"drug seeking" as a patient label one of the most dogshit stupid concepts of all time. fuuuck everybody look out this guy came in here expecting medical treatment. better watch out in case he goes to a restaurant and starts food seeking

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@fyeahdisabilityrights
"drug seeking" as a patient label one of the most dogshit stupid concepts of all time. fuuuck everybody look out this guy came in here expecting medical treatment. better watch out in case he goes to a restaurant and starts food seeking

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Autism & Victimization
Somewhere I read that a symptom of autism/ ASD is a tendency to feel victimized. Feel. And I couldnāt get that out of my head because there is a difference between saying thatĀ and saying āa tendency to beā victimized. SayingĀ āfeelā carries the implication that the victimization is in oneās head.Ā
Thereās probably a reason people with ASD feel victimized:
1.Ā Autistic children are more likely to be bullied.Ā
2.Ā Autistic children are more likely to be abused.
3.Ā Autistic children are more likely to experience sexual abuse and the abuse is less likely to be recognized because symptoms of being abused are often misinterpreted as ānormalā autistic behavior.Ā
4.Ā Autistics are more likely to be sexually assaulted because they are often taught compliance from a young age in therapies like ABA.
[Edit with more links on this topic]: Info On Autism & Sexual Assault Personal Essay On Why Autistics Are Vulnerable ABA Teaches Compliance Not Consent
5.Ā Autistics are more likely to be unemployed.
6.Ā Employers discriminate against autism, autistics are more likely to be bullied by their coworkers, and many autistics lose their jobs because of it.
7.Ā Schools find loopholes to discriminate against autistic children.Ā
8.Ā Autistiscs have a higher risk of experiencing police brutality.Ā
9.Ā Autistics are being murdered by their own caregivers, and the murderer is often given a lighter sentence because the victim was viewed as a burden.
10.Ā Autistics suffer because they are not given effective medical care.
So, thereās the problem. Not that autistics have a tendency to āfeelā victimized.
Hey, itās my old stuff.
hate how I will have a very simple thing (tagging flashing lights is a bare minimum of accessibility) and people crawl outta the fuckin woodworks to tell me how stupid that is like bro
Banging my head against a wall literally youāre correct and it is blatantly ableist to say otherwise
[Image ID: Two Tumblr hashtags which read "like hey guys. people can die from that." and "it isnt stupid people can fucking DIE if you dont tag for it". /End ID]
reblog this version please
Tags: please remember epileptics like me. Seizures can kill people at any point and not just from injuries they cause. Literally itās called sudden unexpected death by epilepsy. additional tag: disability awareness
they donāt teach people with EDs how to actually respond to diet talk because to do so would mean cultivating and embracing rage. you canāt do that within a medico-psychiatric industry that mandates compliance at all costs. I would very much like to start a workshop for channeling & expressing rage, including and especially toward carceral institutions and authorities, for ppl with EDs⦠like I want to teach you how to terrify your doctor
Genuinely being a self advocate is 99% channelling pure rage
#HOW are u supposed to respond???#i get hit w diet talk all the time at work and i hate it i hate it#but im sooooo bad at feeling and channeling rage. how do u self advocate!!
with people who do not have medical/economic/carceral power over you:
walk away/physically remove yourself rather than engage
"i am not interested in your thoughts on my lunch"
"I am not interested in your thoughts on my [or someone else's] body"
"did she gain weight?" "it isn't our business/it isn't relevant to you."
"why are you eating that?" "because i'm hungry."
with doctors:
"i choose to decline my weight" (you can always choose to decline your weight as an outpatient)
"i am requesting a larger blood pressure cuff in order to receive an accurate reading"
"i am here to discuss [x]. my time and yours would be better spent addressing my present concerns, rather than speculating on others."
"i am not interested in discussing my eating habits, because it is not currently a priority to change them."
these scripts are YMMV. people are horrible, doctors are abusive, and not all situations can be escaped. grey rocking, putting up an affective/communicative wall for all but the most basic/removed exchanges, is a technique many people use with abusers until they can safely remove themselves; this can be helpful, too. but these scripts are perhaps a starting point to shut down and redirect harmful diet/weight loss talk & refuse social pressure to surveil other peoples' bodies and your own.
not gonna lie i increasingly just find myself thinking... what are single disabled people supposed to do? basically everything assumes that either a) you have never been independent and are fully reliant on caregivers, whether this is parents or a paid carer that you are somehow funding, or b) you have a partner who can look after you, drive you to appointments, pick you up after you've had sedation, advocate for you, be your proxy, do the housework when you're sick, push your wheelchair, be your companion when travelling (e.g. handle the luggage if you're using a wheelchair), etc
and like. first of all even for people with partners that's assuming they're abled themselves and can handle all that. you can't assume that. secondly: what about people who are single, who live alone, who will probably always do so
"get someone to keep an eye on you when you start this new medication" who. "don't over exert yourself" nobody else is going to do the tasks. "this can be a walker or a transit wheelchair so your partner can push you when you get tired" my what
like it's not a coincidence that amatonormativity discussions started / developed in care contexts because it is so often the assumption that intimate partners will fill these needs. but I feel like this is often discussed in the context of "and this is too much to ask and puts too much unpaid labour on the unqualified partner" which is not untrue and needs discussing but like. also. what about people are single, independent adults who are neither emotionally nor geographically close to their siblings etc and are not Disabled Enough to have a paid carer (a group that grows as resources shrink). like are they just fucked then. they're on their own. punishment for failing to be enough of an adult to couple up.

