@thebibliosphere maybe in more mainstream circles, but the ADHD community that developed the word (and yes, we developed it) was in cahoots with autistic communities. That’s where you get the neurodivergence rather than mental illness perspective, or “in another time, none of this was even a problem for other people.”
The reason why, if people would just listen to ADHD folks, is not that other neurodivergent people can’t have overlapping mental illness symptoms, it’s that it isn’t a symptom. It’s a community term.
Take hyperfocus and special interest for example. Why did the two terms develop despite a large overlap between communities? Because hyperfocus was developed outside of the psychiatric system, within the ADHD community. As in, people with ADHD talking about their lives and finding commonalities. Special interest is in some official materials. Hyperfocus might well not even exist to psychologists.
ADHD is unique in that most of us don’t even get therapy. ADHD specialists are few and far between (and usually child focused) and the government doesn’t even think of us as disabled. There’s no listing for ADHD in the bluebook for ssi. So most people with ADHD get a medication through a psychiatrist and that’s it, despite the evidence showing that medication is most effective in combination with therapy.
So a group that largely doesn’t even get told what even symptoms they do have when they diagnosed get tossed into the world and told to cope on their lonesome. The concept might match up to what psychologists call “emotional dysregulation” but that’s not what it is. It’s rejection. Most kids with ADHD don’t have symptoms that scare people, they have symptoms that annoy others. The type of reaction most common to that is getting rebuffed over and over again for something that pretty much all of us can’t really help: having ADHD. It’s not just a feeling it’s the fact that in the ADHD community, the type of lives we lead fit a certain picture. And if therapists weren’t going to help? Then we were going to help ourselves and in a way that didn’t put the onus on us (based on the theory of neurodivergence) to change. Neurodivergence isn’t just an umbrella term, it’s a political activist term that expresses a frustration with society. RSD describes how hard it is for people with ADHD to exist and live around neurotypical society.
It’s not for anyone else to water down or to soften the blow by saying it’s our fault. If we just tried harder. If we just got a thicker skin. If we just cared less.
If you read psychologists talking about the term, they describe it as a phrase we use to describe our experiences. They don’t think it’s medically accurate but that’s not the point. We don’t care. They don’t take care of us to begin with. Christ, the number of people I’ve gently coaxed into fidgeting around me because all they know is suppression and hiding. No one tells us it’s okay to be us, period.
The ADHD community- not just people who have adhd but the actual people developing language and concepts to help each other- does a metric fuck ton of work to be okay. Not good, just okay. And people steal our notes all the time. Hyperfixations have never been a part of clinical criteria, it’s OUR word we made up because they refused to ask us why we talked in long rambling sentences. RSD is OUR phrase that we made up because no one cares about ADHD problems, why kids with ADHD lash our and cry lots and struggle with “developmental milestones.” There’s no funding to lengthen our lifespans, come up with specialized ADHD therapies, do more than mention us in passing. All our issues are attributed to depression and anxiety.
No one considers that ADHD was the first thing that ever happens to us.
The mental illness community hardly even remembers we exist, it’s a polarized conversation between people who have anxiety and depression and people who have things like psychosis. The autistic community is the closest ally of the ADHD community and that’s partially because of how many people are just both. It helps that autistic people don’t care what psychologists say about ADHD, the autistic community has been charting its own course outside of the mental health care system for a long time now.
There’s this false idea that because people with ADHD are ignored, we’re privileged for it. That we have the best outcomes. Lots of people don’t graduate highschool when they have ADHD. Nevermind college. A doctorate? A vanishing amount. So why do people want to take our tools, that we had to make to survive, away from us? Use them wrong, without the context and history? Dilute them to meaningless umbrella terms? Refuse to engage with us to actually understand what we mean by them? Tell us that we’re being greedy, or probably ableist and don’t want to be associated with the real crazies? Newsflash: neurodivergent people are often the only people that willingly socialize with people with ADHD. We don’t have the freedom to be ableist and push other people away for petty bullshit. The people that do are the most loud and vocal, but they’re also mainstream and don’t have anything to do with the community that first used RSD and hyperfixation.
I can pass a neurotypical pretty well. I can write these posts and describe my experiences without doubting myself because I was there. But lots of people with ADHD won’t be as articulate because they don’t have the same experiences with the community I’ve had, even on tumblr.
People already have emotional dysregulation. That only got popular after people were like “why can’t I use rsd?” Emotional dysregulation is a clinical term. RSD is a colloquial phrase for something we go through. It’s not your business to decide if it’s different enough to count as “ours” because we made the stick, it’s our stick, you can’t just decide to take it alway because you like it. Lots of people could have a “favorite person” but it means something specific to the community of people with BPD with a history and a host of connotations- but literally the term means something that anyone could do as a result of trauma and getting overly attached. Lots of people could have anxiety attacks because of their symptoms, that doesn’t make panic attacks most relevant to people with panic disorder.
So why is it ADHD specifically you want to be like “no, hey, you can’t do that. You can’t have terms no one else can use. You can’t decide, as a creator of the term, how it gets used in the future, or that we’d be stealing it” exactly?
Just. The absolute gall. I’m very good at passing a someone without ADHD. I’m good at writing long blocks of text. But I’m at a loss for words on how you could just … take from us … and act like we don’t matter in this conversation. Talking over us, belittling us, erasing us. You’re getting told again and again that this is extremely important to the ADHD community and you just. Won’t. Listen. How do I explain to you that you should care about other people? This is a boundary. Not a gate. A boundary for our friggen house.
I know most people with ADHD can’t read this but I can’t even try for a witty summary. Know your ADHD history. Know what neurodivergence means, what it really means. Just because people can’t categorize us in their worldview of mental illness doesn’t mean we don’t matter.