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You really start to understand that the “angry black woman” and “mean lesbian” stereotype only exists to shame us for the fact we get reasonably upset about people wanting to horrifically abuse us indiscriminately. Let’s get meaner !
a funny thing about having conversations with people within institutions (academic in this case but also others) about gatekeeping, is that you end up having a conversation over and over in which you're like, "hey this alligator spike pit moat you have erected around your institution is keeping a lot of people out," and they're like, "well *I* navigated the alligator spike pit moat just fine," and you're like, "right. by dint of us having this conversation, you within the institution and me without, it is understood that you navigated the alligator spike pit moat. due to that being an inherent requirement of entering the institution," and they're like, "I don't think you understand the prestigious history of our alligator spike pit moat," and you're like, "is there a reason why there needs to be an alligator spike pit moat encircling the concept of higher education?" and they're like, "look, the alligator spike pit moat isn't for everyone. some people just aren't cut out for the alligator spike pit moat :)" and you're like, "right, yeah, like disabled people and people coming from poverty or unstable home environments or underserved communities or people dealing with difficult to navigate life events like pregnancy or abuse or prison or addiction or the death of a loved one, for example" and they're like, "how dare you imply that we are keeping those people out on purpose. it's their own problem if they can't wrestle the alligators and avoid the spikes while also disabled and/or poor and/or pregnant etc" and you're like, "well that seems evil," and they're like, "it sounds like maybe you're just bitter about the alligator spike pit moat because of your totally random individual experience with ONE bad alligator spike pit moat. have you considered therapy?" and you're like, "did you know that there's some patterns here in terms of how y'all are handling this stuff?" and they're like, "actually yes. we even have a department of alligator spike pit studies :)" and you're like, "that's great, how do I get access to and participate in those conversations?" and they're like, "well firstly you must cross the alligator spike pit moat"
if you can document that you have a medical condition that might make it challenging for you to navigate the alligator spike pit moat, they'll give you an extra 20 minutes to complete your navigation of the alligator spike pit moat
IMPORTANT: any injuries incurred as a result of navigating the alligator spike pit moat will be the sole responsibility of the injured parties. once you leave, the people who made you navigate the alligator spike pit moat and the institution that installed the alligator spike pit moat will never contact you again. except sometimes to ask you for more money.
My favourite thing about that show is how he treats servers. It was also the source of some very intense fantasies when I was a barista of him busting into my cafe, calling my boss a fucking idiot, then taking me against the broken dishwasher.
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Actually, fuck the myth of the Tower of Babel. The real beautiful utopia where we can all finally truly understand each other doesn't lie in sameness or uniformity, it lies in the giant and digital Rosetta Stone we are going to build and broadcast across the entire world
So, genuinely no hard feelings, I get where y'all are coming from, but that was actually kind of my entire point
The Rosetta Stone was and is real.
This is indisputable. You can go see the Rosetta Stone on display right now!! I'd say you could even it touch it, but there's museum glass in the way, so that the oils on human skin can't further degrade this 2,000-year-old stele, which is one of the most important surviving historical texts in the world.
The Tower of Babel is not real, and it never was.
The Tower of Babel is a millennia-old religious story about a mythological tower, which serves as a mythological explanation for the origin of different human languages. Yes, there are some religious historians who speculate that the myth was inspired by one or another physical tower, but no, that doesn't prove anything other than "this is how many people in this culture/time and place explained or understood that sort of event."
The Rosetta Stone, on the other hand, is an object of translation that actually exists
And this is a very urgent thing for us to remember, because a fluent speaker - and especially a fluent native speaker - of an endangered language is one of the rarest, most concentrated, and most fragile sources of knowledge in the world
Preserving and revitalizing endangered languages is a race against time. For many languages, especially Indigenous languages and languages from an oral tradition, the loss of each individual fluent speaker is a permanent loss of language
Almost half of the world's 7,000 languages are endangered! You can learn more about, and find resources and education on, the Endangered Language Project and similar organizations, especially ones that are Indigenous and respect knowledge sovereignty and traditional ownership
knowledge sovereignty: when it comes to language and traditional knowledge, knowledge sovereignty is the simple but super important principle that the speakers of a language and members of a culture should have full, independent control of their own traditional knowledge and knowledge systems.
