maurysiek (any/all pronouns)
there's joy to exploring life; it's a joy i want to share; digital art is how
blog skins, 2D digital art, fanart
queer, neurodivergent, fandom old
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“Inclusive community arts festival!” “Everybody welcome!” “Events for all!”
No access info for any of the venues
Box office is inaccessible
Google “[festival name] accessibility”; get info on their “accessible pricing” (pay £1 less if you want to). No mention of free tickets for essential carers
Do a lot of disability detective work; most venues don’t have wheelchair access
One claims to be accessible, look inside: “we’re an accessible venue. There are three steps to get in, but we can help you with those”.
If it's okay for me to add, my favourite (aka most rage inducing):
We have people who can carry you up the stairs
Even worse than "3 steps but we can help you!" what do you mean you're going to carry someone up the 1 to 2 FLIGHTS of stairs? What?
and also you just KNOW they wouldn't. They're imagining someone who can't go up stairs being a waifish 90 pound grandma or child cancer patient. Most wheelchair users I see are heavy enough that it's absurd and frankly offensive to say that they can "just carry you up the stairs."
I had this at uni. The LGBT society had inaccessible events and when I pointed it out they told me that they could carry me up the flight of stairs.
So I carefully explained how I have a manual handling plan that sets out how I can safely be moved and that I cannot just be lifted by a random stranger who isn’t familiar with my disability. And that even if they got me up the stairs, my wheelchair is twice as heavy and there is no way they’d get it up the stairs.
I asked them, knowing that, what was their plan once I was upstairs, just lay me in a corner somewhere and hope I didn’t get stepped on*? Cause that doesn’t sound like a good party
It didn’t change anything. Events continued to be in the same venue, and they stopped trying to include me at all.
*other risks include: suffocation, pressure sores, infections and muscular skeletal injuries but I figured that was a bit too complex to explain.
and let's pretend it's entirely possible to lift a wheelchair user up stairs.... so many wheelchairs are extremely fragile and most people only have one. repairs take months and replacements can take years. that's time where, for many people, someone can't leave their bed.
so. you want to bring a heavy, fragile powerchair upstairs? a powerchair that, if you drop it, could mean... failing out of school, losing a job (and unemployment for months-years), dying of pressure sores? it's not low stakes.
even custom manual wheelchairs can be very fragile. my manual wheelchair might not survive being dropped down a few stairs depending on how it's dropped.
This is so true. It’s been a while since I’ve had a manual chair, but Complex Rehab Technology powerchairs are like endangered animals that die of stress if you look at them funny. Day to day use in their natural habitat and they’re mostly fine, but if you drop anything that’s a very expensive mistake (the controller alone on my chair costs £3000, it’s not unheard of for a whole wheelchair to cost upwards of £20,000)
Because of that price tag, in the UK most people who rely on NHS funding for a CRT powerchair don’t have access to funding for a backup chair. I’d imagine this is similar in other places. Without my chair I’m completely housebound with no independent mobility.
That means if you drop and break my chair I can’t get to my workplace, can’t access healthcare, do my shopping, sit in the garden, visit my elderly relatives or housebound friends, or anything at all that means leaving the flat.
It can take so long to get new parts for a powerchair and even longer to get assessed for a whole new chair. Where I live if you can’t get to the wheelchair clinic (say because someone threw your only means of mobility down a flight of stairs) you’re waiting even longer for the assessment to get prescribed a new chair and the wait for any new part to be fitted is also longer because there are only so many engineers, OTs and physios and making house calls takes much longer per visit.
Also like… if you trip and drop a 200kg powerchair on yourself then you’ll probably get experience first hand just how shitty the world is to wheelchair users. Because ouch.
it really irks me when people complain that so many of the autism diagnostic criteria and evaluations focus on external predictors rather than internal experiences.
so many autistic people (likely most) are diagnosed in early childhood. I was diagnosed at the age of three. I could not tell you what I struggled with and where. I was diagnosed based on external predictors rather than internal experiences (though that diagnosis did consider how those external predictors related to my internal experiences!)
the criteria should be expanded to include the experiences of older autistic people with the ability to self reflect but you can't eliminate the criteria that are externally visible.
those externally visible criteria aren't there because they want to define autism based on its impacts on others, they're there because that is frequently the only way you can tell.
hopefully not derailing (tell me if am & can delete) but!! like! autism be developmental (!!) disability that inherently affect social communication abilities as one of (if not THE) its core features!
great many cases gonna be noticed in early developmental period (childhood)!!
great many cases also going affect someone communication ability tell you what they struggle with & where & why!
n by that mean. nonverbal ppl especially those without functional communication. people w language disorders & complex communication needs in general. some people w comorbid intellectual and or cognitive disabilities. n like. in general people w inherent symptoms of autism that lead them be diagnosed w level 3 autism / equivalent.
