thing I am proud of: when the doctor started going on a weird rant about long covid not being real I paused and listened to his nonsense for a bit and then very calmly said, in a polite and curious tone, "you don't believe in post-viral illness?" and he like. stammered a bunch and was like OH WELL I'M NOT SAYING -- I DON'T...I just think ..! and backpedaled awkwardly while I just sat there like :3c interesting :3c thank you so much for clarifying your stance on this :3c
an important skill for chronically ill people to develop is the ability to treat the doctor as though they are simply a person you are interviewing to find out how much they know about your condition.
Holy shit op this is LITERALLY in the book 'Never Split The Difference: Negotiating as if Your Life Depends On It'. Written by a guy who did hostage negotiation and then tried doing business negotiation, and mopped the floor with industry experts.
I'm fortunate enough to have a primary care doctor who knows about hEDS, but it's occurring to me that the skills in this book could be medically life changing for chronically ill folks of all kinds. Like. Literally a matter of life and death, especially for BIPOC and/or fat and/or young people who are having their issues dismissed.
HMMM interesting!! will have to check this out

















