The Chronicles of My Life

We lose a lot of things because of our disability and we all have to come to terms with that. Maybe some day you'll be able to do that thing again, but for now it's ok to let go.

You don't need to push yourself that hard or feel like a failure when you can't do that thing anymore. It's ok to give up things, it's not something bad.

If there is something you don't want to give up, then yes you can fight for it. But don't keep fighting to the point where it'll only hurt you more emotionally/physically.

Our lives are already difficult, so it's ok to not be able to do things. That's literally being disabled.

Don't feel pressured to hold onto things that you can't do. The only person that gets to decide if you want to fight for it or let it go is you.

Me, the second my alarm goes off:

new people are coming your way with love

a huge success may be waiting around the corner

the possibilities are endless

1. Recognise that it’s a feeling – and our moods go up and down. Shrug your shoulders, grit your teeth and choose to make it through the day. Nothing’s really wrong – and there is nothing wrong with you. It’s just the way you’re feeling – and our feelings usually change.

2. Don’t be hard and condemn yourself. Don’t beat yourself up for feeling miserable and blah, or for feeling apathetic and low on energy. Be patient, understanding and gentle with yourself. You’re no worse than others for we ALL have blah days

3. Do something rather that nothing. Do a few mindless tasks so you don’t just waste the day – and you’re likely to feel better once those you’ve got those out the way as they’re usually the things that you never want to do!

4. Only do as much as you have to. It’s going to take all your strength just to make it through the day. Preserve your energy – and allow some things to slide. You can always get around to them another day.

5. Be extra nice to yourself. One of the best ways to fight a bleary day is to be nice to yourself and to do the kinds of things that help to lift your mood and to brighten up your day. For example, go out for a coffee, or have a bubble bath, turn up your favourite music or call a bunch of friends. Do all the kinds of things you know will help to boost your mood.

abled people think wheelchairs are prisons; but to someone like me, it’s a liberation unlike any i’ve ever experienced.

being able to go places and participate in things while being fully present, happy, and energetic is something i haven’t experienced since childhood. without the constant need to seek breaks or duck out of events early i can experience my life in ways that i simply wasn’t capable of before. 

[Image ID: The first panel is captioned “what i was afraid getting a wheelchair would be like.” It is a black and white drawing that pictures a sad and lonely looking girl sitting in an oversized wheelchair. The shutters are closed, and the room has cracks and cobwebs.

The remainder of the panels feature a cheerful-looking girl with long hair and bangs in a lightweight wheelchair, drawn in pink. The second panel is captioned “what it was actually like,” and features the girl rolling blissfully down a path surrounded by flowery fields.

The third panel shows the girl staring with sparkly eyes at a round cat-shaped object on a store shelf. Text by the girl reads “new items unlocked!”

The fourth panel shows the girl from behind, staring with an open-mouthed smile at some baby birds and their mother. The text reads “babies!”