For Indigenous languages in particular, sometimes knowledge sovereignty means certain language resources are closed to those outside the tribe, Nation, and/or culture - which is absolutely fair, given what white people have historically done and are still doing when it comes to stealing, and then fucking copyrighting, Indigenous traditional knowledge. (Related: Fuck Monsanto)
But good news - you can learn more about, support, and access community resources on language preservation at The Endangered Language Project here:
happy juneteenth but dont forget that prisoners are legally allowed to be subject to slave labor and also black people are disproportionately arrested and subjected to that legality. happy juneteenth but slavery still lives in america. america is still dependant on slave labor.
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Hgnfhhhhhhh I found out my balcony had an outlet so I brought snacks and my phone + charger to smoke a bit but of course. Of Course. My lighter doesn't wanna work GRRRRR I'm gonna!!!!!!!!!!!!!!!!!!! At least I can play mobile games somewhat outside now
I've seen lots of depictions of hearing aids and cochlear implants in writing and art, and very few of them actually match what that character would likely actually use. An especially common mistake is drawing hearing aids like they are wireless headphones, which is not how the vast majority of hearing aids look.
Here's a guide on hearing device types, uses, and how to better decide which one your character would have!
(Reminder that this is not medical advice, or perfectly tailored to every single situation. I am not an audiologist, just a Deaf person on tumblr.)
Hearing Aids:
[Plain Text: Hearing Aids]
There are many different types of hearing aids. Which type someone uses will depend on their hearing curve, the features they want, and the type of hearing loss.
1. Receiver in Canal.
Receiver in Canal (RIC) hearing aids are the newest type, and currently the most commonly prescribed. They have a small behind-the-ear component with directional microphones and processors, and are connected by a thin clear wire to an in-ear speaker, which is covered by a piece called the dome.
RIC are most commonly prescribed for: mild to moderate hearing loss (although they can be useful for some people with severe hearing loss), high-frequency hearing loss, noise-induced hearing loss, tinnitus, and auditory processing disorder. RIC are also available over the counter.
Benefits: small and discrete, fairly powerful, best integrated noise filtering systems, highest mapping customizability.
Drawbacks: sizing is not infinitely customizable, not good for more severe deafness, usually don't come in fun colors, difficult to use with low dexterity.
There are several different dome types, as I mentioned. Domes are soft silicone or plastic pieces fitted in diameter to the ear canal, but come in a few different shapes depending on the type of hearing loss. I'll talk about the most common ones, but there are a few other rarer custom types.
Open/Vented domes have slits cut in the silicone. They are the weakest at keeping sound trapped, but have the lowest occlusion effect (hearing your own voice loudly). They are good for mild to moderate hearing loss, but they can cause a lot of feedback, especially at higher frequencies, so they're most useful for high-frequency hearing losses. The amount of vents in the dome can be adjusted to reduce leakage.
Closed domes do not have slits or have very few slits. They keep more sound trapped, but have higher occlusion. They are good for moderate broad-spectrum and low-frequency hearing loss, since they allow less high-frequency noise to escape.
Power domes have no slits and often have multiple layers for maximum amplification. They have the highest occlusion effect, although people using power domes typically have hearing loss in the range of 60-80 dB, so occlusion is often necessary to hear one's own voice. Power domes can make the ear pressure feel unbalanced since there are no vents.
2. In the Ear / Completely in Canal.
In the Ear (ITE) and Completely in Canal (CIC) hearing aids are a less popular, but available, type. They feature a solid combined processor and speaker that sits in the ear canal. There is usually a small wire or clear plastic loop that fits along the curve of the outer ear both to keep it in place and to pull it out.
ITE/CIC are most commonly prescribed for: mild-moderate hearing loss when RIC is not preferred or available.
