Recently, after reading my friend @metalheadsforblacklivesmatter ‘s posts, I thought it was finally time to share my own story experiencing medical racism, transphobia and sexism.
TW: MEDICAL TOPICS, RACISM, TRANSPHOBIA, SEXISM AND EDS.
Somethings about me and disclaimers:
For those who don’t know me, hi hello, what’s the dealio? My name is Kuco, I’m a two-spirit black-indigenous mixed person. I am light-skinned, but most people can tell I’m mixed or assume I’m Latino, to the point where my medical documents mark me as Hispanic despite myself telling them to change it. I’m also AFAB.
While my experience is bad, it’s not unique to just me. Other people who are apart of the BIPOC community have faced the same or much worse. Regardless, please listen those in the community with darker skin. They often face much worse. If you’re only comfortable listening to those with lighter skin and feel more comfortable while claiming you’re an ally, you’re wrong and need to do better.
My story:
In 2021, I was experiencing nausea and vomiting after I ate. After a week of this continuously happening while working, I went to see a doctor who sent me to a surgeon, who sent me to a gastroenterologist to see what could be done without surgery.
This doctor was a cis white man in his late 60s who was apparently “retired.” After pointing out my symptoms and how they were getting worse, he looked through my medical history and noticed I had anxiety. He immediately went to the conclusion of a “brain-to-gut” connection, saying it was often found in woman. (Shock to no one, that wasn’t the case. Also, the issue was not my anxiety. My anxiety has progressive gone down and was at the lowest it had been in YEARS. My therapist at the time even confirmed this himself.) During this time, he also repeatedly referred to me using she/her pronouns, despite that my medical record points out that I am transgender and went by he/him pronouns at the time. (Despite me pointing this out, he continued to ignore this.) He gave me medications that were supposed to help, a doctor’s note (as I worked at the time) and sent me on my way.
Things only got worse. After 6 months of my symptoms getting worse and worse (to the point I could not eat solid food and started vomiting liquid) and several tests, he still believed it was a brain to gut issue. I had lost a lot of weight, to the point my own family noticed.
One of the last appointments I had with this doctor involved what’s called a gastric emptying test. For this test, a radioactive isotope (which isn’t harmful to humans) is put into some eggs and ingested. Pictures are taken of your stomach to track how long the isotope stays in your stomach after 2 hours, 3 hours, and 4 hours. Normally, your stomach is meant to empty at the 2 1/2 to 3 1/2 hour mark. (By what I was told, mind you.)
My stomach emptied finally at the ladder end of 4 hours. This was considered on the way lower end of normal.
Once my doctor got this result, this was his response: The test says that your empty is at the lower end of what was normal, so that’s normal. Just keep taking your meds. It’s more common for Caucasian (white) people to have more serious gastric problems. Just so you know, I’m not writing you another note for your work, it’s not what I do.
This is what broke the camel’s back.
I called my primary care doctor and let her know that I wanted a different doctor who was a woman to see. I told her that he wasn’t listening to me nor taking me seriously and I refused to see him again. I also let her know that he was refusing to write me anymore work notes, despite the issue not being resolved. (A small time after this, my job let me go due to not having a return date. They said I was allowed to reapply afterwards, but I didn’t for different reasons. That’s another story for a different day.)
My primary care doctor sent me to a different doctor who was a woman and also happened to be a POC.
I had an appointment a week later, in which I told her all my symptoms and how I was barely able to eat it drink anything without being nauseous and vomiting. She listened to me while looking at my previous results from previous tests, in which she saw my gastric emptying test.
Her response was: Your test says your emptying is on the lower end of what’s normal, but by what you’re saying, it’s only gotten worse. Why didn’t he give you anything? I’m surprised you’re even talking to me right now.
I told her that he had said that due to my anxiety, it was a brain to gut issue, which was common for “woman” and continually insisted on that, as well as his other comments. She concluded I have a condition called Gastroparesis, or delayed gastric emptying. This is a condition that affects the stomach muscles and prevents proper stomach emptying. While there isn’t a certain idea of why it happens, it’s thought that those who previously suffered from EDs and have diabetes contract it more. (I had suffered from EDs when I was younger and have a history of diabetes that runs in my family, which is where I believe my causes came from.)
I suffered 9 months with this condition without proper treatment, in which my symptoms were prolonged, got worse, and almost passed, all because if ONE doctor.
While I got better for a time, I’m still battling with this condition, as well as other conditions that came along.
~~~~~~~~~
When those in the BIPOC community tell you we don’t trust white people, especially doctors, it’s because we’ve been shown time and time again the complete disregard for our care and safety.
Use your allyship for good and protect us.
I would like to thank my friends for your help, but especially with my partners and my friend @metalheadsforblacklivesmatter . They helped me so much through those 9 months, and even now continue to help and support me. I love you guys so so much. 🩵🩵🩵