(plus many of these autistic children also grow into autistic adults who still cannot tell u what they struggle w & where & why!)
I want to add that the criteria is worded in a very vague way and the adult caregivers sometimes don't understand what it's supposed to mean — so there should be a version of questionnaire that asks in more specific ways, too.
like, when I was being late-diagnosed for adhd and the doctor heard that at 3-years-old I didn't yet talk, the doctor was surprised why no one took me to a doctor back then, since everyone knows - people are told - that children who are late to start talking are supposed to be seen by a doctor — except, to my family, that wasn't late, it was normal. others in the family learned to talk at that age, too.
Being visibly disabled in the current community is a fascinating experience. Somehow you get to be the most visible part of the community and yet simultaneously completely invisible. People will tell you you're seen as the default and yet even spaces that call themselves "accessible" seemingly forget entirely that wheeled mobility aid users might need to use them too, or treat you as an afterthought. Disability related gatherings will be absolutely shocked if you turn up with a bulky mobility aid like a power chair or have a particularly noticeable visible difference, as if they never thought that people like you actually existed in the real world and might share a space with them. Disability related merch will be plastered in invisible disability slogans but people will look at you like you're from outer space if you ask if they have anything about disabilities that aren't invisible. They tell you about how they saw someone with a disability vaguely similar to yours on TV once, so you don't need more awareness.
All the while abled people just continue to act like you don't exist unless you can be "inspirational", or you're inconvenient to them, or you look so different that they think they can get away with treating you like an animal.
wish people remember that like. forget to eat, will sudden remember not eat after whole day, not liking food, struggling w chores like laundry n dishes n house cleaning n grocery shopping hating doing it put it off doing it, finding those supposedly “simple” stuff harder than many so called “advanced / skilled / hard / complicated” stuff… be pretty common lower support needs autistic & adhd experience actually n lots people struggle with that actually
1. see this so many times, a lower support needs autistic / adhd person who expected live normal among Ableds talk about struggle w day to day n be so exhausted every day n so many (so many!!!!) similar lower support needs autistic / adhd ppl in notes n comments etc talk abt be similar & feel so broken n failure n alone etc bc no one talk abt it. honestly so heartbreaking n frustrating for me knowing it common LrSN experience
it so common!! so many people struggle with it! but despite be so common, ppl not really talk about it abled ppl don’t n many LrSN ppl also don’t bc embarrassed / don’t know to / been shut down n shamed before / don’t realize not everyone like this. no one know how common of experience it be. despite be so common no one rly have good easily accessible solution to it
2.
n bc am higher support needs person n this be higher support needs blog inevitably going talk about how this impact higher support needs people bc it absolutely does
bc ppl not talk abt this experience n so not realize how common this be among LrSN ppl, AND ppl talk even less abt more severely disabled people & ppl w mid n high support needs, the General Nondisabled World (which many LrSN ppl made to exist in) kick us to our own separate lil contained hidden place to point no one realize we exist or should be put in your world view. so some LrSN (autistic/adhd) ppl inevitably think they higher support needs than they actually be
ppl see struggle w these things n auto label it / themselves who struggle / other ppl as mid or often even high support needs,
bc compare to General Nondisabled World it feel very big n the distress feel very big n the struggle feel very big n it is (!), it be higher than what General Nondisabled World demand them to be. but bc that General Nondisabled World on purpose hide the rest of us who cannot even pretend to blend into n fake it until we make it there no comparison to the whole disability spectrum.
so us mid & high support needs ppl get pushed out even further, where words for us no longer recognizable for us, we forgotten even further.