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just a reminder that it's now disability pride month.
disabled people have had their benefits torn to fuckin shreds under this administration, both from being disabled and simply from being poor as most of us are.
remember those that have fucking died from it. remember the ones still surviving it.
and maybe check in on your disabled friends?
Its weird how you get more disabled over time. Like, most people i know with a disability actually have like eight disabilities and a lot of them slowed up later as a result of compensating for the earlier ones. This brought to you by me filling out a demographics form and wondering when i got to the point of checking that many damn boxes
āYou get used to itā true but misleading because someday your back problems are gonna inexplicably cause stomach problems. And then you get used to the stomach problems but your thumbs start hurting because you had to do so much work on your phone lying in weird positions while waiting for the stomach problems to go away. And there are way more distractions on your phone too so while you always had adhd this just makes it more annoying/prevalent-
Anyway hi disabled people with one million conditions i love you and i hope youre having a good day with minimal pain/inconvenience
this disability pride i wanna keep in mind the disabled people who are in a difficult situation because of their disability. people who were made homeless because of their disability, people who are stuck in abusive homes and can't get out because of their disability. people whose disability was used against them to facilitate abuse, like taking away their autonomy - medical, legal, or otherwise - taking charge of their finances, taking advantage of their vulnerabilities. it's reasonable to think that a lot of disabled people, especially disabled people in difficult circumstances such of these, would struggle to connect with the idea of disability pride. but pride or otherwise, this month should also be disability solidarity month. this month and every month is for all disabled people in all sorts of circumstances
TIL that airplane pilots would announce that Jonas Salk was on board and passengers would burst into applause. Hotels routinely would upgrade him into their penthouse suites.
via reddit.com
For those who donāt know and donāt want to click thru to find out: Jonas Salk is the reason we in North America no longer live in terror of polio. He also refused to patent or profit from his vaccine. He also spent the last years of his life researching a vaccine for AIDS, long before that was cool and back when a lot of people were secretly hoping it really would just kill all the gays. So youāre damn right people applauded and gave free upgrades.
Reblogging again because this time I did click through, and because of the times in which we live: Jonas Salk was Jewish, and the child of immigrants.Ā
ājune is over so now itās gay wrath monthā blah blah reminder that july is disability pride month and is often ignored and disregarded!! funnel that wrath into advocating for your disabled peers and amplifying their voices

