Enby endo

It must be nice to sit around all day/sleep all day.

I wish I could sit around all day and not work.

I wish I could sleep all the time.

They don't want to sleep as much as we have to. They'd feel sick and sluggish.

They don't want to sit around the house all day not doing anything. They'd be bored out of their fucking skull.

It's so unbelievably fucking frustrating, but there's a fundamental lack of understanding.

They liken our lives to a vacation, imagining that it's fun and relaxing and we can do whatever fun things we want to all the time.

is how October is going for you so far 𓂃

Context

England, NHS

I have chronic pain and I'm going to the doctors to find out why. My blood tests came back clear. In my last appointment, I was told that getting a diagnosis wouldn't be helpful.

I then went on to explain that to get accommodations at work and school (particularly university with the Disabled Students Allowance) a diagnosis is often needed. So whilst it isn't important in terms if treatment, it is in terms of, you know, life. She brushed me off.

And now that we have them, who else would just enjoy these things? Who would use them to solve a problem they have with some activities? Or in some outfits?

Coach people to create a nice ergonomic grip handle that fits their exact hand. Then build on that to create a shape out of wax. I would make mine look like a pigeon.

Then measuring to figure out everyone's exact perfect cane length. Many cane users would know that anyways, but sometimes you can't get exactly what you want, commercially. Give them a range of stains to choose from.

Get the wax cast, get the heads attached. Toss on some stoppers on the end and voila. Badass, perfectly custom walking canes. What treasures.

1. i have to remember to actually take it and i’m a silly goose with no short term memory for anything other than academia

2. i still have a hormonal imbalance so i’m adding more estrogen to a body that already produces way too much

3. i still have other symptoms of both my period and endo. example: chronic fatigue. i slept for 13 hours a few days ago and have been napping every single day for 3 hours halfway through. and also limb pain. it’s just There. and then i have to play a game of am i taking a blood clot (because i have a clotting disorder too) or am i just Paining. and also shit mental health. why is it spiking up and down

4. now i’m convinced i’m faking my endo, leading me to potentially go off my pill and then get slapped in the face with it

I put a mini squishmallow on my cane! Introducing Austin the Avocado! My boyfriend got him for me. I also have my loop earplugs because those are an essential for me.

I am actually very sensitive to noise in general. Especially high pitched loud noises. I get headaches very easily and am diagnosed with migraines. That's why I wear headphones and/or ear plugs. I definitely recommend the loop earplugs!