#cfaware

Just wow.....I’ve just seen #fivefeetapart and it brings back floods of memories when I was young and was in hospital having IVs and us CFers were allowed to mix as the issue of cross contamination was not understood by science. I have to say you’ve done us justice @fivefeetapartfilm

I’m so grateful my wife doesn’t have Cystic Fibrosis as I couldn’t live without her, and I am so glad we can touch! I know it’s a rare scene CFers falling in love but today it’s also rare for CFers to become friends in real life within the UK as the issue of cross contamination is understood so deeply - giving another individual with CF a hug is impossible for us. Great awareness movie.

And the funniest thing was when I left the cinema I heard from a group of teenage girls “look there’s one”, like they’ve seen a celebrity 😂 but at least they know what we go though

Many people think Cystic Fibrosis just impacts upon your lungs, however it can impact upon every aspect of an individuals body including their fertility.

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I am feeling beyond blessed to announce that after 19 months of doctors and hospital appointments, 1 operation for me, 1 round of #ICSI (the form of IVF we required), 14 home injections, a trip to theatre and a general anaesthetic for my wife, our little miracle is due in October 2019 💫❤️

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I am so grateful that I found someone who is willing to spend their life with me despite the set backs I may impose upon theirs due to my CF . Seeing the impact infertility had upon my wife broke my heart, however I am beyond happy that our dream has become true and our family is now complete!

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I can now die happy, feeling like I have actually beaten CF! Growing up I was aware of the facts that I may not survive until adulthood; however the reality is completely different to those facts. My life is more fulfilled despite my CF then I could have ever imagined, and to say that I will soon become a Daddy is something I never imagined would actually happen.

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For anyone else fighting Cystic Fibrosis, or infertility please never give up on hope; amazing things happen every day. To find out more about what fertility treatments entail take a look at our video which documents our journey through. To find the video click on the YouTube link, thank you

#SurgicalSpermRetrieval and ICSI 💫❤️

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Love it when you get the passing comment after a coughing fit off someone you don’t really know. “Need to stop smoking mate” or the classic “You still got that cold?”...........only if you knew the truth 😑

When Five Feet Apart came out in cinema, I thought I was going to be a harsh critic being a Cystic Fibrosis patient but that wasn’t the case. To see my honest opinion about the film click on the link. Thank You!

Cross infection is a serious hurdle individuals with #CysticFibrosis face. #FiveFeetApart in cinemas can cause issues for CF patients. I’ve made a Safety Guide Video for all Cfers! To watch click on the link below 👇

👉youtu.be/sE-5q9WXPu0👈