What I feel people frequently forget about autistic special interests is that they aren't always information based. They may simply be visual or mental
Someone may have a special interest in a show, but instead of that meaning that they will talk about that show often, it may mean they watch that show extremely frequently.
Special interests are ways of regulating, not simply encyclopedias we have in our heads. Sometimes it's watching something frequently. Maybe only listening to one genre of music, maybe it's a collection, maybe it's an action. I'm tired of it only being seen as autistic people's personal encyclopedias
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Recovering from autistic burnout as a high-masking adult:
To recover, you literally need to manually learn skills that most people learn as a toddler
You need to learn what makes your body uncomfortable, and what to do to fix it
If you are high-masking, that usually means that you have learned to ignore every distress signal your body sends unless it is a distress signal that a neurotypical person would recognize. People have likely been unintentionally gaslighting you about your lived experience your entire life
If you feel bad or panicked for no reason, stop and try to pay attention to your body. Are you tense? You are likely feeling physical pain somewhere. If you've been gaslit about your pain your entire life, you might not be able to identify it.
Go through a sensory checklist.
SIGHT: Try closing and covering your eyes. If this gives you relief, the lights are probably too bright. You may also need differently-colored lights
SOUND: Cover your ears. Does this give you relief? If so, you may need earplugs or noise canceling headphones. You may also benefit from a neutral or pleasant background noise, like soft music or brown noise.
TOUCH: Are your clothes uncomfortable? Your chair? Your body? Do you feel greasy, like you need a shower? Do you need softer, sensory-friendly clothing?
TASTE: Do you need to brush your teeth or tongue? Would chewing on something help?
SMELL: Is there a strong or unpleasant smell in the room? Do you need to clean or empty a trash can? Would an air purifier help? Would a pleasant smell like a candle help?
INTEROCEPTION: Are you hungry? Thirsty? Tired? How is your posture? Are any of your muscles tight or sore? Scan your body slowly from head to feet, tensing and loosening each group of muscles. Going for a walk or doing a series of quick stretches may help a lot.
Learning how to do this stuff is not intuitive, if you've had an entire lifetime of gaslighting telling you that everything hurting you isn't a big deal and you're being dramatic over nothing.
This takes time, it takes work, it's not intuitive, and it's hard. Most people forget how hard it is, because they learned this as toddlers.
If you want to recover, you need to relearn your whole body. And get over your idea of "normal" and just wear the damn sunglasses and put on the headphones. If people stare, fuck em. You're disabled and they can deal with that.
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I cannot overstate how much the modern conversion therapy movement is about 50 people who all have names and addresses and who simply will. not. fuck. off.
It feels like those people want to establish a norm that they think should be how people are. Everyone one who doesn't fit in, should be terrorized until they give up being different, because for them it is a choice. They cannot deny autism if people have clear and open visible symptoms, but those of us who mostly by masking can get through somehow, we are seen as those who choose to be different.
And honestly, I can imagine someone like Berry getting herself diagnosis was a planned thing to use it later for publicity. It is not that difficult to get assessed as autistic if you do enough research about the assessment procedures.
Where would you place your gender on a scale from 1 (man) to 9 (woman)?
1 – exclusively boy/man
2
3
4
5 – both equally, OR neither
6
7
8
9 – exclusively girl/woman
I can't place my gender on this scale
I don't know/still figuring things out
Voting ended onApr 1
Obviously gender is more complex than a one-dimensional scale, but answer as best you can. This is asking only about leaning, not intensity. Feel free to elaborate in the tags!
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We ask your questions anonymously so you don’t have to! Submissions are open on the 1st and 15th of the month.
Rules: There are 30 questions corresponding to each day in April. Answer each question in your own separate post. You can answer all or just as many of them as you want. Make sure you tag your responses #30daysofautismacceptance and you can put them in the various autism tags too (#actually autistic, #autistic, #autism etc). Please help spread this around before the start of April! And with that, I hope everyone enjoys the questions and has fun with this year's autism month prompts. (Prompts under the read more button)
April 2nd: Are there some things in life that you either learned much later than your neurotypical peers or not at all?
April 1st: What age did you find out you were autistic? If you have a diagnosis, what was the diagnosis process like, if you can remember it?
April 3rd: Do you feel like being autistic makes you easier to take advantage of? More gullible perhaps? Talk about a time where this happened to you.
April 4th: Talk about online social interaction. Do you feel that being able to interact with others online, such as on social media, has been a positive or negative thing for you? Do you think its easier, harder, about the same as in person communication?
April 5th: Do you often interact with other autistic people? Online or in person? Do you find it harder, easier, about the same difficulty as with neurotypical people?
April 6th: Do you feel that autism affects the way that you view/interact with media? In what ways? Talk about it.
