the tumblr -> mastodon thing going on rn feels like my parents are getting divorced and they’re having a custody battle over jiraiblr

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the tumblr -> mastodon thing going on rn feels like my parents are getting divorced and they’re having a custody battle over jiraiblr

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This post is going to make a lot of disability "allies" angry and/or uncomfortable. I do not care.
Im so fucking tired of OCD being painted as "the cleaning disorder" and "everything must be so neat and tidy disorder" its not. its can be like that, sometimes. but just as often as OCD can cause (severely mentally and socially taxing) attention to being clean, often times it actually the opposite. and in my case, its severely the opposite. im sharing pictures because i don't know how to better explain to people that i can not walk on the floor of my room. i walk on top of old clothes and books and trash. I hope you realize this is an incredibly vulnerable thing for me to do.
I. can. not. walk. on. my. floor. i really cant show it any better. and yes, ive tried cleaning. ive tried cleaning with my meds. I've tried cleaning to music. ive tried throwing things away. every time it ends in me crying. that suitcase was last used 6 months ago, i still haven't unpacked it. that chick-fil-a bag has been there for over two years. why cant i throw it away? its full of worm on strings that i got as a joke and never tried to do anything with. those paint splotches on the floor are three years old. the last decent clean of my room was almost 6 months ago, and a lot of that mess was pushed under my bed. its still there. and if you understand why my room is like this, you can only imagine how long its been since ive washed my hair OCD isnt always clean. it isnt always neat or symmetrical or pretty often times its filthy, its sleeping in trash. it smells horrible, it doesn't let me be clean or perfect. it doesnt want to be clean OCD does not want to be clean. it wants everything to be correct. and often times, correct means leving old towels on the floor becuase it would be wrong to move them. I have more to say. im going to make more posts about our OCD. but for now, i am tired, and i feel like shit. so i am going to go wash my hands because that is the cleanest i know how to be
Fuck it, I'm saying it.
Weight should not be part of the criteria for eating disorders as it only further perpetuates and enables the weight obsession. If someone with restrictive eating patterns doesnt get diagnosed with anorexia because of their weight, they may be more inclined to worsen their condition for validation. And the ultimate validation would be a diagnosis. Not to mention psychs can be fatphobic to people with EDs. I have a doctor that knows my disorder and still compares me to a BMI chart.
I believe eating disorders should be categorised on the obsession, fear of gaining weight, exercise/purging, and the eating behaviours exhibited. Not how successful they are at self harming to meet the beauty standard. It reinforces what we already know, that people are categorised, valued, and prioritised based on their looks.
- Sincerely an atypical anorexic
Update, aid needed.
I got kicked out of my bedroom and all of my furniture is being removed and taken away from me as well. This includes my bed. Currently, I've been sleeping in the living room in a sleeping bag that doesn't even belong to me, squeezed on our very uncomfortable very tiny couch.
I will be allowed back into my bedroom once I can afford new furniture to put in it, it's been deep cleaned, and thoroughly sprayed for spiders and bugs. For three or four years, I'd been living in a depression room with zero help to keep it livable and safe - clean. I had my trash can taken away, Im not allowed a trash can in my room, I was told to stack my trash and that someone would help me take it out and that never happened. I was completely unable to handle how much had been building up with me only being able to carry and take so much at a time. At points, I was suicidal just because of the state I was living in. My mom was the only person to try and help, but she was always in and out of hospitals and she's equally disabled. Hardly anything ever truly got done at all, my room was Bad.
Im capable of cleaning and keeping a space clean and safe, I have been trying for years. Every single time I got a resource that was helpful, or an aid, or even a trash can or just a simple bag - it was taken. I know myself, and I know myself well enough to know what works and how to do it. At my father's house, I had my own bedroom too, I kept it clean. I had a system that worked, I had aids and I had help, living here? With my grandparents? I have absolutely nothing.
My partners came to visit for a vacation just a few days ago, on their final day here with me they helped get my room to a safer state. The level of help and cleaning that was done is so much more than I've ever received since I've had a bedroom, (I only got a bedroom after turning 16) it's amazing and I am so so very thankful. I love these people so much. Unfortunately, the cleaning had unearthed many many different types of spiders that I cannot identify, and I got kicked out of the room and everything is being taken away and either thrown out or repurposed. My tables are being taken and used in the living room, for example. I will be allowed back into the room and allowed to "prove" that I can follow a cleaning system, if I can buy new furniture and things like a trash can on my own.
I have no money to spend and very very little savings. My family waited to tell me this until after I had spent my money on this vacation, on merchandise for the concert we went to, until I got down to just having my emergency savings - which is barely anything at all. Not even enough to reliably buy food, thank god my mother has been buying food for me using her foodstamps or else I'd be struggling in ways I don't think I'd survive.
I am in need of help.
I am a near 24/7 wheelchair user with several severe physical disabilities that make every little thing harder and harder, I know what my capabilities are and what I can achieve. My grandfather does not understand this and will not listen, any time I have asked for a simple accommodation like just a trash can it's been denied and I've been called an embarrassment. This time, Im getting a chance to prove myself if I can obtain all of the items myself. Which, I cannot do in my financial situation.
My Ko-Fi is open for art comms, donations, and memberships. On top of this, I've made an Amazon wishlist (I wish it was not on Amazon but this was the easiest way I could think of) for the items I am trying to get. If I can make enough money to buy these items, or if anyone is willing to help out in a major way and purchase it from the list, my life will become much safer and easier to live. And I will be eternally grateful for it.
Bedroom Wishlist // Wheelchair Items
Ko-Fi Link
yeah I’m disabled but I’m not really disabled because I don’t have one of the bad disabilities. My disability is one of the lesser disabilities that isn’t actually a disability so clearly I’m not disabled at all I’m just uhhh uhhhhhh something else

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why does all of the disabled rep (if you could even call it that) in this show fucking suck
wanting ‘recovery’ but what am i without the all consuming hole of pain within me that has marked me as a person
tfw you realize nobody will ever take you seriously as an autistic person and instead see it as a fun little word to use when they act dumb