Feb 21, 2025
India’s healthcare system faces a growing demand for critical care pharmaceuticals. From life-saving antibiotics to advanced oncology treatm
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India’s healthcare system faces a growing demand for critical care pharmaceuticals. From life-saving antibiotics to advanced oncology treatm
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cw: leukemia, medical, negativity
I can only do about 15 minutes of activity before my body gives up, be that walking or cleaning the house etc. It's very inconvenient. Leukemia/the strong meds to send it to remission... it's really rough on my energy levels and my body's ability. I'm just tired all the time too, but I find it hard to sleep. And the scalp itchiness is so frustrating. I will try and improve my fitness/body strength which should hopefully help combat some of the leukemia stuff, maybe? I can't DO anything with my kid and I hate it. I just wish I could sleep and rest as much as I wanted/needed to.
Tw. Hair loss, leukemia.
Was feeling really cute in the bath and took some reasonably tame pics to send friends I've fucked before but no longer fuck (because I MIGHT be brat when I'm sexually frustrated)...
and then fucking leukemia leukemiaed all over my fucking hair!!!
Sorry.
Dasatinib, the drug I'm on that is saving my life so I feel like such a little bitch any time I complain about a side effect, but anyhow one of it's side effects can be hair loss. A big clump just fell out. 😭
I feel like Neve Campbell from The Craft when all her hair starts falling out, I feel like... I dunno how to explain it but my hair has always been a part of me that I love so much, I know it's stupid and vain but it's been something I've been complimented on all my life. Anyway my hair IS super thicccck so I guess some hair loss isn't gonna be a problem.
I don't *think* I'm gonna go bald... I frikkin hope not but hey if it happens it happens I'd lean into it and wear a stainless steel collar like it's some kinda kinky slavegirl look I'm doing on purpose. Because hey this is how we survive, isn't it, pretending we are being kinky but really our body is being flooded with really honestly very cool tyrosine kinase inhibitors which might fuck up our bodies a little bit but also do the whole NOT DYING IN 3 YEARS thing, which I happen to think is rather lovely of it.
Hence me feeling like an asshole for whinging about something as vain as hair loss.
But venting keeps me a tiny bit sane through this absolute ridiculous leukemia nonsense.
Shout-out to my scumbag brain for giving me an anxiety attack as I'm meant to be packing for my trip to see my mother and brothers for Easter (which I actually want to do). Also shout-out to my Dasatinib medication for giving me really damn bad nausea and now I'm stressing that I'll throw up on the car ride to my mum's place, my brother is driving me and my kid up, but I can pack a vomit bag and I've taken some anti nausea tablets.
Just gonna take a sec to breathe.
This simple packing for a trip thing is not so simple when you have ADHD, anxiety, leukey, and have been pretty much a housebound shut-in.
Day 20 of taking Dasatinib for my leukemia!
It feels like the worst of the side effects have worn off to some extent, though the fatigue and nausea remains.
I'm really happy and grateful to have this medicine.
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Getting sick as a parent is wild
t.w. nausea, vomiting, leukemia
I got sick coming home after school pickup and I'm sitting there retching and my kid is telling me facts about throwing up and regaling me with a time they felt nauseous and had a lie down and so I was trying listen and be engaged and empathetic whilst throwing up and then my kid is tryna give me advice and is getting mildly worried about me so I'm then having to explain what throwing up is and that it's totally safe and the reason I'm throwing up is because of the harsh leukemia medicine I'm taking and basically reassuring the kiddo, again, in between throwing up.
But that's what you do as a parent. It's messed up but it is what it is. Love is weird. Parenthood is weird. But wonderful.
Also this medicine is saving my life but it's a bit full on with the side effects but hey I shouldn't complain but also blergh unfun.
Full of 'ow' today!
My child wants to be home-schooled, which I'd love to do but preferably when I'm not fighting leukemia. But hey maybe that's a great time to do it.
I'm so sore. I feel guilty for wanting to complain about the symptoms I'm having, because I should be focusing on the positive and feeling grateful that I'm very likely gonna live. I am grateful for that.
(whinging after the cut)(tw. medical symptoms and skin issues)