When youâre on prednisoneâŚ
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@chronicallyillblonde
When youâre on prednisoneâŚ

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So sorry!
Iâm so sorry Iâve been so MIA, life has been a little crazy and Iâve been learning how to cope with it all.
TWO THINGS THAT ARE NOT YOUR FAULT:
1. YOUR DEPRESSION!!!
2. THE RESULTING LACK OF MOTIVATION!!!
(take care of yourself, and ask for help if you need it. this isnât your fault and you donât deserve to feel ashamed of it)
Me when I finally show up after Iâve been asleep for 3 months, 4 days and 6 hours.
Having both physical and mental heath problems can be so annoying especially when doctors play them off against each other.
 If I try to get help for a physical health issue and the doctor finds out I have mental health issues they will tell me my mental health is to blame and that I need to go away and get treatment for those issues if I want my physical health to improve and vice versa.Â
 Maybe if they actually worked together to treat both the physical and mental health problems at the same time things may actually improve for their patients but nah itâs easier to just shift the responsibility onto someone else and let the patient suffer in the mean time.

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I am learning to accept that not all âgood daysâ involve feeling happy and achieving everything on the to do list. Sometimes a good day is getting out of bed when it was the last thing in the world that I wanted to do.
The Spoonie Life ^
Every. Single. Day.
Sometimes after a doctor's appointment...
When your body begins to fail you
There is nothing left to do but embrace it.
To wrap your broken arms
Around a skeleton that has become more cage
Than body
Donât say stuff about my looks as a comment on my health.
Please donât. If you like my hair/jewelry/makeup then fine, you can say so (I donât really style my hair or wear these things often, but thatâs beside the point). But donât tell me I âlook like I feel better.â Maybe I do, maybe I donât, but either way, how I look is not something you should use to judge my health.
Example:
sometimes rosy cheeks = healthy, well-oxygenated blood
sometimes = hot, painful flushing.
Also, I donât want to have to be put in a position where I want to lie and say I feel better/Iâm having a good day when Iâm notâŚIâm just hiding it well.

Anya is live and ready to show you everything. Watch her strip, dance, and perform exclusive shows just for you. Interact in real-time and make your fantasies come true.
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Its really fucking concerning that heaps of disabled/chronically ill folks are scared of doctors and nurses not believing or listening to them/giving them the wrong treatment/giving the wrong diagnosis
Yeah but itâs not exactly an unfounded fear. Weâve all been abused, dismissed and misdiagnosed way more than weâve been accurately diagnosed and appropriately treated.
Find me a seriously chronically ill person without medical PTSD and Iâll find you a unicorn.
You know what absolutely boggles my mind? That healthy people exist. Genuinely healthy people. No mental illness, no physical illness, no chronic illness. Just healthy. What a life that must be.Â
This fucks with my head though. There are people who get up and feel⌠Awake, and then they go and just⌠Do their adult responsibilities without feeling anxious or upset? They just return phonecalls? Answer calls from unknown numbers? Donât procrastinate doing important things until is a huge problem that makes you cry??
That sounds fake.
Me everyday:
me composing myself after having an anxiety attack

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tfw some random stranger in public says âjust wait till you get older!â when they overhear you talking about your chronic pain and you wish there was a camera to look at pointedly like youâre on The Office.Â
Spoonies do you ever get into that zone where youâve been an exhausted trance for hours forcing yourself to stay awake, and now you can finally go to bed except you *cant* because your body doesnât know how to turn off the âstay awake your life depends on itâ switch?
I meanâŚthis is literally my life.