This blog is for posting about my health issues so that I’m not burdening people in my life with the thoughts that I just need to get out of my head.
🩵 he/him, trans, queer
🩵 mentally ill- chronic major depressive disorder, social anxiety disorder, sensory processing disorder, complex post traumatic stress disorder
🩵 physically disabled- IBS, chronic migraines, Fibromyalgia, PMOS (PCOS), severe POTS, hiatal hernia, suspected hEDS (I fit the diagnostic criteria, but I’m between health insurances right now and can’t seek proper diagnosis)
Full list of symptoms that might be discussed here below the cut
🩵 irritable bowel syndrome & hiatal hernia: diarrhea, constipation, bowel pain, food sensitivities, crying, bleeding, nausea, not being able to eat much at once
🩵 migraines: pain so bad it actually makes me want to bash my head into something, cluster headaches (different but I didn’t realize that until recently), nausea, sensory sensitivity, ocular migraines
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This might be stupid but with the whole “fireworks bad” debate that always comes up around the Fourth of July, it’s really been bothering me that people just keep bringing up veterans as the only people we should be worried about 🫠 like yes but what about others with PTSD, sensory processing issues, autism, insomnia, etc? Is it because y’all aren’t thinking about the rest of the disabled community, or because you view veterans as more “valid” in their disabilities because of their military service? Idk it just feels weird to me
sometimes when chronically ill/disabled/neurodivergent people say “I can’t do this thing” they really mean “I can technically do this thing I guess, but not without pretty significant repercussions” and I really need more fully-abled people to understand the validity of that
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Me, sweating, cold all over, seeing spots, moments away from vomiting or passing out before I sit down: this definitely isn’t too sick to work I can’t ask to go home early
I don’t know what to do. I don’t make enough money to qualify for state/federal assistance with health insurance, but I also don’t make enough money to afford health insurance that actually covers anything myself, and yet I make too much money to qualify for disability. Edit: apparently I may qualify but I can’t afford to go to the doctors to get the paperwork I need without insurance (and also it estimates that I wouldn’t know if I’m accepted or denied until next year).
I need to see specialists. I need to take medications that will be $100-$200+ every 3 months without insurance. I need to go to therapy. I need to be able to go to the ER or urgent care sometimes.
Even if I just try to do the bare minimum to keep myself alive, without insurance I literally can’t do that. I don’t know what to do.
I want people to know that if I’m at the point of showing pain, it’s bad. It’s at least an 8. I’m at the point when a healthy person would go to the hospital.
Just because I look ok doesn’t mean I’m not in pain. Nobody wants to be around someone who is complaining 24/7, so I don’t complain- or I try not to. Just because I look ok doesn’t mean I don’t need accommodations at work, or that I’m well enough to do the things I need or want to do.
Hey fibro folks, May is Fibromyalgia Awareness Month (amongst others) so what would you like people to know about fibromyalgia and what it's like living with this illness?
I'm going to do another #Things We Wish Able-Bodied People Knew series like I did last year so drop a comment, reblog, or send an ask (anon asks are open if you feel more comfortable with that).
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Do y’all come close to passing out whenever you orgasm or is that just me 😭 it’s been happening way more often recently and idk if I should bring it up to a doctor because I don’t know that they’d actually be able to do anything about it
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I fucking hate being disabled. It’s so fucking isolating. I don’t get to have idle conversations & get to know my coworkers because when they’re standing around between tasks I have to sit because I’m in pain or because my heart rate needs to lower. So instead I have to be the weird guy who leaves the room. The one who always looks pissed off, because I don’t always have the energy to keep my face light when I’m just trying not to cry.
reminder that there are many physical disabilities that involve the brain. disorders can be both neurological and psychiatric, but they are two separate categories of illness.
in discussions about brain dysfunction, people usually think of neurodiversity and mental illness. neurological disorders that are primarily physical are often left out of the conversation entirely.
many neurological conditions are not psychiatric, and treating the two as synonymous is denying the lived experiences of a large percentage of the physically disabled population.