Benefits: no behind the ear component can be more comfortable, microphones in the ear have highest directionality, subtle.
Drawbacks: fewer features available, higher occlusion effect, can fall out more easily.
(There are some ITEs that have a behind-the-ear component for volume/power control and structural support, but the processor, microphones, and speakers are all in the canal piece.)
3. Behind the Ear.
Behind the Ear (BTE) are the most powerful type of hearing aid. The microphones, speaker, and processor are all present in the behind-ear component, which is larger than other types of hearing aids. This component is connected by a replaceable plastic tube to a mold, which is custom-fit to the user's ear and allows for maximum sound retention/amplification. Like domes, there are several types of molds.
BTE are most commonly prescribed for: severe to profound hearing loss, moderate or higher low-frequency hearing loss, children.
Benefits: sizing is fully customized, easy to use with lower dexterity, good for athletics (less likely to fall out), highest aesthetic customization, most powerful amplification.
Drawbacks: larger size, high occlusion, higher risk of ear infections, molds must be replaced as ear shape changes, tubes must be replaced regularly.
There are lots of different mold types. An ear mold is custom fit by creating a cast of the user's canal and ear shell. More or less of the "shell" of the ear can be covered by the mold. All molds have a vent hole to allow moisture to escape, but some molds have more holes cut into them to allow airflow or reduce occlusion. Some molds are hollow, while others are solid. (Molds can also come in lots of fun colors, including marbled or glittery, although insurance won't always cover these.)
There are too many types of molds and considerations to really get into exact types here, but if you look up behind the ear hearing aids there are tons of references online. [One type of mold I've seen a lot in real life but that I can't find the name of online are sort of square-shaped solid (often colored) plastic with lots of holes in them. They remind me of a waffle.] In general, the more severe the hearing loss, the less "air space" there's going to be in the mold.
4. Bone Conduction.
Bone Conduction hearing aids (BCHA) are probably the closest-looking in real life to those headphone ones, although many of the over-the-counter devices calling themselves BCHAs that look like headphones are in fact just bone conduction headphones. Prescribed BCHAs are often two individual rectangular devices, attached via stickers or a headband. There are a few that go behind the ear, although no component of the aid is in the canal.
BCHAs are bone conduction rather than air conduction, which means they get the sound to the cochlea by vibrating the skull bones rather than sending sound through the middle ear. BCHAs are often temporary aids (see BAHA in the CI section of this post).
BCHA are most commonly prescribed for: severe conductive or mixed hearing loss, microtia/atresia, and young children.
Benefits: more powerful and safer long-term for conductive hearing loss, typically no in-ear or over-ear component.
Drawbacks: require an external component (stickers or headband) to stay attached.
5. Airpods / Actually just headphones
Did you know, Airpods were recently approved by the FDA as over-the-counter hearing devices? The noise filtering technology makes smart wireless headphones a possible alternative for mild hearing loss, auditory processing disorder, tinnitus, or anyone who can't get prescription hearing aids. These are not a long-term solution, nor are they used by audiologists, but for people who just need a bit of a boost, having their headphones in all the time might be their way of navigating the world.
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All hearing aid types have their benefits and drawbacks, and no aid will ever be perfect for someone. Even the best hearing aids available can't make someone become Hearing. Some people who are severely to profoundly deaf report hearing aids giving them around 60-80% of what a hearing person can hear, and this number improves with decreasing severity of hearing loss. Still, nearly all d/Deaf/hoh people struggle to some degree with auditory processing. They may use hearing aids to give them general awareness of background noise (eg fire alarms), or for a boost while lip-reading, even if they don't help in understanding noise more generally. Hearing aids can also die or malfunction, removing the benefits they provide.
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Cochlear Implants:
[Plain Text: Cochlear Implants]
Cochlear Implants, or CI, are surgically implanted devices that stimulate the cochlea.
More on CI in one second, because I promised a return to BAHAs, which are a type of surgically implanted hearing aids. They get to go in this section because they are implants.