April 7th: Talk about autistic characters in media. What are your favorite canon autistic characters? Are there any characters that you view as autistic, that aren't officially so? What about them makes you think they are autistic? How do you relate to them? What would you like to see in autistic characters in the future?
April 8th: Do you think, since the time you found out you were autistic, that society's views on autism has gotten worse, better, or about the same? In what ways?
April 9th: Are you ever prevented from doing things because of sensory issues? For example, clothes you'd want to wear, places you'd like to go, etc. How does it make you feel? Talk about it.
April 10th: Are holidays/birthdays/similar social gatherings something that you find difficult in any way as an autistic person? Talk about it.
April 11th: Do you find doctor's/dentist's/etc appointments difficult as an autistic person? Why? Do you have trouble booking appointments or managing insurance? Do you have someone that helps with this? Do you have someone come to appointments to help advocate for you?
April 12th: Do you struggle with a sense of loneliness/social isolation? Has it become better, worse or about the same since you were younger? Is there anything that helps with it?
April 13th: Have you ever had to (or wanted to) correct someone's misconception about autism? What happened? Talk about it.
April 14th: Do you have issues with change? From small changes like a disruption to your daily routine, to big changes like a new boss at work for example. How does it affect you? Is there anything that helps with it?
April 15th: Talk about special interests. What is your current special interest? What do you like about it? Do you dislike anything about having special interests? Talk about past special interests.
April 16th: What are some accommodations that you would either like to have or already have to help you in your everyday life as an autistic person? If you could change an aspect of society to make things easier for you as an autistic person, what would you change?
April 17th: How do you feel about various autism organizations, such as ASAN, Autistic Women's and Nonbinary Network, Autism Speaks, etc
April 18th: Have you had trouble, now or in the past, with people not respecting your boundaries as an autistic person? For instance, people not listening when you don't like hugs or being touched etc.
April 19th: Talk about speech. Are you nonverbal? Do you use AAC? What is it like if you are? If not, do you have trouble controlling the tone of your voice? Do people often misread you based on your tone (thinking you're angry when you're not for example)? Do you have trouble controlling the volume of your voice, especially when excited about something? Do you tend to speak in a monotone?
April 20th: Give a shoutout to some of your favorite fellow autistic people. Could be an actor, writer, youtuber, a family member, another tumblr blog, etc. What do you like about them and/or their content (assuming they're an actor/youtuber/etc)? Would you recommend other people follow them?
April 21st: Do you have trouble keeping up with personal hygiene? Bathing, brushing your teeth, flossing, etc? Is it because of sensory reasons? Is there anything you've found helps with this?
April 22nd: If you had to describe to someone who knows nothing about autism what it feels like/what its like to be autistic, what would you say?
April 23rd: Are you generally a talkative person or a quiet person? Do you feel like this is influenced by being autistic? Do you tend to infodump about things you are interested in? Do you feel like people don't listen to you?
April 24th: Do you have trouble interpreting other people's intentions? Is it hard for you to tell when someone is deliberately being mean to you? Do you have trouble picking up when someone is lying to you or trying to trick you? Talk about it.
April 25th: Do you feel like you got the support you needed growing up as an autistic person? From your parents/teachers/other adults? What did they do to support you? What do you feel you would have needed that you didn't get support wise? Do you feel like you have the support you need at the age you are now?
April 26th: Lets talk about food. Are there certain foods that you cannot eat due to sensory reasons? Do you tend to avoid spice? Do you eat a lot of the same foods over and over? Do you have a same food that you tend to eat often because its safe or familiar?
April 27th: (If the first question doesn't apply to you, you answer the second one. Or if you want you can answer both) Are you lgbtq+? Do you feel like there's any intersection between both identities? Alternatively, if you're not: have you experienced ableism before? What was the situation in which it occurred? What did you do? Have you ever had someone start treating you differently after they found out you were autistic?
April 28th: Do you prefer person first language (example: person with autism) or identity first language (autistic person)? Why?
April 29th: Let's talk about relationships, both platonic and romantic. How are your relationships with your family (parents/siblings/etc)? Are they generally supportive and understanding of you as an autistic person? If you have (non-autistic) siblings, do you feel as though you were treated differently from them growing up or even now? What about friends? Is making friends something you find hard or easy? How does being autistic affect your friendships? Are you now or have you ever been in a romantic relationship? Have your partners been understanding of your needs as an autistic person? In what ways does being autistic affect your relationship?
April 30th: Autistic pride. What does being autistic mean to you? Are you proud to be autistic? Why? What would you like your final message of autism acceptance month to be?
So my dash is full of people complaining about the new reblog policy which is good. Some add a @staff, but that is not enough. So here is a better way to make sure that Tumblr really understands that people hate this.
Don't post any original content. Only post about this awful policy and how much you hate it. Add @staff and @photomatt in every post. They might not read it, but they might notice the amount if enough people do it.