try seek community using our own terms n words n experiences n descriptions n quick shorthands bc don’t want to / too invasive to / too long to / shouldn’t have to list out every single thing we need support on n be essentially told hi now you too much too high too difficult for even high support needs
low support need get push to mid support needs, mid support needs to adapt get push to high support needs, n high support needs people left no where to go once again
it not about compare to nondisabled ppl bc to them we all too much. it about overall disabled people
n it not just abt you yourself. it about wider it about all
have heard many low support needs ppl come to me n say they been listening to me & other ppl w high support needs & advocating with us centering us in their advocacy n believe we deserve support n through that. they recognize & get more okay n comfy with admit & accommodate their own support needs n deserve support too
support the most marginalized n entire community will feel good effect it trickle up
so
tldr like
low support needs not mean no support needs, unfortunately low support needs not mean no struggle it can often mean immense struggle just like mid n high support needs ppl. struggle with clean house laundry cooking shopping n forget to eat until suddenly it end of day n can’t keep job n constant in burn out all the time n severe depression anxiety ocd etc all be really really common lower support needs autistic / adhd experience in current world unfortunately n deserve more recognition n support n be talk abt more than it be getting right now but it cant just be solely from high support needs people.
n advocate abt mid n high support needs ppl not take away support n recognition from low support needs ppl it increases it
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actually I think you should be normal about ordinary citizens of authoritarian countries and yes that applies even to that country you're thinking of right now
631 word Hazbin Hotel ficlet, set in the world of of my Hellspawn kidfic series.
~
It was a dreary, drizzly day that had darkened early and turned stormy as night drew near. Now fat raindrops were throwing themselves in rolling ratatat waves against the big picture window of the Hotel library, making the view of the city wobble and ripple under the intermittent flashes of blue-white lightning that sent rumbles of thunder rattling the window glass.
There was a fire flickering under the heavy mantle, the green tinge to the flames giving away that Alastor had lit it by magic to warm the room. Warming things in a different way was the cathedral radio atop the mantle, its ornate face aglow with the golden incandescence of vacuum tubes—or at least of a lightbulb playing their ghost while transistors did the real work within. Turned down low, the rich aural fabric of slow smooth jazz wove itself through the room, shot through with the faint velvet hum of electromagnetic power.
That fabric lay like a blanket over Alastor where he lounged comfortably across a sofa near the fire, one hand holing the book he was reading, the other occupying itself by twirling the stubborn cowlick curl in the front of his son’s hair where Elio had fallen asleep in his lap some half hour ago. At the table, pens scribbled and a borrowed typewriter occasionally dinged as Lucia and Sasha worked on a project they had decided would be way cooler if completed entirely in analogue—a decision which, when told to Husk, had prompted him to look over at Alastor and say, “Yeah, these are your kids.”
He’d pretended, melodramatically, to be offended by that assessment.
The tickity-tapping of Sasha’s typing stopped. “Hey, Awa?”
“Mm?” Alastor acknowledged, letting his shadow turn the page of his book for him so he didn’t have to stop playing with Elio’s hair.
“What’d you call the thing how me and Daddy don’t really pronounce our R’s at the end a words?”
“You have non-rhotic accents,” Alastor answered. “As does Cherri.”
“Thanks.” She resumed typing.
Lucia leaned over to peer curiously at her sister’s page.
A flashbang burst of light from outside shook the hotel with the sound of the sky being rent apart, atom from atom, made the girls jump, Alastor’s ears flatten, and Elio startle awake, clutching at Alastor’s shirt as all the lights went out.
Alastor took a deep breath, exhaled, and vanished his book in a little pop of verdant sparks so he could use both hands to gently but insistently pry Elio’s sharp-clawed grip loose. “This is not the first time the hotel has been struck by lightning,” Alastor said with haughty calm, his shadow stretching completely the wrong direction towards the fire, now the only source of light in the room, to twiddle the radio knobs, bringing it back to warmly glowing life and turning the music up to better cover the sounds of the storm. “Nor, I’m sure, will it be the last.”
“Well, I guess we’re done with homework,” Lucia said brightly. “Can’t write in the dark.”
Elio shot her a skeptical look then glanced pointedly at the fire.
“We have night vis—”
Lucia clamped a hand over her sister’s mouth, then quickly pulled it away again. “Don’t fuckin’ lick me!”
“You really brought that one on yourself, cher,” Alastor noted, conjuring a lantern to hand and nudging Elio the rest of the way out of his lap so he could sit up. “But your sister is right that we all see quite well in the dark, and,” he lit the lantern with a snap of his fingers, holding it up to illuminate his own puckish grin, “you did say you wanted to go all analogue with this project.”
Lucia sighed and slid out of her chair to go take the lantern from him.
473 word Hazbin Hotel ficlet, set in the world of of my Hellspawn kidfic series.
