With every broken bone I swear I lived.

I wish my body would like... work

I’ve been in a body that experiences a lot of pain and frequently malfunctions for so long that I really don’t have a gauge for normal bodies anymore. How long can a healthy person stand? How long can they walk? Is there a point where they can’t sit anymore because they are in so much pain too???

Is this a side effect or should I be worried? A 3 part series.

When a disabled person says they can’t do something, there’s probably years of suffering behind that statement, and a slow painful journey towards accepting that fact, but people wanna act like disabled people just wake up one morning and decide they can’t do anything.

I make jokes about my medical issues because it’s easier than facing the fact that I’ll be living in severe pain the rest of my life.

I really appreciate the fact that famous people like lady gaga and selma blair are speaking out on the issues that chronically people, specifically women/female presenting people, face. If these people who can afford the best possible care and have so much privilege are discriminated against like this imagine how it is for the rest of us.

every time a drs appt solely consists of “there’s nothing left i can do for you [shrug emoji]”, they should pay me the copay.

Sometimes I forget that most people aren’t living in constant pain. I forget it’s not normal to have part of your skin feel like it’s on fire out of nowhere or to have agonizing joint pain. People are going about their lives the same way I am but they aren’t in constant pain. I forget that. And I wonder what it would be like to live like that.