Ladylike? Well, I like ladies...

Several decades later my sister had an MRI, as a long shot, to try to figure out why she was sick and deteriorating with a number of symptoms that were close to being written off as anxiety. She was sent straight to the hospital for adult onset hydrocephaly. Two days later she had brain surgery to put a shunt down her neck into her stomach and drain the fluid out. (No, you cannot usually get brain surgery that fast. Yes, it was that urgent.) Recovery was long and squiggly but it happened.

I think of that boy every once in a while. The one who died. I have no doubt that treatments developed for people like him, and tested on people like him, saved my sister's life.

I've been type 1 diabetic since I was about one and a half, and was incredibly sick. If my mother hadn't also been type 1 and recognized the signs I likely would have died.

I was born in 1982. Insulin was first given to a patient in 1922, and he survived. Before that, type 1 meant death, often very slow and agonizing. Before insulin, doctors advised a super strict "keto" diet to prolong life, and it could work for awhile - up to a year, I believe. But it was a miserable existence as the body was literally eating itself as the blood turned acidic until the patient eventually died.

60 years. Only 60 years before my birth did that procedure work for the first time. That's absolutely nothing given the span of human history and I think a lot about the people who died from it throughout time.

But yes, people tried. Healers and doctors of all sorts tried all manner of things to allow these (mostly!) kids to live. The fact that it was accomplished at all is nothing short of a miracle. The fact that I've been alive 42 years is fucking insane considering my body doesn't produce a hormone necessary for survival. If you think that doesn't blow me away on a regular basis you have another think coming. It's nothing short of a miracle.

Every medical advancement is. The amount of work that goes into it and the vast amount of luck necessary to get it right even when all the research and information is sound is just astonishing.

In 1930, having diabetes type I would basically mean being hospital bound, being woken every few hours for regular injections.

In 1965, you'd be able to live at home and get by with a very strict diet and a few timed injections. You'd struggle with chronical side effects. Having children wasn't done - passing on your genes would be immoral, and it might not even be legal for you to marry.

In the year 2000, you'd have a device clipped to your belt that would measure your blood sugar and distribute insulin, you only need to change the needle a few times a day. You might even be allowed to join in P.E. class

In 2025, you stick on two patches that do the same thing. They're synchronized through your phone.

Well I don't like how it feels. I don't feel cleaner without body hair. I don't prefer not having body hair. But who will advocate for women like me, but me? For women who do like hair removal, they are advocated for every time they step out of the house and see 99% of the female population also conforming to that standard, or when they watch a movie and see all the shaved actresses, or view an advertisment, or open a magazine, or watch a music video, or scroll through social media, or walk down the streets without receiving insults and glares for having a completely normal bodily feature.

in aotearoa, june isn’t our pride, it’s theirs. marsha p johnson and sylvia rivera are their historical figures, not ours. the phrase that “you owe your rights to Black trans women” is true there, but here we owe our rights to (mostly) Māori historical figures. i have the freedoms i do because of the legacy of an entirely different set of people operating in an entirely different context at entirely different times.

But because of american cultural imperialism, most queer people in Aotearoa don’t even know our own queer history. Carmen Rupe, Ngahuia Te Awekotuku, the Dorian Society, Gillian Laundon, Georgina Beyer, and the Wolfenden Association are some of our queer history. We should know their names! we should know what they did for us! but because of the power of the american imperial machine, we don’t.

our national pride month should be july, the month that the Homosexual Law Reform Act passed in 1986. our two largest cities hold their pride festivals in february and march, respectively. american queer history has very little (or nothing, depending on who you ask) to do with our queer history. anecdotally, from my own queries, queer youth in aotearoa know more about american queer history than our own.

hold more dearly in my life

than the haiku bot

if you've made replies on posts there is now a tab on your blog showing every post youve replied to and your reply.

if this is not what you want, either go to your blog and click comments and disable it from there or just go to your individual blogs setting pages. just change it from blue to grey if you dont want everyone to see your replies AND the post you're replying to

PLEASE BE ADVISED that it is set to disabled for blogs that have not made any replies but it will turn ON if you reply with that blog in the future.! i just tested it with my main, which was greyed out but it turned on the moment i left a test reply

so couple of clarifications. comments are disabled as default for primary blogs that have their likes disabled. they are seemingly enabled for all other blogs that have replied to posts

Tempted to actually put this on spotify so I can secretly stream it at work...