~
The twins had set themselves side by side on the same piano bench, wincing in unison every time either of them hit the wrong note, giggling as they played their halting still-clumsy way through a song written for four hands they were attempting with five—one of Lucia’s being on dedicated sheet music duty.
“Well, that didn’t completely suck!” Alastor said brightly, materializing from shadow to lean on the piano. “And you were almost at tempo. Quite the improvement over last night.”
“Thanks!” both girls chirped, Sasha giving a flutter of her wings.
“Wanna play with us?” Lucia offered, looking up at Alastor with big shiny eyes ad a hopeful little smile.
With a hum of consideration and a dramatic loll of his head, Alastor looked down at the ivories. “I think six hands is quite enough for one keyboard, my dears.”
“Donchu know how to play any other instruments?” Sasha asked, cocking her head in the same direction.
“If you kinda suck at bass,” Lucia said thoughtfully, looking to her sister, “and we kinda suck at piano, why don’t you play that, and we can all kinda suck together so’s maybe we’ll suck less tomorrow?”
Alastor blinked twice and shoved himself away from the piano with a shrug. “Well, I can’t argue with that logic!”
He conjured a somewhat garishly red-stained bass for himself in an alarmingly large plume of emerald flame.
When Angel got home, he found himself greeted by the discordant hootenanny of several people trying to play the same song on instruments they didn’t really know how to play.
“What’ve we got goin’ on in here?” he asked, half laughing, over the noise.
Everyone stopped playing, not all at quite the same time—the twins still at the piano, Alastor with his bass, Husk with a saxophone, Charlie with a violin she was currently holding as a fiddle, Cherri with an electric guitar Angel had seen before but not in several years, Vaggie with a fucking harp of all things, Niffty with some kind of pan flute, and Elio with a harmonica he was chewing on more than playing.
“We’re having a jam session!” the twins announced proudly.
“Specifically on instruments we’re not terribly well practiced at,” Alastor added.
Husk leveled a playful smirk at Angel. “Haven’t you mentioned being put in band class?”
“Yeah, for one semester!” Angel laughed. “Like a century ago!”
“Aw, c’mon!” Cherri goaded. “What’d you play?”
“Trombone,” Angel admitted, still laughing.
“A perfect addition to our ensemble!” Alastor declared.
“I don’t have one!” Angel objected without any real ardency.
Alastor’s ever-present grin widened as he conjured a trombone to hand. “Now you do.”
“Okay, okay.” Angel took the proffered trombone. “Just remember, whatever godawful noises I’m about to make with this thing, you brought this on yourself.”
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there will never be anything as funny as the mutual disbelief between long form and short form fic writers about each other's style.
short form writers look at people writing 100k+ fics as though this is some sort of talent given as part of a fae bargain, that the commitment required shows some sort of ungodly mental fortitude.
meanwhile long form writers look at people writing 1000 word one shots like god I would cut off my left nipple to be able to say anything concisely. i would love to play with multiple ideas. free me from the shackles of this child I have birthed. i love them but I now must take them to t-ball and doctor's appointments and they're going to destroy everything I own.
Did you know that AO3 allows fics with homicide in them? There’s a whole tag for Major Character Death and even more tags so you can find exactly what kind of character death you want to read.
Don’t they know that murder is illegal? You just know there are a bunch of homicidal maniacs out there who love to read those stories. They write them, too, in between killing people.
Anyone can read the stories on AO3! Kids can read them! They’re getting exposed to stabbing, poisoning, even guns! And they’re writing the heroes doing the killing, too! That’s basically telling kids it’s okay to go out and murder their families. It’s promoting violence and encouraging homicide and if we don’t do something about it soon, you’ll be murdered next!
Im enjoying the longevity of tumblrs recontextualization style of humor. a seemingly innocuous post followed by like "posts that a gnome would make" or like "are you a phone"
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…..not even six hours later i got an offer of a well paying full time long-term job with free room and board in queens in nyc, allowing me independence and a way to escape an abusive situation and an unhealthy environment
likes charge reblogs cast, folks, this is the good luck post
the last time I reblogged this post right before I got a great job, in a permanent work-from-home position, with benefits, retirement, and a salary literally 3x what I was making before, doing something I really like.
important reminder that most people you follow online are significantly lamer than you think they are including me. and if you feel insecure comparing yourself to someone online: DON'T. theyre probably also lame and weird. most people on the internet are
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