i need critical mutual aid
[image description: me! a tanned person wearing nasal cannula, quill encased in resin earrings, and dark eye makeup. i sit in front of a wall of pink LED faerie lights. my black turtleneck reads, “it’s your funeral!” and in rainbow text over the image i’ve written, “hi, it’s will.”]
hi, im will, im critically ill, and now im at my wits end. im a 22 year old disability educator living out in the south. im the co-chair for a handful of local events, involved closely with several LGBT/disability orgs, and well known-ish for being the Local Blind Person with the Pink Cane.
in late march i was sent to the ER by my clinics nursing hotline due to what sounded to them like a ruptured ovarian cyst. long story short: an ultrasound showed it wasnt, and thus i was referred to a gastroenterologist for abdominal pain. since then ive been cycled through three meds.
and the third made me sicker after i waited the allotted week to see if itd work.
the gastroenterologist also ordered a CT scan, bloodwork, etc—ruling out celiac or gastritis or what-have-you—and then abruptly left her practice without warning. my followup was with a nurse practitioner at the same clinic, who responded to my problems with the 3rd medication by upping the dosage from 72mg to 290mg.
this landed me in the ER because i misguidedly believed medical professionals always know what theyre doing. in a fit of nausea i crawled into a hot bath, where my hair started falling out in fistfuls. i developed what i was worried was tardive dyskinesia, something im still risking with essentially every medication i take. the next thing internal medicine tried me on had similarly awful effects, given that it interacts with each and every one of my other meds while also being known to make even mentally stable people uncontrollably suicidal.
now my psychiatrist wants to put me on fucking levodopa, im seeing another specialist today to try to cover all my medical blanks while i triage with a teaching hospital, and in the meantime im losing massive amounts of weight because eating puts me in pain. im taking my meds crushed in applesauce and drinking a metric fuckton of clear ensure with various nutritional powders added into it. ive gone from weighing 95lbs to 70lbs. the last time i worked was in mid april, im on a payment plan for 5 different ER visits, and i have no idea what im going to do moving forward.
i also just got diagnosed with hearing loss, to top it all off.
right now im trying to put together around $1500 to cover one month of rent, co-pays, medication, bills, gas money, and replacing things like nasal cannula or oxygen concentrator parts. its a steep goal, but two doctors appointments is $100. going to physical therapy twice a week is $100. co-pays are kicking my ass, payment plans are still expensive, and thats after hitting my first deductible three months into the year. between all of the bullshit i havent worked in nearly a month, and my savings are slim. weve been lucky enough to receive grocery help from a local org, but we are in crisis here.
i can provide proof of hospitalization, co-pay, medications, and all other expenses via DM.
buy my lesbian sherlock holmes adaptation i co-wrote with my partner: (link 3)
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