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I think at bare minimum all medical professionals need to make sure they are treating patients with more kindness and respect than grifters. if you go to a doctor and they treat you like shit, humiliate you, and send you home without any information on your body or access to treatment, then health-grifters' offers will start to feel more tempting by simply giving the most basic performance of taking you seriously and caring about your well-being. grifters should be condemned for manipulating and exploiting sick people, and doctors also play a role in whether grifts thrive or are successfully identified and rejected. genuine baseline human respect, and beginning a relationship with a patient by earning (rather than demanding) trust, goes a long way.
"But what if people will pretend to need this accessibility option so they can be lazy! People who don't need it will use it!!" I don't actually care
I dont care if 9/10 of the people who use the wheelchair ramp arent actually in wheelchairs. As long as the 1 person who needs it has access to it.
I dont care if 9/10 people who use the automatic push button on the library door can actually push the door open themselves. As long as the 1 person who the door is too heavy for gets to use it.
I dont care if 9/10 people who buy the can tab opener, or the little guitar clamp that holds the chords for you, or the hand grip that helps you hold chop sticks, don't need any of it and just get it to "be lazy". As long as the one disabled person who needs it gets access to it.
I do not care. Oh my GOD I do not care. As long as there's a disabled person on this planet who the accessibility device will benefit, the accessibility device is necessary.
Also, if you're so worried about people being "lazy" by using accessibility devices, MORE worried than you are about disabled (visibly or not) people not having access to them, you have unchecked ableism you need to work through.
Lazy usually means "efficiency driven" or "executive function issues."
We have got to stop using it to imply "malingering".
And yeah, the curb cut effect is great.
It means I can get around more easily in my wheelchair most places, but also large package deliveries are so much easier on the driver.
before we start posting that july is gay wrath month letās consider that july is disability pride month first and foremost. the ābe gay do crimesā memes can wait
before this post breaches containment and people start going āwhy not both heheheā i want you to seriously consider the very long history of disabled peopleās existence being pushed aside and/or seen as secondary. i promise you itās not going to hurt to hold onto the memes and give disabled people space for visibility and celebration.
i say this as a disabled trans person whose trans identity is made front-and-center to the (mainly cis) people who know iām trans but my identity as a disabled person is brushed off by the very same people.
Thinking about this deep underlying frustration that I have in conversations about ableism, disability advocacy etc, and part of it is that soooo many nondisabled people see my statements or opinions or anecdotes and think that I am looking to have a debate or argument. And it's like..
My credentials on this topic are that I have decades of lived experience as a chronically ill disabled psychiatrized person, and also that I have read hundreds of thousands (maybe millions?) of words of medical studies, research articles, legal frameworks, human rights initiatives, essay by activists, advocacy organization platforms, and the history of disability rights.
Your credentials are that you are a Person Who Thinks They Knows Stuff.
We are not the same. Your opinion is irrelevant to me, because the degree to which you possess less information than I do makes it laughable that you would have anything new or of value to add to this conversation.
The degree to which this is my area of expertise makes any discussion we have about it which does not first acknowledge the disparity in our levels of expertise inherently disrespectful to me as a person.
And you can't even tell, because you are so ableist that you don't see my experience as expertise to begin with.
In fucking credible
my radical belief is that the disabled and the elderly should be paid at least the average cost of living, regardless of the life they lived. regardless if they ever worked or what work they did or if they were responsible with their choices in life or not

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fyi things like insulin, hearing aids, wheelchairs, glasses costing money at all is a form of structural ableism
disabled people should not have to pay to live their lives like everyone else. and in the case of insulin, disabled people should not have to pay to Not Fucking Die
In case anyone finds it helpful because mobility aids are horrifically expensive and inaccessibleā¦
And for those people who have access to mobility devices but might benefit from a second chair they can abuse without risking expensive damageā¦
Erik Kondo has made a website, Open Source Innovations, that details plans for DIY wheelchairs. These wheelchairs can be made from common materials like wood, plastic, and pvc. They are lightweight and can be custom fit to the user allowing from the same degree of movement you would get from a custom chair. And they are durable and easily repairable. (he has been stress testing his latest design by dropping it down stairs, dropping it out of a car, launching it across a driveway, and throwing it off a deck). Its 12lbs and I think he said its was in the $200 ish range for parts.
He also is working on cheap, open source, accessible designs for beach chairs, off road chairs, motorized attachments (think smart drive), and so on. Plus he skateboards in his wheelchair. Cool dude, helpful info, pass it on.
It's incredibly sad people have to resort to this, but it's a damn good resource. Use it. Spread awareness. Maybe one day people with physical disabilities won't need DIYs like this. But until then, reblog and share.
This is Accessibility!
That's so amazing! It is unfortunate that so many people will need this, but very very cool that it exists
That other link seems to be broken.
Thank you so much for putting the working one!
I will add it to my original reblog as well.