I’m not sure if I’m the first to say this, but I do think at a certain point, it’s kind of ridiculous to expect a chronically ill person to keep a detailed book of their “day to day” symptoms. I’ve been feeling terribly for some eight months now and most of my focus is on making sure I don’t excessively stress myself, don’t overwork myself, and make sure I’m still doing self-care and maintaining my relationships.
My symptoms are realistically hour to hour or sometimes even some minutes to some minutes, when I’m feeling terribly how am I supposed to keep detailed track of that? How do I keep track of this when I’m resting and recuperating? When I’m trying to play catch up with my chores, my relationships, my hobbies?
It’s maddening, and it’s especially maddening to be berated or seen as “stupid” for being unable to keep up with writing it all down - even when I make an attempt to chronicle it on my notes app because it’s the one thing I can keep in reach, it’s not good enough. I feel for anyone else who’s dealing with this.
