebauer and her fashion line that helps #curecf #fightcysticfibrosis ❤️💐 Hope you all enjoy my #newsingle for all of us who have or are yet to deal with #unrequitedlove #onesidedlove #hanahakidisease 🥺🌹#newmusicalert 🌼🌼🌼🌼🌼🌼🌼🌼🌼🌼🌼🌼🌼 JOIN ME LIVE @youtube at 9p PST FOR #LYRICVIDEO PREMIERE TONIGHT🎉🎉🎉🎉 https://www.instagram.com/p/B1e9wq8BD1R/?igshid=10m1qe9wtqv4v

#coughingupflowers #curecf #fightcysticfibrosis #newsingle #unrequitedlove #onesidedlove #hanahakidisease #newmusicalert #lyricvideo

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