"hurts because i need to move more" and "hurts because i need to not move it at all" should really be different sensations. i should be able to troubleshoot my own body without just picking one and seeing if that makes it worse.
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@thisbitchsleepy
"hurts because i need to move more" and "hurts because i need to not move it at all" should really be different sensations. i should be able to troubleshoot my own body without just picking one and seeing if that makes it worse.

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IMAGE DESCRIPTION: A tweet by Twitter user @1Schoolhouse reads, "I know I don't look disabled. This may surprise you, but most of my body is on the inside… where you can't see it."
they should make a body that isnt constantly in pain or sick or has health problems forever
A spell called “Literally Fucking Nothing” that uses all your spell slots and does literally nothing
Chronic fatigue.
Chronic fatigue
Chronic fatigue
no longer asking what’s wrong with me i don’t believe i care to know

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Social Security includes the number for a suicide hotline on the envelope they use to tell me they have decided to deny my disability
There’s a depressing ass poem hiding in here, but im too tired to put it together.
When will people realise that Chronically ill people cannot predict how they will feel in the next few minutes, hours, days or months. I could wake up feeling fine and then feel like I’ve been hit by a truck within the hour. There are no warning signs.
tbh i hate those posts that are like "chronic illness is being in pain every single second of every day" posts because like. a lot of people with chronic illnesses don't live like that??
like there are chronic illnesses whose symptoms rarely or never cause pain, but manifest as fatigue or seizures or drops in blood sugar or risks of deadly complications. there are chronically ill people whose pain is well managed by medication. people whose illnesses don't hurt but require weekly blood tests and daily medication. people whose illnesses aren't painful but who live in hospitals. people whose illnesses are asymptomatic even if pain is a normal presentation. people who experience pain-free days or months or even lives who still have to deal with their illness every single day like you do.
it just makes me mad when people reblog those "chronic illness is never knowing a moment without suffering" posts because that's not a requirement for chronic illness. it's not a universal experience.
able bodied allies of disabled people when your disability genuinely has no secret upside and makes you useless to a late stage capitalist society
How Old Were You When You Became Physically Disabled/Chronically Ill?
I was born disabled
Age 0 (post-birth)-7
Age 8-12
Age 13-17
Age 18-25
Age 26-35
Age 36-45
46+
not disabled/see results

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curious. what would you rate your overall pain level at right now?
0 (zero)
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Me when my disability disables me
even if you did the barest minimum research, the Wikipedia page for chronic fatigue syndrome is so sad. it’s like “this is what we diagnose people with when we can’t find anything else wrong with them. but it’s definitely something physical because there are visible neurological changes seen in neuroimaging and weirdness with the immune system. full recovery rates are less than 5%. the most common treatment is CBT which ignores the fact it is a physical illness and tells sick people they’ll get better if they just stop thinking about being sick.”
that is cognitive behavioral therapy, not cock and ball torture
Maybe we should try that next...
Sometimes us chronically ill/disabled folk will make the choice to have a day out when we know what the end result will be. We'll go out and have fun knowing we'll be stuck in bed for the next several days.
Even if we take it slow
Even if we only do low-impact activities
Even if we're mindful of our bodies and super duper extra careful
We'll still be recovering for a while.
That doesn't mean it wasn't worth it. It means we weighed the risks and rewards and made a choice. Most of the time I'm at home. But sometimes I'll go out and return with a flare up and some good memories. And that's okay too.

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What people don't understand about "no excess physical activity/exercise" is that everything is physical activity.
I told the people at orthopedic urgent care that I can't do physical therapy because my condition doesn't allow for exercise. They gave me a list of things I could do at home. They were exercises. I was frustrated at first, but it made me realize how able bodied people can't conceptualize "no exercise" at all.
Walking down two hallways to get to my college class is exercise. Cooking and baking are exercise. Getting something from downstairs is exercise. Even typing is exercise. Each one of those things chips away at my ability to do simple things, like sit upright or speak or even just stay awake. When someone says they can't exercise for medical reasons, that means they can't, and pushing them to do physical activity because it "doesn't take that much energy" is dangerous. Everything takes energy.
Mad thinking about the family member that knows I'm chronically ill and have a compromised immune system but didn't want to take a covid test or see a doctor because they didn't want to accept a covid diagnosis which resulted in me becoming very ill back in like September and October?
Multiple times I told them they probably had covid and needed to see a doctor and they got defensive like "why do you want me to have covid so bad?!" Like what are you on about it's also about your health and wanting you to no longer have it if you do? For several weeks it was a back and forth where they were disgustingly ill and refused to get it checked out. Insisted on NyQuil and essential oils. I told them it's people like them out there killing people like me. And they have an immunocompromised boss and coworker? Their coworker was told by her doctor that she won't likely survive getting vaccinated with how severe her lupus is and it's a fucking miracle their stupidity didn't kill her
Told them they'll end up worse the longer they take to get treated with antivirals. Then when they didn't get better and then I got sick and they were just "wah I'm scared what do I do?" And I again was like "go to the fucking doctor???" And finally their stubborn ass did
I was pissed because I did everything right, I masked and cleaned fucking doorknobs and shit before I used them half the time but all it takes is using the same light switch or breathing the same air. Even worse was that they got another family member sick so staying well was that much harder for me. And the worst part was the audacity they had to blame the one family member that didn't get sick because they take public transit. But unlike them they don't go to gatherings and always wear a mask (2 or even 3 actually) and keeping me and others around them alive is one of the reasons why. The sick family member's explanation was that it was spread to me not by them being sick but via touch or clothing when the family member they scapegoated came home which is highly unlikely with the fact that they masked at all times, wash their hands, distanced a lot and even still mask in the house. I've never met someone more careful about it
They never gave me a reason as to why they took so long to see a doctor or why they were still stubborn when I said "please wear a mask and get tested I don't want to die because you're more scared of being told you have covid than killing the people you love with it". That would snap me out of my bullshit- hell even if it wasn't someone I cared about, even if I really disliked them honestly I'd still do the right thing? People are so fucking stupid dude you don't do that to someone you love. It made me worse in ways I haven't gotten better from, including perpetual postnasal drip and congestion but more importantly a fuckton of fatigue.