Don't reblog any posts except posts about the awful reblog policy. Yeah, I know that is difficult, but you can like posts and keep stuff you want to reblog for later, put it in a queue.
Write feedback and complaints to https://www.tumblr.com/support. make sure they understand that you hate it and that it changes what you post.
For those who follow me, sorry, but I will follow my own advice. I will tag the stuff with #tumblr in case you don't want to see it. But if you want to keep Tumblr in a way that is attractive to people who post original content, art, photos, fiction, you should consider doing the same.
The reblog chain is one of the things that makes Tumblr unlike anywhere else. All the notes on reblogs are attributed to the original post, no matter which branch people actually liked or reblogged. We want to keep encouraging conversations, and give contributors the recognition they deserve.
Soon, you'll be able to like, reblog, or reply to any part of a reblog chain, and that note will go to that reblog's author. Each reblog will have its own counts, instead of one aggregated number from every version of the post. And yes, you’ll be able to like multiple posts in one chain.
If a reblog doesn't add anything, the love flows up to the last person in the chain who did. Your post doesn't lose notes just because people spread it quietly.
Past notes will stay on the original post — we're only changing what happens from here on out. Retroactively re-attributing all of them would be... a lot.
This is just the beginning. More changes are coming as we keep building this out – stay tuned!
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I have had to socialize for two days due to a work related event and I am absolutely exhausted. When I was younger I attended lots of those events and I was also exhausted afterwards, but not that much. The older I get, the worse I can cope. I realize it has to do something with masking. The fact that I've choose to and been able to reduce the amount of socializing for my job in the last few years might contribute to the exhaustion as well, I am just not used to it anymore. But I've also wonder whether age plays a role. Does masking become harder with age?
honestly it’s kind of upsetting how much of the autism experience is just being shamed out expressing yourself in any way that’s normal for you and learning to keep everything to yourself so you’re not shamed for being weird and then being shamed for being so quiet because it’s also weird to be quiet but if you tell this to anyone else they’ll say “why do you care so much what people think” and that’s when the ancient ape part of your brain gets ready to beat them to death
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The first asexual person I met outside of the internet was a 65 year old woman.
I’d been interning with her as an artist/executive assistant for some time. To put a long story short she’d developed a tremor that kept her from doing a certain amount of studio work, so in between sending emails and invoices for her I’d chip in and help with line art or drafting on longer projects. A lot of it was the two of us sitting in her basement studio, doing our own thing, waiting for the phone to ring. We got to talking a lot. I’d just moved across the country and was still finding my footing.
There was a handyman she had over occasionally — he was a personal friend who enjoyed her company more than she enjoyed his. She didn’t dislike him by any means, but he definitely had feelings for her that she didn’t reciprocate. One day, after he’d come over to repair something-or-other and left, she and I started talking about relationships.
She asked if I had a boyfriend. I told her I wasn’t interested in being in a relationship with anyone and that I’d never had a desire to be in a relationship. Admittedly, I was bracing for the “You’ll meet the right person someday” response. I knew it generally came from a place of care, but it never changed how much I dreaded to hear it. I really respected my mentor and I was prepared to nod along to whatever response she gave me. Instead of anything I expected her to say, she just kind of nodded and said, “Me neither. I think I’m — what’s the term — asexual?”
I was ecstatic. I told her I was asexual, too. I saw her sigh in relief, the same way I did. I couldn’t believe it.
We didn’t get much work done that day, we just started talking about our experiences. She’d been married once when she was younger and even during that period of her life her disinterest in a sexual relationship didn’t change. She had a roommate after graduating college who confessed to having feelings for her and she had to tell her “It’s not that I don’t like girls, it’s that I don’t like anybody.” The roommate harbored enough bitterness over this that they had to split ways. Her mother told her that she would quote “rather have a gay daughter than a daughter who didn’t fancy anyone at all” unquote.
I didn’t have nearly as many experiences as she did, but I was able to share my own for the first time. I shared how it was easier to say I was taking time to work on myself than to say I had no interest in being in a relationship. We talked about the words “You’ll meet the right person someday” and “You’ll know when you’re in love” and “Don’t worry, one day you’ll meet some guy that changes everything.” As if something was broken.
“I’ve been alive for sixty five years,” my mentor told me, “and I’ve never felt like I was missing something, even if everybody told me I was.”
Currently, my mentor lives with her parrot, her cats, and her backyard-wildlife pals in a house that she owns. She makes art and hosts community art groups and volunteers at care homes and is the most self-fulfilled woman I’ve ever met. And she loves her life. She loves the people she knows and they love her, too. If I could be half as cool as she is when I grow up, I think that’d be pretty amazing.
“Asexuality” isn’t a problem to be fixed or a phase to grow out of. Sometimes you’re fifteen and sometimes you’re sixty-five. I knew in my heart that older asexual people existed but it changed me completely to meet one. We were here before and we always will be.