Metamorphosis and We:

“You’re not coping” Ok here’s the deal; I’ll stop feeling this anger when we have a national memorial (we don’t) or a cdc equipped to stop it from happening again (we don’t) or a population that takes a deadly disease seriously BEFORE it effects them personally (WE DON’T!)

- A job

- Good relationship with father

- Neurotypical brain

- Ability to top

I am someone’s biggest fear. My life is so bad to them, that people are afraid to look at me and people like me. To engage with anything associated with M.E. Because it is too scary to imagine yourself as severe. To imagine yourself as bedbound and this sick. Too terrifying to see yourself in my position. So you just don’t look.

Do you not realize this is why we speak out? Why we warn people who are mild/moderate to stop overexerting yourself before you become like us?

And I am not here to bash on anyone who does look away. Because I know why they do. I know I’ve looked away too at times. It’s human nature to want to try to protect yourself. There is no anger on my end from that.

However, avoidance, though natural and morally neutral, won’t save you, or anyone else from becoming severe. Actual knowledge about your disease might.

What is ME/CFS?

Treatment suggestions- Bateman Horne Center

People who crawl around their houses because the hallways aren't accessible.

People who cannot just push through inaccessibility, cannot walk up a couple of stairs if the elevators are down.

People who cannot be spontaneous because they are reliant on an attendant pushing them.