BAHA stands for bone anchored hearing aid (as opposed to BCHA, which stands for bone conduction). BAHA are the long-term alternative to BCHAs. A titanium plate is anchored to the skull, and an external hearing aid component attaches to the plate and vibrates it.
BAHA are most commonly prescribed for: severe to profound conductive hearing loss, microtia/atresia. (One of the major use cases for BAHA is Treacher-Collins Syndrome, which often causes bilateral microtia. Since the hearing loss is purely conductive, and traditional hearing aids do not typically fit people with microtia even without atresia, BCHA/BAHA are the best aids.)
Back to CIs. Unlike BAHAs, cochlear implants are implanted into the cochlea to directly stimulate the auditory nerve. They bypass the outer, middle, and inner ear systems, so they are useful for any type of hearing loss.
In order to qualify for a CI, one needs profound hearing loss across all or most frequencies, and the presence of both the cochlea and the auditory nerve (CI won't work without those structures). Someone can qualify for a CI in one ear but not the other; even if someone is qualified to receive implants in both ears, they're expensive and the surgery has risks, so many bilaterally deaf people have only one implant.
In the United States, CIs are approved starting at 9 months old, but not any younger. (This is a problem for auditory development--although CI are often billed as a "cure" or "complete treatment" to deafness, the reality is that even bilateral CI users who received speech and auditory therapy from the moment their devices were programmed still lag behind hearing peers in auditory development, because they are deaf. But that's part of a larger conversation regarding deaf development and audism.)
CIs have a small disc that magnetically attaches to the skull near the implant site. That disc transmits the sound through the bone, which is then transmitted to the auditory nerve. Usually, the disc is connected to a wire, which runs to a behind-the-ear processor piece. CIs have a couple different types, just like hearing aids. I'll run through them pretty quickly.
1. "Button" CI.
These are fairly new. They only have the magnetic disc; all the processors and microphones are inside it. They're less visible, but less powerful.
2. Behind the ear microphone.
The BTE component contains the microphones and processors. There is a hook to keep it in place on the ear, but no part of the CI goes into the ear canal. These have similar directional power to BTE hearing aids.
3. In-ear microphone.
The processors are on a behind-the-ear component, but they receive signal from a microphone positioned at the opening of the ear canal. These give the best directional sound filtering, since they receive the auditory input from the same place as a hearing person, often with the benefits of the shape of the outer ear.
4. Mixed type CI + hearing aid.
These are also very new! Previous CI techniques, and many surgeons today, destroy residual hearing, so when the CI processor is disconnected, the user receives no auditory input, even if they had some before getting a CI. However, some new techniques can preserve residual hearing, and the cochlear implant can be combined with a hearing aid. This device looks like a BTE hearing aid with either a mold or power dome, but also connected by a wire to the magnetic disc of a CI.
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What type of CI a person has depends on the technology when they were implanted, what sound quality they want, or what they can afford.
The sound from CIs don't match how hearing people hear things. CI have way fewer neural connections than the cochlea has. Bilateral CI is often more effective for oralism than unilateral, but even then, CIs do not replicate natural hearing.
A CI can be implanted at any age, although it's most "effective" in infancy or adults with new-onset hearing loss, rather than people who have grown up d/Deaf. Getting a CI in adulthood is a very personal choice and can have a lot of meaning for a Deaf person.
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Gene Therapy:
[Plain Text: Gene Therapy]
This post has gone on long enough, and this isn't a hearing assistive device, but it is something to consider in a sci-fi or post-modern setting, and something we (the Deaf community) have to deal with right now.
There are currently new therapies (around 3 years in trial) that target OTOF mutations that cause severe to profound congenital deafness. OTOF mutations cause the loss of a protein that turns cilia movement in the cochlea into neural signals. The gene therapy introduces the gene that codes for this protein into the inner ear.
A small study on around 20 children, teens, and young adults with profound hearing loss (>100 dB) saw hearing curves change to 56 dB +/- 30 dB. I couldn't get the raw data because I couldn't access the study, but that means the average participant is still moderately hard of hearing and still needs hearing aids and accommodations. Depending on the metrics for calculating that error, there was likely at least one participant who remained severely to profoundly deaf after the gene therapy, and no participants became medically hearing.
We still have no data on if this gene therapy lasts forever or what kind of side effects it has. It also only works for a specific class of OTOF mutations, which account for many cases of congenital genetic deafness, but not all. Every single study on the gene therapy is produced by one company. This technology has not yet been peer-reviewed or tested for long enough. Nevertheless, hearing people are treating this as a cure, that the Deaf community doesn't want.
If a deaf person wants access to a technology like this, that is again their choice. Forcing this onto infants and children without autonomy or the ability to make an informed decision is horrible. The push to "cure" deafness goes hand-in-hand with the destruction of Deaf culture. It is eugenics. If you're going to include gene therapy or some other magical "fix" to deafness in your story, think about that.
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game dev: we make deep, meaningful, games with real messages. we don’t want our games to be just mindless and feel good - we make games to say something about the world we live in
community: hey this bit seems to be kind of weirdly racist
game dev: actually we aren’t saying anything and our games are just for fun and there is absolutely no correlation between this and anything in the real world
I often talk about reality checking and going along with it when helping someone deal with delusions, but I felt as if I didn’t really make it clear to what I meant when I said it.
Recently I saw a post similar to “how to sneakily give your delusional friend a reality check when they told you not to” and honestly, that’ll just make us lose trust for you. Because we can tell when you do that.
[Image IDs: Image #1: Flowchart titled “My friend is experiencing a delusion!”
First box: Have they asked you to give them reality checks when they have a delusion. Green “yes” leads to a green box reading: Reality Check. Pink “no” leads to a pink box reading: Let it be / Go Along With It. Black “no, but im still worried” leads to a box reading: Have you asked if you can give them reality checks and they said?
Green “yes” leads to a green box reading: Reality Check. Pink “no” leads to a pink box reading: Let it be / Go Along With It. Black “they said no but im still worried” leads to box reading: Have you asked if there is anything else you can do instead.
Green “yes” leads to green box reading: Do that instead. Pink “no” leads to a pink box reading: Let it be / Go Along With It.
Image #2: Pink box with text reading: What Letting it Be / Going Along With It Is Not: (red “X” bullet points)
adding new information to the delusion / trying to send your friend deeper into the delusion
“that must be scary to believe something that isn’t real”
“keep that to yourself, the more you talk about it the more you’ll encourage yourself”
dismissing your friend’s delusions, saying “everyone thinks like that once in awhile.”
trying to distract your friend from their delusion or act as if it’s a game
What Letting it Be / Going Along With It Is: (blue checkmark bullet points)
allowing your friend to vent or express themselves ( sometimes just talking about their delusions out loud can help them question it )
“I’m so sorry that you’re going through that”
encouraging your friend to express their delusions through poetry, song, art, or other non-harmful things they enjoy
“If that becomes too over whelming for you, you can call me and ask for comfort or a distraction”
allowing your delusional friend to feel safe around you, allowing them to healthily express themselves
Image #3: Green box with text reading: What Reality Checking Is Not: (red “X” bullet points)
“Snap out of it, it’s just a delusion.”
“That’s impossible.”
“Think about it for a second, then you’ll snap out of it”
forcing your friend into the hospital
calling the police on your friend
trying to fix or stop the delusion
What Reality Checking Is: (blue “checkmark” bullet points)
“Could you describe the evidence you have for your belief?”
“How firm are you with this belief? Would you be okay with other suggestions on what could be happening?”
“You’re going to be okay, what you’re fearing won’t hurt you.”
“Can we take a step back? Is what you’re going through effecting those around you?”
“Has what you believe happened to anyone else? What is the likeliness of this being real?”
Helping your friend question the delusion or become aware of how the delusion is affecting them.
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